I would definitely push to go to a Rheumatologist. It's strange that they just left you without any direction..
We aren't Drs. here so we can't offer any type of diagnosis help...But we are certainly here to empathize and hope you keep going forward and find answers and solutions..
SB and "the pup who snores loudly"
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
ACDF with hardware, allograft bone Nov. 2005
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006