Survivors - Monday!

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Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 4/1/2012 11:43 PM (GMT -6)   
Hey Chronic Pain Family...

Every Monday, one of the moderators will be posting "Survivors - Monday!"... It's a place to let us know how you survived the weekend.... and what you've got going for the week ahead.

Our goal is to continue supporting the great friendships and sense of community that we have here on our board.

Have a great week - from all of us! :-)


Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 4/2/2012 12:14 AM (GMT -6)   
This weekend... like almost every weekend... has been non-stop. Our house is a revolving door of kids - playing, eating, sleeping over, etc. I know this is just a part of this season of life - and most of the time I love it - but it's really exhausting, lol.

My pain and anxiety have been high this weekend. I recently had to get off the fentanyl patch, which was working.... so I'm left to explore new ways to treat my pain - I've pretty much exhausted almost every avenue. I have a PM appt this Thursday. Some days I think I'm ready to explore the pain pump again (already have had the trial).... and other times, I still hold out hope that one of the oral meds will help me. I don't know why I think that... as I've been on absolutely everything....

My biggest thing right now is dealing w/ my heart issues and high blood pressure. I've got a cardiologist appointment tomorrow.... I absolutely need an adjustment of my heart meds...

So - other than those two doctor appointments - it's just normal stuff around here. School, house, getting ready for Easter... and having all the kids off next week, lol.

Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Forum Moderator

Date Joined Mar 2011
Total Posts : 1276
   Posted 4/2/2012 3:50 AM (GMT -6)   
Best of luck with your appointments Tina.

I'm as sick as a dog again. I discovered last week that part of the skin troubles with my feet is an atypical chronic tinea infection and on Thursday I started on an oral anti-fungal med for it. I've been having a bit of a gastroparesis flare anyway and Thursday night the extreme nausea kicked in and hasn't left. I'm hitting it with everything in my arsenal - stemetil, zofran, lorazepam - and I still feel incredibly sick. I've spent the whole weekend vomiting - just looking at food has been enough to set me off, never mind trying to eat. Couldn't see my doctor today because there was nobody to give me a lift and I've got anxiety issues with strangers that mean it's near-impossible for me to take a taxi on my own. Hoping to see him tomorrow.

Despite the sickness, I've achieved a bit. I've finished one small sewn 'creature' and almost finished another bear.

Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Veteran Member

Date Joined Aug 2006
Total Posts : 9661
   Posted 4/2/2012 9:54 AM (GMT -6)   
Wow, you two (Tina & Laura) have been thru a lot, sure hope this next week is better for you both...

I'm doing better...taking this one day at a time, but might have to get a new asthma/allergy doctor,
as I'm waking up coughing and hacking away each morning...hate waking like that...trying
to fight this exhaustion as well....but have some doctor's (3) appointment this week, which I
hope will be finger's crossed for those...
Many well wishes to everyone...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Oct 2010
Total Posts : 921
   Posted 4/2/2012 11:31 AM (GMT -6)   
Saturday was a pretty good day. I spent the evening watching Game of Thrones episodes and overall, it was a mild pain day.

Sunday, however, was a bear. I woke up in pain, and with a headache (probably from neck tension). My wife as well, who has a cracked lumbar vertebrae, was also suffering. Through the afternoon, I was writing, though took a break for a bit to watch more Game of Thrones (getting through the whole first season).

I took some oxycodone before dinner, as I was in charge of the prep (grilled lamb chops & roasted purple potatoes). After dinner, I was in so much pain, too more oxycodone.

I then spent a few hours writing and a lower trigger point, that hadn't been bothering me since my first round of injections in October came back like a bear -- as if by quelling the upper points last week, the lower ones reemerged. So, even though I took 15mg of oxycodone (a lot for me), it was a horrible evening of pain.

I calibrate my usual pain level to be 3-4, this was a 7-8. I used a ball to put pressure on the point, which can stop the spasm, but it didn't. By then it was about 10pm and it was too late for any more pain meds. So I took a valium and eventually the pain was quelled.

