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Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/5/2012 2:59 PM (GMT -6)   
Hey all,

*** Warning - long post... sorry.

Saw my PM today..... and I just want to pull my hair out.

Very brief background - The office has about 10 PM docs and they train other doctors specializing in pain management. I've seen my own PM for about 4 years now and had a VERY trusting, good relationship w/ him. I've been on my CP journey for a LONG time; have been on every med known to man; have had the pain pump trial....but am holding off on that; etc.

Ok.... so I found out last month my PM is leaving (has a sick child). He transferred my care to one of his partners, a woman, who I've seen on occasion and she seemed nice enough.

Still, though, when you have an established relationship w/ a doctor - I was still really bummed out my doc leaving. Last night, I had extreme anxiety about see the new doc.... trying to communicate my needs to her.... etc. I finally had what I was going to say to her worked out... and off I went to my appointment.

I am waiting in the office, and in walks a VERY young guy. Great. First visit w/ the "new" doc - and she sends in a doc that is being trained. This guy "says" he reviewed my chart (it's all computerized).... but he didn't know a darn thing about me. So - try explaining a 4 year history in 3 minutes. Not easy.

I tried to say I've been on all the meds.... that I had found a med combo that made me "stable".... but that we had switched insurances in October and the new insurance wouldn't cover the main med that was working. I told him that I had had the "intrathecal pain pump trial", which was successful, but I got meningitis from it and was holding off on that for as long as possible.

He didn't know the term "intrathecal" pain pump. He said "you mean, the spinal cord stimulator?".... ummmm, no. The "pain pump"? (I was trying really hard to not be snarky, I swear). He's like - oh, ok. I'm sorry, am I wrong to think even a doctor in training should know what the heck an intrathecal pain pump is???????

So - his exact words were - "So, what do you want to do?". Fine - he wants my opinion.... I gave it. I said, I've been on all meds known to man, but I HAVE to keep trying to find something that works. My cardiologist is on my case to get my pain under control to lower my blood pressure. This is affecting my quality of life. I said all of these things. So, I said the one med I've not been on is Opana. Maybe trying the Opana IR... seeing if it works.... and then, if it does, switching the the Opana ER. So - out he goes to go "consult" w/ my PM.

Long story short.... I ended up having my "new" PM doc come in to see me. Per her (and, yes, I'm a skeptic on everything w/ doctors, sorry) - she says that there is a shortage w/ Opana (haven't had time to google it yet)... and that she's having to switch all her patients on Opana to something else. Fine. So.... we ended up trying Oxycontin, which I haven't been on in maybe 2 years.... but, hey, maybe it'll work again. Who knows.

Then, she says - "I know you've been seeing Dr. xxx... but all docs are different and next time, bring your meds in w/ you. That way, if you have any extra, I can dispose of them... because it's really easy if you have "extra" meds laying around to take one of them".

Now, if you know me, you know I'm EXTREMELY anti-pill counting... etc. I have no problem w/ doing an occasional UA. I ALWAYS take my meds appropriately - and, in almost 9 years as a CP patient, have NEVER "lost" a prescription.... run short.... any of that stuff. So, my old PM never had me do anything because we had a very trusting relationship.

I have no problems bringing in my meds (well, don't like it, but I will).... but for her to "dispose" of any of them - when I've paid for them..... etc? That is more than irritating to me. Keep in mind, I DO throw away any extra/spare meds.... I don't want to keep them, especially w/ all the kids we have in our house. It's just the point.

I'm a "against the grain" kind of person anyway.... so I'm sure some will disagree w/ me on this.... and I KNOW how bad things are w/ CP patients, the DEA and all that. STILL, I'm frustrated.

The last thing that was really darn frustrating to me.... I say - "There are occasional times that I end up in the ER w/ acute pain issues (I get horrendous migraines). My old PM doc knew of this and supported me on going there. In fact, I carried a note in my wallet for years that said - "Tina has my permission to visit the ER for acute pain issues; if there is a problem - please call me". I just said - if I HAVE to go to the ER (which I avoid at all costs, but it IS a reality w/ me).... what's her position on that and such? (I thought I was doing good by just asking her this).

Her answer? "Well, the first thing is trying to not go to the ER"..... OBVIOUSLY - and I had already said that. But, as I told her, I have a family to raise and I get 2 to 3 migraines per week... and, if it doesn't go away, and it's 11pm at night... I'm sorry. I'm not going to suffer w/ a migraine, vomiting, etc. If I had meds at home that worked, that would be a different story.

