I'm back surgery is done

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grandmaroses
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   Posted 3/29/2012 1:47 PM (GMT -6)   
Thanks for all the well wishes, my surgery was monday 4 hours and I came home yesterday. I have been up and walking and resting alot. I am trying to get my pain under control because the hospital screwed up all my medications so badly that they were giving me medications that I do not take and not giving me the ones I do take you would think after me going over my medications at the pre-op clinic and then again with the admitting clerk and the head nurse on admission and the the unit nurse that they would have been spot on grrrrrrrr. Anyway my daughter helped me shower this morning, and now I am ready for a nap. Pain is overtaking me at this moment but I will be back.

straydog
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Date Joined Feb 2003
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   Posted 3/29/2012 1:57 PM (GMT -6)   
Hi Rose, so good to hear from you, but oh, I do hope you can get the pain under some better control. You know, it just never fails to blow my mind at the care we get in hospitals these days. I am afraid I would have had someone or myself if possible on the phone with the surgeons office demanding they get the mess straightened out. Good news is, now you are home and you know what you need to take.

Take good care of yourself and yes walking is the best thing you can do to get your strength back. Hugs, Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Screaming Eagle
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Date Joined Sep 2009
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   Posted 3/29/2012 2:03 PM (GMT -6)   
 
      ....Hey! smilewinkgrin   Good to see you back so soon!
 
          Yes!...I too had trouble with pain med's at the hospital...but we got it figured out soon. At least your home....and I bet that shower felt good...and to be back in your own bed! Now...just don't over do it....as that is a big surgery..and you will need lots of healing time.
 
      Walking is important...but again, don't over do it too much. I'm thinking you planned all that you would need for the home, and I bet you're glad you did.
 
     There is no need to get back here too quickly...but if you feel up to it, we will enjoy hearing from you and your progress.
 
       Take care, and were glad it's over with.
 
   SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

NiNi53
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   Posted 3/29/2012 6:30 PM (GMT -6)   
I wish you a speedy recovery and hope and pray all goes good.
 
Take care,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Blessedx8
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   Posted 3/29/2012 11:41 PM (GMT -6)   
Grandmaroses,

Many of us have been thinking of you - so it was good to hear an update. I hope you continue to heal and feel better each day....

Keep resting and taking care of yourself... I'm glad your daughter is w/ you to help you....

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

CRPSpatient
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   Posted 3/30/2012 4:48 AM (GMT -6)   
Welcome back Rose, and wishing you a speedy recovery.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 3/30/2012 7:37 AM (GMT -6)   
OMG This pain is so bad I'm a tough cookie but it never lets up. I spent all day yesterday looking for the sweet spot just to get a 5 minute break. I just can not find a position, with or without pillows that I can stay in for more than a few minutes. So that made a long day yesterday, hubby got home from work and remarked how much better I was and I just wanted to smack him for not seeing how tired I was.

Big plans today, getting some pain meds into my system as I was awake last night to take them BUT I could not roll over to get them. I am expecting visitors today first my oldest daughter and 3 grandchildren and later my father in law and his wife. We have not met her but she is aware of my surgery and I asked them to visit when I was up and about. Some people!!!!

Anyway I hope everyone put there has a low pain day, and thank you for listening to me whine again.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 3/30/2012 7:44 AM (GMT -6)   
Morning Rose!

I know the feeling well, and never want to endure that again. It's takes time, but you should be feeling better in a few days.

I had the same trouble at night and needed assistance from my wife just to get to the bathroom….and the med's….I kept at my bedside with a bottle of water. When your in that much pain…the med's are a welcome relief to say the least.

Are you using a walker at this point? It sure helped me they first few days.

