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autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 3/30/2012 7:00 PM (GMT -6)   
hi everyone.i have just joined this forum so i don't really know many users yet.this is my chronic pain story.i have suffered chronic migraines and headaches for the last 25 years.i have tried everything to ease these but everything has failed.i saw 4 neurologists,1 pain specialist,physio for a year straight,osteopath,natrapath,accupunture,remedial massage,normal massage,meditation classes,mri's and cat scans with nothing showing up wrong and lots of other things i have tried over the years.with my chronic migraines and headaches i have finally excepted that modern medicine and alternative medicine has failed me.

i am a codeine addict and have tried getting off this 4 times in my life but my body goes into super meltdown mode and i end up in hospital everytime having a nervous breakdown and in extreme pain.i also suffer chronic pain in my bladder and 2 days days ago i was diagnosed with intercystitis cystitis which is a debilatating problem which is making my life a whole lot worse.i have endured over 2 years of chronic pain in my bladder with frequency issues and incontinence issues.lets just say this on top of my chronic pain in my head is really,really getting to me.i also suffer severe sinus pain in my face which blows my migraines off the planet.i also suffer chronic upper stomach pains for years on end and i suffer terrible irratable bowel syndrome as well which is really awful and very painful to live with.

i have suffered a lot of depression over the years with my health issues and it has not been easy.through all of this i have been raising 3 kids but i have been unable to work for 12 years now and it has put a terrible financal burden on our family.my medical costs each week at the chemist are very high.i don't have any money to go to a private specialist anymore and have waited 3 years to talk to a uro-gynocologists about my bladder issues.needles to say my poor health and chronic pain issues have paid a bad price with my family.my kids hate me due to the fact i am always in pain and sick and i can't drive them everywhere they want to go.they can't play loud music at home and having friends over is always a big issues for me due to the extra noise.i can't even go to the beach because of my bladder issues or go for long bush walks or anything.i always have to been close to a toilet.i feel like life has been so unfair to me and it never seems to stop.just to have one day off from chronic pain would be so wonderful.

i have had to give up a lot over the years like reading books and going out to places like restaurants and travelling.i just can't do any of it.it hurts to be on the computor and watch tv and even go to the cinema which i try to do but i pay a heavy price for it.i have had 11 operations in my life so far so i know what pain is.it is always my constant companion and i have no support from my family which really hurts me.they always get angry with me if i can't cook dinner or something and no one ever asks how i am or can they do something to help.i am very lonely in my life of chronic pain.my parents will not accept that i am always sick and in pain.this has hurt me a lot too.my twin sister suffers chronic migraines and headaches too so at least i have one person to get comfort from in my life.i know what i have suffered is nothing compared to others but i just can't understand why people are put on this earth to suffer so much. mad

Edited for easier reading. Please take note and split your post into paragraphs of 5 to 6 lines if possible. It would be greatly appreciated for those of us that have poor eyesight and or tracking problems Thanks! SE wink

Post Edited By Moderator (Screaming Eagle) : 3/31/2012 2:15:00 AM (GMT-6)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 3/30/2012 11:12 PM (GMT -6)   
Hi Autunm and Welcome to the Chronic Pain forum! Reading you post I can empathize with you on several of the things you wrote about. I think you will find that the people here, can and do understand your situation and what it is like to suffer from chronic pain! So you have definitely come to the right place! Sometimes it is nice to be among people that knows what living with chronic pain is like! Autunm you are not alone any more when you are here on this forum, we do understand what it is like to live with chronic pain and how difficult it is sometimes to get friends and family (that do not suffer from chronic pain) to understand how we feel! You do not have to get us to understand! You know even though we can not relieve your pain, we can lend you our ears and always be here for you, and give you our support! Sometimes it is just nice to be able to vent, and know that others are her that will listen and understand and not be critical or condenscending of you! So again Welcome to our forum and hope that you stick around and become an active member of our chronic pain family!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/31/2012 2:57 AM (GMT -6)   
Hello autunm!

A BIG "Welcome" to you from the members of the CP Forum! I see that you are making good use of the HealingWell forums, and hope you can find some suggestions to many of your health problems.
You also mentioned that you thought you are an addict to "Codeine". I wondering if you are addicted or Dependent?... as we would refer to it as Chronic Pain patients? Are you seeing a PCD (Primary Care Dr)….or a PM (Pain Management Dr)? In other-words, who is scripting your pain medications for you?

It's rare that a true Chronic Pain Patient will become addicted to pain med's. We take them for pain,... and only for pain,…and an addict will take them for recreational purposes. However; if we need to come off the pain med's for some reason, we will,... in many cases suffer withdrawals such as addict's do. There are med's that can help minimize this effect, such as "Suboxone"….which by the way in many cases may also be used for pain management and gives good relief to many that are on it.

Headaches are horrible, and can be caused by many things. I suffer from them because of my TMJ, that seems to flair every once in a while. shakehead We have a member here who suffers greatly from headaches…and receives no relief from any medications. It's just horrible to see her suffer like this. I will contact her and see if she will read your post here!

We all understand Chronic Pain, and are fully aware of friends,... and family members,... who do not understand what you are going through. This forum is the best place to share your rants of frustration,…questions,….and success of pain management that you may have. You may as well consider us part of your family now! wink We really do enjoy active members, so visit us as often as you wish to seek support,... or you may find that you are able to support and visit with our members and offer some experience on related topics that are posted.

Please feel free to use the search button up in the upper righthand corner of the page. It's a pretty handy tool when your looking for quick answers to your health issues. Some of the members are long gone in these search results,…but they left some wonderful insight and answers to many health issues related to chronic pain. Give it a try! wink

I usually always invite new members to take a peek at the forum rules. They are really common sense, and may help you avoid edits from those pesky Moderators! smilewinkgrin I also took the liberty of editing your post here at the top of the page into paragraphs. It really does help those of us with tracking problems and or poor eyesight.

Again!..We Welcome you!….and trust you will enjoy your time with us!

Take care,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 3/31/2012 5:57:30 AM (GMT-6)


autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 3/31/2012 10:04 PM (GMT -6)   
hi screaming eagle and white beard.thanks for your kind and caring words of support and welcome.i am wondering what country this forum is in?i live in australia and belong to a chronic pain forum but my sister came across this one and i found it really good.i don't have a lot of time to read other people's stories but i will try on and off to have a read and support them.thanks again.take care. turn

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 4/2/2012 9:34 PM (GMT -6)   
Hi autunm, we have had quite a few of the people in our chronic pain family from Australia, and allot from north of our borders in Canada, I think the majority are from the United States, but even then we are from all over this country. It makes no difference where we are from really, we are just a bunch of different people that all share that common bond of having and living with Chronic Pain. We support each other, especially through the hard times, and are there for each other.
 
Hope you keep coming back!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 4/3/2012 12:55 AM (GMT -6)   
hi white beard.thanks for the great words of support and comfort.you sound like you have been through a very difficult time in your life with illness and chronic pain.it is a very positive thing you are doing by being on this forum and supporting others.i hope your day has been not too bad for you pain wise.take care.

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 4/3/2012 3:02 AM (GMT -6)   
Hi Autumn and welcome from another Aussie :)

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

autunm
Regular Member


Date Joined Mar 2012
Total Posts : 71
   Posted 4/3/2012 6:24 PM (GMT -6)   
hi crpspatient.thanks for the welcome.hope your day has been ok today.hope your pain levels are a bit down.i noticed you take somac.what do you take it for?i take it for upper stomach pains but it is not helping. smurf
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