The point is this.... I do like her. She's a nice person. But it's extremely hard having a new doctor... that doesn't know my history (which, admittedly, is extremely complicated). I felt she did nothing to review my complete history...so that she would see exactly what I've been through. She also is much more "cautious" than my old doctor.... My old doc wasn't a "free for all" - but he knows what I've been through, that I'm educated and let me be part of the process.

I don't think there's any "answers" but I had to vent, lol. I know there are others here that have it a lot worse w/ their doctors..... so this is all in perspective. But I'm still frustrated.....

Thanks, as usual, for listening....! I see her again in 2 weeks to see if these new meds do anything. ....Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/5/2012 3:04 PM (GMT -6)   
One last thing, I promise, she did give me samples of a med to try for my migraines. It delivers an "injection" via compressed air. It's in the triptan family (which do not work for my HA's, but I'm willing to try anything).... I think it's called Sumatriptan or something like that.
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 4/5/2012 9:12 PM (GMT -6)   
Sumatriptan is generic for Imitrex. It also comes as a nasal spray. It's a triptan sulfa drug. It has some drug interactions, so you might want to read before taking it. It's supposed to work for some people.

I hate it when I have to see a new doc for a complex problem. This year I've had 4 docs retire and am getting a second opinion on one's treatment, considering a second on another problem. It takes more than 3 minutes to gen up on any chronic disorder.

Good luck.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 4/5/2012 10:06 PM (GMT -6)   
Hi Tina I'm sorry that you had to put up with that doctor acting the way she did. *hugs* With all that you're going thru, you didn't need to have to have her not read thru your history, so she knows what's going on with you.

I sure hope the new meds work for you. That sure would be some stress off of you. I sure wish I lived closer so I could help you.

How are you feeling? Better I hope.

Take care my friend.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Boxerlover
Regular Member


Date Joined Dec 2006
Total Posts : 275
   Posted 4/5/2012 10:44 PM (GMT -6)   

Tina, it sounds like you and I are a lot alike. There is nothing worse than changing docs when we have complicated cases, especially a PM. I hope over time she will relax with you a little and allow you to be involved like you were with your old doc. I am going through the same thing with my primary. I have had issues with her for years but bein complicated and seeing many specialists, she only took care of a few minor things. But with all the DEA and FDA hoopla going on down here, every doc wants to wash their hands of anything remotely complicated. So I have some new issues that need addresses with a primary and I just do not trust her. I had an appointment today but got so worked up yesterday I cancelled it because I didn't feel strong enough to go in and stand up for myself.

I hope the oxycontin works for you as well as the triptan. I get chronic kidney stones so I also am in the ER a lot and my pain doc is great and works with my urologist so I am taken care of but years ago I had a different PM and when I said I need support regarding when I go to the ER and I am usually admitted. He was like well after hours I am hard to get a hold of and he kind of hemmed and hawed and I was not comfortable with that at all.

Good luck and I hope everything works out!


CoralToe
Regular Member


Date Joined Oct 2011
Total Posts : 24
   Posted 4/6/2012 1:06 AM (GMT -6)   
Sorry you are going through this. My doc occasionally has new docs or PAs to train, and it always frusterates me to no end, as it usually happens when I have a list of things I want my doc's opinion on. I feel this is just one more area in which we have little control as chronic pain patients, and it is aggravating.

I also wanted to chime in about the Opana - and your new doc is right....there is a HUGE shortage right now, as manufacturing stopped due to the wrong drugs getting into the wrong bottles at the factory. Some mom and pop pharmacies seem to still have a stash, but almost all of the major drug store chains have been out for a month or two. Hopefully it will get resolved, and maybe you can give it a shot. I have been on it for a year and a half, and it has worked very well for me.

Hang in there!

-Heather

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 4/6/2012 1:11 AM (GMT -6)   
Tina, so very sorry that you went through this. I hope that it settles down and you can establish a relationship of sorts with your new doc. ((((hugs))))

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/6/2012 5:09 AM (GMT -6)   
Good Morning my Friend! wink

…Boxerlover pretty much said what I wanted to say! wink I think it takes a while for any new Dr to get to know your case history, and of course they are on a busy schedule and pressed for time. When ever I switch barbers…it takes them around 3 appointments for them to get to know what I like and the best way to trim my hair…after that we usually develop a good relationship and can then tell her what I like and don't like…and she will listen.