Take care,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Chartreux
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Date Joined Aug 2006
Total Posts : 9664
   Posted 3/30/2012 10:35 AM (GMT -6)   
Glad to hear your Home...maybe see if a visiting nurse can stay with you at night
so you can get you medicines when you need them...or maybe put them on the bed beside
you so you can grab them better...Sure hope your doing better soon and get a low pain day soon, wishing
a speedy recovery for you...Try to tell your visitors that your tired, maybe that will
shorten their visit...Hope you can concentrate on healing...many Prayers and well wishes to you....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 3/30/2012 11:13 AM (GMT -6)   
Hi Rose,

Glad you are home! It's going to be a long process, but try to be patient and know that it can be a rough go when recovering from surgery. So just take baby steps (literally!) and try to use your medication on schedule to stay ahead of the pain. That was something my last Neurosurgeon taught me...don't wait until the pain is at a 7 or 8....Try to keep it at a steady 5...

I hope that you can enjoy the visit with your family. Put them to use!! Don't be shy about asking for help....getting your medicine and water...helping with laundry or fixing/buying some meals...etc.

People love to help but never know what to do...so just say, "While you're here, it would be wonderful if you could help me with x, y, or z".....

I had people coming all throughout the day to visit and it was great because it helped keep my mind off my pain and brought some joy and laughter to my day!!

Just stay seated or lying down...whatever is most comfortable for you...

I also had people bringing lots of movies for me to watch..I kept a running list...almost like at a bridal shower!! LOL...So I knew all the things to return in the coming month.

Anyway...try to look at it as a blessing but also don't be afraid that if/when you are tuckered...to let them know that you need to rest and that you enjoyed their visit but need a nap.

Take it one hour at a time...And know that there will be some days that your pain will spike really high but than go back down....It really is a roller coaster when recovering from major surgery.

Sending you some gentle hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 3/30/2012 1:41 PM (GMT -6)   
I was alone for about half an hour, then my oldest daughter and 3 grandchildren came for a visit. Perfect timing I was sitting on toilet trying to figure out how I was going to pull up my pj bottoms. Lol

I really would like to tell you more about our visit but I will shrink it down. My 6year old granddaughter was having a cup of tea and suddenly she dropped her cup her eyes rolled into her head and she stopped breathing. OMG

I was there and I picked her up lifted her lifeless body into my arms and checked to see if she was choking on something but no I handed her to her mother who put her onto the floor and I called 911.

She is currently in children's hospital she was revived by her mom doing CPR , no more news yet but my goodness I got a workout today.

Anyone know any symptoms I might experience if I have thoroughly messed up my fusion.

Post Edited (grandmaroses) : 3/30/2012 7:18:15 PM (GMT-6)


momtofourangels
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Date Joined Apr 2010
Total Posts : 2265
   Posted 3/30/2012 8:32 PM (GMT -6)   
Hi Rose It's good to see that you're home, and that everything went ok except for the meds in the hospital. I'm so sorry that your little granddaughter got sick. Please let us know how she's doing.

I hope you do well in the healing process.

Take care.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 3/31/2012 12:04 AM (GMT -6)   
Hello Rose!…..what a shocker for you today! I'm terribly sorry you had to go through that just after coming home from surgery….and we hope all comes out ok for your granddaughter! Goodness Sakes! shakehead

…as far as messing up your fusion…it might be wise to call your surgeon and tell him what happened…and he may want to see you…but please do check and see. I'm hoping you were wearing your body brace when all of this happened….it may have protected you from any damage. Also….for me and my experience…I would not have too many visits from friends for the first few days until you really get settled in. Those first few days can be quite rough…and it will take a while to find out what your limits are..and the adjustments you may have to make. You have a very long recovery road to go…so take it easy. Family and friends will have plenty of time to visit over the next several weeks. It is important to have visitors during this healing time….it really helped me!…..but the first few days may be a bit much to have visitors….just from my experience.