Today, it is much better, but I think I need to work on exactly how I am sitting while at the computer. Although I work in a reclined state, I arch my upper back forward a bit, especially when consulting the books and articles around me. So, I'm going to add a lumbar support and will see if it helps.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg & 2-3x 10mg Hydrocodone daily. Oxycodone 10mg for BT. .25-.5mg xanax as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

New Member

Date Joined Mar 2012
Total Posts : 17
   Posted 4/2/2012 11:57 AM (GMT -6)   
I still get so nauseous before a migraine. And they leave me exhausted and in a fog for rest of the day. I am getting 1 migraine a week now. It is the unstable weather. Neck pain really bothers me. I can't sit up or recline more then 10 min. Neck pain gets so bad I cry.I am having more anxiety attacks from not being able to control the pain. I have to lay flat all the time. I always have a heating pad on my neck/upper back. My pain level is mostly 5-6. Dr wants to " wait " to increase or change pain meds. I asked him to change meds in Jan. I see him next Mon and things have to change. Sunny and 80 tomorrow. I am going to lay out in the sun for awhile.
I made it thru the wknd. I was able to get 2 pen pal letters written. And I walked around my pond for a few minutes to see how many frogs we have.
Complex regional pain syndrome, fms, cfs, migraines, hypothyroid, cervical/lumbar radiculopathy carpal tunnel both hands

Veteran Member

Date Joined Oct 2009
Total Posts : 4970
   Posted 4/2/2012 4:22 PM (GMT -6)   
Today was cardiologist. I got 12 pills to last a month of tachycardia events, which are occuring every day. Then downstairs to the pain doc for ablation of nerves to 3 slipping ribs. At least my back is numb.

Tomorrow is gyne followup for the large uterine fibroid. Then the oncologist on Wed following up raised cancer markers with a bunch more blood tests.

Thurs and Friday are babysitting so DIL can go to work. Ham is on the menu for Sunday at her house, so I may take along a little something since I don't tolerate the sulfites in pork. I only eat a cupful at a time and mostly vegetables, so it'a not a big deal.

Then next week is ENT who doesn't believe I have had chronic sinus infections for nearly 3 years, eye doc who won't be a problem, and a 2nd opinion on torn rotator cuff which wasn't fixed in shoulder surgery.

No rest for CPers.

Screaming Eagle
Forum Moderator

Date Joined Sep 2009
Total Posts : 5005
   Posted 4/2/2012 6:28 PM (GMT -6)   
…had a very rough weekend….and continue to do so. I started getting sick on Thursday and by Friday morning…I called into work and let my boss know I would not be in,...…thinking that a 3 day weekend might be enough to start feeling better. Boy!…was I wrong! Saturday morning I started mowing 6 acres, and then proceeded to spray the whole thing with a 25gal tank sprayer….as the dandelions were taking over. Sunday morning I realized that I was getting worse…much worse. smhair

I took off today, and got into my Dr as soon as possible….and he said I either had the flu or Strep Throat…..just lovley! shakehead Started a round of antibiotic's,…hoping I will feel a bit better by tomorrow morning. We will see! shakehead

I have not been this sick in a very long time…and certainly not while suffering CP. So many of us seem to be suffering more than usual…and all at the same time. shakehead I hope we all can catch a break soon!

Take care,

SE shakehead
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 4/2/2012 7:14 PM (GMT -6)   
Hi everyone Saturday was a pretty good day. Pain was not too bad. Yesterday, it rained all day and pain was horrible. I took both of my oxycodone for the day, which I usually don't have to do unless it is bad weather.

Tonight my back is hurting more than usual and it's been sunny all day and no rain tonight. It really confuses me at times, even though I've had chronic pain for 11 years. :(

I sure hope that you all (Michael. Tina and Laura) feel better really soon.