Give it some time…and I know that is hard to do, especially since we live in NOW PAIN…and need relief NOW! confused Tina…I think I know you pretty well, and you will keep Advocating yourself until the new PM listens to you. You are not one to sit back and do nothing…..you will come up with a master plan, even if you have to write it out like you recently did with your old PM. I understand your fears…I really do…as my Dr was getting finicky and dropping hints the last few months….and all because of the DEA. I confronted him on my last appointment, and told him I was tired of living in fear….and I was not going to do that anymore. He understood, and now we are trying some new things.

Your care is a little different, as you have tried just about everything out there, and you know what works and what does not work…..so if they are offering anything less….your fear rises as well as your BP. Understandable Too! I really think you are a possible candidate for the pump…and of course I understand you have been approved…but I think it is getting closer to reality for you.

…as stated many times here….I just do not know how you do it all….8 children…and I know for a fact that you are the primary caretaker by a long shot. You have my greatest respect and admiration, for all that you do, while suffering with multiple health issues. Let's pray that this new PM will see and understand your needs so that you can have some comfort.

Bless you! Bless You my friend!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 4/6/2012 6:03 AM (GMT -6)   
Hi Tina,

First, I want to express how much I admire your spunk and your willingness to take on the challenge of "training" new medical professionals... I know they have to learn somewhere, but for some reason it always seems to be on the people they need to leave for last. :)

Anyway, I am sorry that you have had such an experience and I have real issues with the pill count/disposal thing too! I only bring mine in for disposal if they made me really sick or I had a bad reaction to them. This way I can use them the next time the pharmacy has to "owe" me some. Nobody considers that for us when they want to count everything. My pharmacy may "owe" me meds from several prescriptions in a month because of the number and kind of meds I take. It would be insane to just "wait" for the med to come in with the exact dose I need because someone else may need that dose too. This way, they have me in the computer and can fill the "owed pills" as soon as they arrive at the pharmacy.

I just can't get over the part about being tempted to take the extra meds...their your meds and...if you have extra...then you aren't taking them when you don't need them. That is one of the dumbest things I have ever heard a Dr say...and I have heard them say some dumb things before. I'm afraid she would have gotten that look of dumbfounded confusion when she said that one. WOW

I also saw the info on the Opana. I recently got an update saying the med has been backlogged for a long time, but is being released again...so they should catch up soon.

I'm sorry that breaking in this new Dr is such a difficult situation, but know you will be OK after a few months of working with her. The assistant will be scarred of you and the Dr will learn to respect you very soon....of that I am certain.

Good luck my friend! I hope them meds help some!
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/6/2012 11:33 AM (GMT -6)   
Awe so very sorry you have to get a new pm doctor and that she is making you jump thru hoops,
if this doesn't get better with her on your next visit, then maybe consider getting another PM Doctor...
Hope things work out for you....

now, Dale/Darn Me...Put your medicines in one medicine bottle when you go out, I use one
medicine bottle for my medicines, as it's easier to carry and it has a prescription label on it
so you should not be questioned ....In some States, such as Texas medicines have to be in the
original prescription bottle/container, (so I carry mine in one.) and on long travels for more than a night
away I take and put all my medicines in a cooler, in all the original containers....Air travel I use the
original containers and put them in my carry on, which I later put a lock on, before getting on the plane.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16776
   Posted 4/6/2012 11:46 AM (GMT -6)   
Hi Tina, well I don't have a lot to add but can only say this, once this new dr gets to know you and see's that you are a very responsible patient she will relax a great deal with you. Its just so frustrating in the beginning with a new dr, kind of like breaking in a new pair of shoes, but if done right it is a good fit. You are half way there already by liking this new dr , now its a matter of teaching her your ways.

Take care.
Moderator, Chronic Pain Forum & Psoriasis Forum

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 4/6/2012 3:43 PM (GMT -6)   
Chartreux,

The one bottle sounds like a good idea as long as no one notices the different sizes/colors of the pills in the bottle. LOL
You don't stop laughing when you grow old
You grow old when you stop laughing !!!