Also I had the same problem with bathroom habits…and my gracious wife pulled up my shorts many times..until I had the strength to use the grabber tool I had,….but even then it's not easy. It may seem that you are totally helpless for a few days. I'm hoping you got the toilet seat extender..as this will be a blessing in disguise. If you happen to have the one with arms on it….grab the arms of it and bear up taking your weight off your body a bit…this will help with a bowel movement when needed. Sorry if this seems to be so graphic..but trust me I have been there and understand what you may be going through. rolleyes

I think you can lift somewhere around a gallon of milk in weight….however you should have been given instructions before leaving the hospital.

Again,as I recommended before,...…you might want to consider having your med's close by your bed, with a bottle of water to help wash it down. Also….I notice that laying in bed for an excessive amount of time tended to remove the natural oils from the skin of my legs and I had a lot of flaking all over the bed. So after a good shower, you might want to consider using a lotion on them..as it helps. Of course maybe I was just an odd case! tongue

Take care, and if there is anything else you have questions about, ..feel free to ask.

We also hope your granddaughter is ok too….prayers out for your whole family on this and your recovery.

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 3/30/2012 11:13:38 PM (GMT-6)


straydog
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Date Joined Feb 2003
Total Posts : 16804
   Posted 3/31/2012 6:29 AM (GMT -6)   
Hi Rose, please keep us posted about your granddaughter. I am sure you are beside yourself with worry. We will all be keeping her in our prayers.

You are right, company right after surgery, I would keep it at a minimum for the first week or so. Are you having to get up & down to let these folks in your home? It would be nice if they brought food that could be re-heated for later. Like you said, some people. I have had a lot of surgery & never wanted visitors when I first got home. I hope you have some prunes on hand in case the pain meds try to stop up the plumbing. Those saved SE a lot of grief if I remember right.

Do you have a cell phone or any phone that you can stick in a pocket & carry with you at all times? If so keep it on you, like getting stuck in the bathroom, you can call someone to come help you up. I had surgery on both knees few yrs back and went out on the porch and sat down in a chair. I had been talking to my sister on the phone. When I finished the call I realized I was not able to get up out of the chair, I could not push myself upright with my knees. Thank goodness the husband was inside the house watching tv, I called him on his cell phone to come out there & get me up. I realized then how bad it could be getting stuck in the bathroom or anywhere for that matter. Are you using a walker in the house, if so throw the phone in a bag & tie it to your walker.

I don't think the folks got it you had your meds at bedside, but you were on your side and could not turn over to the table side to get your meds. Not sure how to fix that problem.

Your first couple of weeks will be trying but you are a tough one and you will make it I have no doubt. Remember to walk in the house to get your strength back. I would not walk outside alone, don't want you getting too far out then not be able to get back. That happened to my brother after his heart surgery and the wife had to go get him with the car. Like you, at first walking was the only thing he was allowed to do.

I hope your pain is getting under better control. Keep us posted...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 3/31/2012 6:55 AM (GMT -6)   
..Stray makes a very good point about keeping a phone handy and close to you! Also I agree with her to keep your walking inside for the first week…and if you do go outside to walk,….be very careful how far you go, as you may feel pretty good starting out, and then all of the sudden it will hit you, and realize that you cannot make it back home. It is a horrible feeling and may send you into a panic mode.

Bottom line is to be very careful, and be aware of your surroundings and plan ahead for difficulties if they happen to arise. And a couple more things!…you may see your feet or at least one of them swell, and this can be normal with a Lumbar fusion…..keep an eye on that as well, and elevate them if this happens.

…and if you have one of those back braces…keep it on for your walks…even if you are getting tired of it, as they can be bothersome…..it provides much more support than you may realize….and one little miss-step without it…and you will understand quickly why it's there for you to use.

Take care,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 3/31/2012 9:47 AM (GMT -6)   
Thanks again for all the wonderful well wishes and tips.

My granddaughter was rushed to childrens hospital where they did several tests and then released her saying it was probably a Febrile seizure. She rested comfortably last night so this a all good I hope. Her blood glucose tested at over 11 when admitted so this will have to be watched.