Take care everyone.

love and hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Regular Member

Date Joined Mar 2012
Total Posts : 71
   Posted 4/2/2012 7:56 PM (GMT -6)   
hi everyone.i am trying to read a few posts but i don't have a lot of time at them moment due to school holidays and looking after 3 teenage kids.i hope everyone's pain levels are a little bit down today.i have been suffering really bad upper stomach pain in the middle through to the back for about a week now and nothing is helping it.i have had tests in hospital and tests with my local doctors but no one can find anything wrong.this pain is debilitating.i feel sick all the time and i am wondering if my bad ibs has something to do with it.i have just got over the bad pain of having a cystscopy in my bladder because i suffer chronic bladder pain and other bladder related issues.they said my bladder is inflammed and i have ic(intercystitial cystitus)which is another debilitating condition.i also suffer chronic migraines and headaches just to top things off.having chronic pain in multiple areas does make you feel down.i suffer really bad sinus pain in my face which effects my migraines really most of you i am tired of having non stop pain.i have been in and out of depression for years but the phycologists don't understand what it is do you keep your chin up when the pain is relentless?i feel like as i get older,my chronic pain and health issues get worse if that is possible.i just wish my stomach would stop hurting.i am struggling through my days at the moment and i can feel another horrible headache starting,not that they ever does not help being very overweight either.that is from comfort eating due to pain and stress.sound familiar to anybody?i will try to read more posts when i get a little bit more time.take care everyone. smhair

Regular Member

Date Joined Feb 2012
Total Posts : 56
   Posted 4/2/2012 9:20 PM (GMT -6)   
 Well I sure hope everyone feels better through out the week
 I  went home last thursday early from work, A migrain
came home took some new med that my doctor gave me,
It sucked LOL so I had to call the pharmacy to see if I could take my old med
after taking the new, he said yes So took it, But by then it was way to far gone
I took another a hour later imtrex stll nothing, Now Iam standing up against a wall my head hurts worse when I lay down
 It got somewhat better fell asleep around 2 am , I was not allowed to call into work ,
 They were short handed So I took 800 ibuprofen  every six hours
I stayed in bed all weekend with a headache
I still have one but it has chilled
But it is Monday so maybe this week will be better,
(hugs) to all and hope for a better week
always Renee

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3686
   Posted 4/2/2012 10:19 PM (GMT -6)   
Hi  all, Well late Friday afternoon, I seen my neurosurgeon, ( I need to have surgery done on my lumbar area, L3 and L4.) but instead of scheduling the surgery, I told my surgeon that I wanted to have it done down in Kentucky, as I have my sister and all my neices and nephews living down there. I kind of felt bad because I really like this surgeon,(he did my posterior fusion of the articular joints at C3/4 back in November of 2010) he is the most caring and compassionate surgeon I have ever met, and he is really good too! Anyway to my surprise, he told me that he thought it was a Great idea, if it would help make my recovery easier on me. He told me the surgery was not about him but about me, and whatever was best for me, then that is what he wants! Anyway he recommended a surgeon that is down there in Lexington, he told me that is where he went to medical school at and graduated from there. He also told me what I needed to do in the way of getting an appointment down there. He did say that he would not go into any further detail about my surgery than what he already had, because the surgereon down there might want to do something completely different, as most surgeons have their own ideas on how to tackle a problem, and they might not be the same as someone elses!
Anyway I am now trying to get things arranged down there so I can get an appointment. My lower back has been giving me problems for quite some time now, and I have been trying to avoid having more surgery. But lately it has been getting a bit more than I can handle and I need to have something done to help relieve the pain alittle!  I know that I still need to have a total right hip replacement, and I have also been trying to put that off as long as I possibly can. Aways something it seems. I have managed to get through the weekend just as I always do. 
Hope you all have a good week preparing for Easter!!
White Beard 
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 4/3/2012 4:15 AM (GMT -6)   
I've noticed alot of members having issues with nausea. My husband has hepatitis c and is starting a new treatment with includes a weekly shot and two different pills. All of these can cause nausea which he did get. The doctors suggested ginger ale or ginger snaps to start. Ginger is supposed to be good for nausea. That wasn't enough so he just got a script for phenegran (sp?). Seems to be helping some. He did sleep through the night without nausea. Hope this helps someone.

DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, herniated disc at L-2/3 , fibromyalgia, polymyalgia rheumatica

No Worries!
Regular Member

Date Joined Sep 2011
Total Posts : 225
   Posted 4/3/2012 7:33 PM (GMT -6)   
The weekends always seem to be my worse days dealing with my CP. During the weekdays I am mostly all alone and take things at a slow pace. I have no reason to rush through the day and can lay down whenever the pain gets unbearable, which it does.

The weekends are slotted for spending quality time with the Mrs. We clean the house (mostly her) and go shopping. I can't take even 30 minutes of standing and walking around before the pain shoots straight to a level 10. By the time we are done shopping I am in tears and need to go lay down for a while after taking my BT meds. Most of the time I don't make it through the shopping, so I go wait for my wife in the pharmacy seating area. I have a wonderful group of Pharmacists and assistants who all know me too well. Hahaha. It's both good and bad when your Pharmacist knows your name!

Although I suffer more pain during the weekends, its worth it to me to spend time with my wife. She's the one who is suffering...her husband lost his job, is in CP and she has to work overtime to cover both of our bills. I love her and I probably wouldn't be here right now without her love and support. I hope all of my fellow CPers have a close, loving and supportive family. That's the best pain killer ever!

SE, I'm sorry you're sick and hope you recover soon! Take care everyone...enjoy the rest of the week!



Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 4/4/2012 12:12 AM (GMT -6)   

My pharmacist and the assistants are my friends, lol.... they know me too well too.... I guess that's life w/ health and pain issues.

Good to hear from you --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Forum Moderator

Date Joined Mar 2011
Total Posts : 1276
   Posted 4/4/2012 3:07 AM (GMT -6)   
Yes, ginger can help with nausea - I have ginger tea. If it comes from digestive issues, licorice can sometimes help too. I have both as tea.

Hope everyone is feeling better soon xx

Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 4/4/2012 4:54 AM (GMT -6)   
Hi All,

I'm a little late, but wanted to join. It was a very busy weekend at my house since we are still trying to put it back together. My husband was a real grouch on Sat and went hunting instead of helping all morning and then my family decided to come to MY house to plant some trees since my sister is moving to a climate that won't support them. It's complicated, but not somthing I felt like doing and I didn't even go out to deal with it. They brought a 15 year old nephew's girlfriend and her entire my house... I'm sure I made everyone mad, but I asked my family in advance NOT to come inside and NOT to introduce me this time. I didn't even have time to brush my hair.

They came anyway and I stayed inside working and moaning in pain during breaks. After my hubby finished "playing", he came home and we hung the new curtains and made beds in two bedrooms and put some doors back up on Sunday. We also used the hammered pewter (sp?) paint to freshen up the door knobs, the window pulls, the window locks, the drawer pulls on the built-ins and things like that. It made a great change with a very little bit of money (YEAH!!!) because the money is GONE and we're going to end up so far in debt.

I started all of my new pain meds after I decided I had to do something NOW to have relief and have been adjusting quite well. They seem to be helping keep the pain more level.  I'm glad I was able to get it!  I still have to take ALL of my other meds, but the pain levels go down to 3 or so on occasion and that is soooo much better. Even the RFA is not causing too much pain. I'm still off of the ambien and sleep/rest is much better (still using melotonin 6mg per night) and highly recommend the change for anyone who can.

So we did accomplish things and we do have real beds to sleep in now. We're covered with sheetrock dust and dirt...but I can see progress and that helps.  Dispite the really bad pain moments, I'm happier just knowing we're moving along.

Post Edited (RetiredMom) : 4/4/2012 5:07:55 AM (GMT-6)

Regular Member

Date Joined Feb 2012
Total Posts : 56
   Posted 4/5/2012 11:18 PM (GMT -6)   
I so remember those days, I did 4  different treatments, Last one I did was in 2006 infergen a shot everyday clearing  in 2007
on that one
I drank alot of pepperment herb tea,
I also took alot of phenegran.
I would rather sleep anyway
Hope he does well and clears!!!!
Have a great friday
always Renee
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