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 4/6/2012 4:15 PM (GMT -6)   
Tina, first I am so angry that you had to go thru that.  I am not sure what is going on all over this country except it seems where I live, which is Maryland, very close to Washington D.C.  Back in the late 90s we went through some similar problems, and many doctors were, rightly so put out of business.  But since that time things have settled down and they seem to have "cleaned house" with the doctors that were not doing there jobs.
 
It is difficult enough to have to live with cp plus your other issues, plus raising children, it is inexcusable to have to go thru what you are going thru.
 
Please take care and keep on fighting for your rights as a valid patient who needs your medicines.
 
Take care and good luck to you, if I can help in any way, let me know, I am good at writing to politicians and making them do there jobs.
 
Love,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/7/2012 3:57 AM (GMT -6)   
Hey....

I just wanted to thank you all for the thoughts and perspective..... and for possibly saving my life, lol (more on that in a minute).

It just helps to be able to come here and know that others understand what I'm saying... and why, especially when you have a very complicated case, it's so hard to switch doctors.

So.... here's the scary part. One of the members - ummm, thankfully! - mentioned that the new med she gave me is a triptan SULFA drug. So, I looked it up.... That's sort of a problem for me, as I have a sulfa allergy which causes anaphylaxis.... meaning - I quit BREATHING and need an epi shot. This doesn't happen w/ all that have a sulfa allergy...
but, if you know my history - you'd know there's a very good chance it would happen to me.

Does anyone think when I said these specific words - "Are there any side effects or reactions that I need to know about?" - that maybe she should have mentioned that???? I also told her at the beginning that I was unable to take Imitrex.... (and, truth be told, it's been so long ago, that I can't remember the reason why, maybe it was this).... and, come to find out - this is just "generic" Imitrex.

I'm sorry, I know I have a slanted viewpoint about medical professionals.... but these are the reasons why. It CLEARLY states on my chart that I have a sulfa allergy. I've seen it myself when I sit down to do blood pressure, etc. I think it should have at least been mentioned to me as a "possibility" - especially when it means that you will be unable to breathe.

Anyway, back to the positive - thanks for listening and supporting me. I appreciate it very much.....

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 4/7/2012 8:19 AM (GMT -6)   
Tina,
Wow, So glad you did look up the med and found out it's potential with you being allergic. I want to say thanks to you right away for coming back and telling us what you found. I do look at the side effects of meds but have been somewhat relaxed about doing it in the past. No more. I will now study every one of them before I take the first pill. Thankfully I'm not allergic to anything but it is a good practice to do your own research just in case something has been overlooked.

My viewpoint on medical professionals is getting more and more slanted each day.
My thanks to the person who guided you.

So happy you are still here.
Dale
You don't stop laughing when you grow old
You grow old when you stop laughing !!!

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/7/2012 9:25 AM (GMT -6)   
Glad to hear that you recognized this from someone's post...

Unfortunately I have learned that Drs. are human too and make mistakes....especially with a new patient trying to pour through a chart that is pretty thick (mine is too!)....they can miss something like this even though it should be something they look for...

Also...it's really Pharmacists that are the most knowledgeable of anyone on medications....So...even with samples from my Dr. I have always gone home and called my Pharmacist and asked if they can run this medication against everything I am taking....as well as it would show any meds I'm allergic to in the system...

It's certainly not a good thing and it's the new Drs. fault that they missed this..

Not sure if you called them yesterday or will speak to them on Monday but I know you will set them straight!!! LOL...

I'm sure this is all so frustrating...having to start over...thinking this "new" medicine might help and now not being able to take it...

I am always amazed at how you do everything with your chronic pain...and even when something like this happens....you can vent, cry, and get upset for a bit which is very healthy when needed....but then jump right back into it with a positive attitude!!

Sending you and all those kiddies hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/7/2012 2:53 PM (GMT -6)   
Hey all,

I was never implying that she was "trying" to kill me, Baileysmom. And I do understand that medical professionals are human.

However, when you've had your own life and the life of your child almost taken by so-called "mistakes"..... I'm sorry if I'm on the cynical side. However, I think that is what makes me a better patient.... because I'm cautious and so forth.

Final thoughts - re: the sulfa allergy and medication - I'm sure it would be fine.... and yes I've read all the info on the web.

But, when you have an allergy that produces the inability to breathe.... I would have liked to have known that "could" happen... even if it's a .001% chance.