I do not think I damaged anything in my twisting and lifting at least I am a little more sore but no new oozing or swelling. I am not wearing a brace the surgeon I had does not use them he wants me to work at strengthening my back with out one.

The visitors can be a bit much and I seem to be such an emotional basket case. When I feel over whelmed I disappear into my room for awhile.

I am using a walker and I feel quite stable, I do not sit, stand, lie in one position for more than 20 minutes because if I do the flesh ripping pain begins all over. I have mastered getting up, using my toilet (with riser), walking is painful but I do 2-3 laps around my livingroom and kitchen island several times a day. I have reduced my pain medications by almost half from when I was in hospital.

My hubbys dad has decided after 20 years to introduce himself and his wife into our family so these visits are stressful but needed as he lives hundreds of miles away.

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 4/1/2012 9:08 AM (GMT -6)   
Rose!….I'm just checking in to see how your doing….and if there is any new news on your granddaughter.

If you get a chance and you feel up to it…were interested in how your feeling….after all you are family here. wink

SE
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 4/1/2012 10:07 AM (GMT -6)   
This is so wonderful, I woke up this morning my back was aching! I am so excited I overdone things yesterday so terribly, until my legs were feeling like jelly. I walked so much, I even tidied a few things because I could. I had a shower all by myself and even wore pj's that were too uncomfortable before the surgery. I am taking about a quarter the amount of narcotics to handle my pain, because I still have the fibromyalgia, and undiagnosed right upper quadrant pain I can not do without pain meds.

I am so pleased that I took this chance and had this surgery done. My family said yesterday was the longest time that they have seen me smile for so long. I have an appointment on the 10th to have staples removed and as of today there is no oozing or redness. They did keep a drain in at the hospital until it was draining less than 50cc and that is why there is very little bruising.

Now about my granddaughter, she is doing fine she does not like boogers. She has a cold! Her mom was so terrified she is researching every natural way to treat fevers. My 6 yr old granddaughter has been sick once now twice since birth, she has never taken an anti biotic. They are a very extreme organic, food loving family, they believe you are what you eat, therefore they eat healthy.

I hope this post still makes sense I have been working on it for a couple of hours. Take good care of yourselves everybody.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 4/1/2012 1:08 PM (GMT -6)   
Hi Rose, so glad to hear the little one is ok, that is a big relief.

Rose, I am very glad to read that you are feeling better, but, please, please take care of yourself and do not over do things, it will only push you back in your recovery and you do not want that. I also know what it is like to feel better and want to do more, but right now is not the time for that. Already able to reduce your meds wow, good for you.

Take care & keep us posted....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 4/1/2012 10:50 PM (GMT -6)   
I know that I have been over doing the walking, moving around but I feel so much better. I saw my neighbor today and she said this is the first time in over a year that I have color in my face and body. She said I used to be so greyish white except my cheeks that would flush when I would do anything at all.

I am going to try to get into some routine of walking and rest starting tomorrow as my company has all left.

I would have thought the Dr or hospital would have given me an idea of do's and do nots but the only thing written on my release is avoid over exertion.

My pain level tonight is a 2 in my back and a 4 in ruq.

The ruq pain is over powering the back pain so I really need to figure out what is causing that pain. I am going to research insulin as the pain started shortly after starting injections.

***Thank you again for all of the support***
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Chartreux
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Date Joined Aug 2006
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   Posted 4/2/2012 11:36 AM (GMT -6)   
Many blessings to you and I hope you keep improving and I hope your granddaughters are doing better....
Prayers and well wishes to you...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 4/4/2012 8:16 PM (GMT -6)   
Hi it's just me again, I went to doctor today and he removed half of my staples. We talked about what happened and he said he does not think I have reinsured myself. He is now on board about finding the ruq pain cause, he said he has never heard of insulin causing this amount of pain. Other than that I am happy to say I am walking more than I was before the fusion, my surgeon wants to see me on the 10th.
Thanks everyone for being here.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol
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