FALLING APART!!!! WHAT NEXT!?!?!?

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ANTHONYB
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 3/26/2012 8:25 PM (GMT -6)   
hi.... this is my first post i'm glad i found this forum!here's my story May of 2010 I fell off the top of an 8' ladder while working on my truck "i know what your thinking, who needs an 8' ladder to work on their truck? i'm from the south we all have huge trucks" .when i fell I landed on my back and was knocked out. I tore my rotator cuff in two places and had a small tear in my bicep tendon. I went to one of the  leading Orthopedic centers in my state. The doctor repaired the rotator cuff and cleaned out the frayed portion of my bicep tendon. He kept me imobilized in a sling for three months before ordering physical therapy. At my very first physical therapy appointment it was apparent that something was very wrong. My shoulder was frozen and I was in severe pain that only increased as the therapist attempted to move the arm. I contact my doctor's office multiple times and received no respose from the doctor. When i went to my next appointment the doctor was not even there i seen the PA. I scheduled another appointment to see the doctor and all he said was I needed to continue PT and have steroid injection therapy. It wasn't until I was ready to leave that I over heard the doctor and his associate discussing the fact that I had frozen shoulder. I decided I needed to seek a second opinion. The next doctor immediately diagnosed frozen shoulder and severe chronic pain syndrome w/ possible nerve damage. Since then I have had three manipulations, two full capsule releases, and open bicep tendonosis. On my last visit the doctor informed me that there is nothing else he can do to help me and to call him if I needed something. Currently I still have chronic pain in my shoulder, neck and arm all the way to my elbow, very limited range of motion and no external rotation and severe muscle wasting. And if all this wasn't enough I woke up one day about a year ago with severe lumbar and leg pain. After two MRI's It is apparent that I did more than hurt my shoulder in that fall. I have multiple herniated and ruptured disc in my cervical and lumbar spine. I have nerve impingement, spinal stenosis and degenerative disc disease. I have been seeing a spinal specialist and have undergone multiple back injections that never had a good result. In december of 2011 he recommended that I have a spine neurostimulator trial to see if that could be any benefit to me. I agreed and even though the process is not a fun or pleasent one it seemed to help. We decided to go ahead with the stimulator implant and scheduled the surgery for February of 2012. During the surgery they did a double lamanectomy, inserted the device, ran the wiring and inserted a battery pack. During the procedure the rep from the stimulator company turns it on to make sure it works and is suppose to turn it back off before leaving the surgical room. While I was being move from surgery to recover I came out of anesthisia screaming for them to turn it off. The rep had not shut the device off and had some how turned the power way up and she was no where to be found. The hospital staff had to hold me on the table so I didn't fall off and give me madication to knock me back out while they tracked the rep down. It felt as if i was being electrocuted from the inside out. Now I have this device in me that seems to make my pain worse and since my surgery I have had no relief. So it's been almost two years since I was injured and I am worse instead of better!!!pain meds perscride was 2- 750mg vicodin a day that wasen't doing it so he tried me on norco- 325mg 2 a day that wasen't doing it so we tried 2 -15mg ms contin and 1-15mg morphine sulfate a day and that wasen't doing it either,so im going to a pain mgt next week. i have to get the pain under control!!!!!!!! i also had some other stuff going on too,,months after my last shoulder surgery i woke up and i had a red line running from my shoulder to my wrist and my wrist was a little swollen 2 days latter i had to go to the Emergency room for a GI problem,ended up being Ischemic Colitis?where did that come from?i'm falling apart!!! thanks for any info

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 3/26/2012 10:05 PM (GMT -6)   
Hi Anthony, i wanted to welcome you aboard to the cp forum. Glad you found us but sorry you are having so much pain. Sounds like it's been a very rough two years for you.
I sure hope your pain management doctor can help you. Have you tried any muscle relaxants or meds for nerve pain such as gabapentin, lyrica or cymbalta?
I hope you will stay with us and let us know how you are getting along.
Others will come by and give their input. Several of the members here have back problems.

Take care and welcome,
Suzane

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/26/2012 11:59 PM (GMT -6)   
Hi Anthony,

As Suzane said - welcome to the board! I, too, am sorry to hear you are dealing w/ so much.... it can be overwhelming - that's for sure. I often have asked myself - "What next?"..... I actually many here can identify w/ that statement! I'm glad you reached out for support....

I hope you have a good appointment w/ your pain management doctor this upcoming week. There seems to be many meds that you haven't tried (pain meds; as well as maybe muscle relaxers and so forth).... hopefully, a new doctor will have a different perspective on your care - and come up w/ something that will help you.

Look forward to getting to know you better.... --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

zizz
New Member


Date Joined Mar 2012
Total Posts : 9
   Posted 3/27/2012 8:39 AM (GMT -6)   
Hi Anthony. I'm new as well and like you am going through a very bad flare up of my connective tissue disorder. It's going for my back this time. I can only lie down flat. I can walk a tiny bit but then have to lie down flat on the floor on the way to the bathroom. The ER couldn't do anything for me yesterday. MRI s are not part of ER procedure and they said the x-rays didn't show much detail. These episodes affecting different areas and organs seem to come and go with me. The immune suppressants help the pain the most for me. A friend is taking me to see my primary doc tomorrow.

I have been hospilitised 3 times since late Nov. for intestinal obstructions and possible iscimia. I believe that in my case it's all related to auto-immunity disease. Pain killers only do so much.

I hope that you get the help you need soon!
You are in my prayers.
zizz

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 3/29/2012 3:02 PM (GMT -6)   
My dear Anthony

Welcome to our forum. I really feel for you and I pray that you get relief soon for your pain.

I am under going knee implant surgery on my traumatized leg on Friday. i sure hope my pain will be taken care of when Im in the hospital. That really worries me.

Hang in there and keep us updated on your health.
Soft Hugs
Betsey
Age to a woman is like krypronite to Superman.

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 3/29/2012 4:43 PM (GMT -6)   
Hi Anthony,
Boy, your first post sounds very eerily similar to what happened to me , after a shoulder surgery repair. Mine came from a motorcycle accident, where I took the brunt of the impact on my low back, dislocated my right shoulder ( which was put back into place during the ambulance ride-NOT the way to have your shoulder relocated into it's socket!).  Anyway, almost two years later, I went in to surgery for a anterior shoulder reconstruction and was placed in an immobilizing splint for three months, and sent for physical therapy , where I also developed a frozen shoulder and the added complication of Reflex Sympathetic Dystrophy or as it's called now Complex Regional Pain Syndrome.
It sounds like you may be experiencing similar problems.
The best thing that I can suggest is to get yourself into see a good pain management doctor who is familiar with treating RSD/CRPS in the biggest hospital in your area ( preferably in a large city or teaching hospital). 
I also lost the use of my entire arm, shoulder, hand and fingers over the 7 years that I dealt with RSD and the frozen shoulder, atrophy of all of my arm, hand, fingers and shoulder, but I have managed to regain much of what I lost, albeit during the time, it was excructiatingly painful but worth it in the end.
Hang in there, getting the pain under better control will allow you to participate fully in physical therapy so that you can stop the progression of the atrophy and regain the use of that arm. You don't want to loose the use of it. Don't give up.
Sandi
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