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 4/7/2012 3:26 PM (GMT -6)   
Dear Tina, so sorry for everything you are having to go thru regarding a new pain doc. It's just one thing after another, all the time. I feel like it jusst never stops. Like what next, I say to myself. You have very complex health issues and like you know, you are your best advocate. It's all up to us and what we do with our issues, right. But it makes me weary, it makes me tired to keep researching, calling, writing letters, anything and everything to get answers. but for myself there never seems to be any answers. No one knows what to do with me, how am i suppose to know what to do with me.
I sure hope that over the course of time you will be happy with your new doc. I wish you didn't have so much to deal with my dear friend.
Is there any reason why you are holding off on getting the pain pump, aside from it being the last resort.?? it seems that you are perhaps there and just think,, what if it did help you, wouldn't that be an amazing feeling.
Just know that i love you lots and hold you dearly in my prayers.

Suzane
xxxxx

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 4/7/2012 6:43 PM (GMT -6)   
Hi Tina Wow. I can't believe that doctor gave you a med that could have possibly caused you to stop breathing. That really upsets me. You're such a dear friend to me, and they need to get their act together. I understand nobody's perfect, but she's a doctor, and she should have looked in your chart to see what, if any, meds you are allergic to.

I'm sorry for venting, but this really upsets me to no end. Take care. I sure hope you feel better. *hugs*

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/7/2012 7:49 PM (GMT -6)   
Thank you, Suzane and Loretta....and everyone else that had kind words to say. It means more than I can say right now.... I'm feeling really overwhelmed right now w/ everything.

Suzane.... my reasoning for holding off on the pain pump is that I got meningitis from it and spent 30 days in the hospital. With the stages my kids are all in right now - I can't imagine what would happen if that happened again. So, I need to wait until the girls are a little more "self-sufficient" and, also, that I get my blood pressure better under control.

That being said - I even told the doctor on Thursday that I knew the pain pump was in my future.... and she agreed. I just hate rocking the boat w/ anything else right now. BUT, I'm going to have to do something. None of the oral meds work for me at all.... only IV meds.... and it's not realistic for me to go to the ER all of the time, obviously.

Frustrating! Thank you for caring for me.... and for your unconditional, loving friendship. You all mean a lot to me.
--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 4/8/2012 8:07 AM (GMT -6)   
Hi Momto8,

I never knew there was a possible Sulfa reaction...perhaps this explains why I had so many problems when I was given migraine meds. I thought it was just because they were related to serotonin.

On a similar note.....be very careful of diflucan too. It cross-reacts with sulfa too (in some people) and I am one of them. I had my eyes swollen shut, blisters on my lips, blisters on the palms of my hands, and the most unbelievable itch you can imagine from diflucan. I had no idea what caused it and thought I had been bitten by some small flying bug (camping) the first two times. I would get the blisters on my eyelids and then itch like crazy. Later, I put two and two together and the Dr had no idea what was going on. I called they gynocologist and they knew fully about the cross-reaction. Apparently it doesn't happen in everyone, but does in some.... so please be careful.
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/8/2012 10:43 AM (GMT -6)   
Retiredmom,

Thank you very much for that info.... I'm one of those people that if it CAN happen, it will happen to me, lol.... so I appreciate you sharing that information....

I also have a sulfite allergy.... and, though I don't drink alcohol, I used to wonder why I would get a rash, etc. after eating/drinking anything w/ red wine in it. Turns out - I really can't tolerate anything w/ sulfites in it...

(Sorry to go off on that tangent, lol)....

Anyway, I appreciate our board and the information we are able to share with one another.

Have a good day.... --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

angelsong5
Regular Member


Date Joined Feb 2012
Total Posts : 56
   Posted 4/8/2012 6:33 PM (GMT -6)   
Tina, Sorry they put you through so much
The one thing for sure that is so good that you do do
Is you take charge of what they are doing,
Dang if we dont look over everything and question what someone is doing
Who will, We have to watch out for our health,
And we know our bodies LOL
We have to live with it everyday
I sure hope that all goes well
Take care always Renee

newname
Regular Member


Date Joined Jun 2011
Total Posts : 95
   Posted 4/8/2012 8:45 PM (GMT -6)   
Ah, pill counting.
Thankfully I've never had my doctor require that of me.
I don't see a pm, though. Just a regular family MD.
But if he ever demands to count my pills and wants to dispose of any extra, that will not be a good day for him.
I'm not a kid and won't be treated like one. If he wants to do a urine or blood test on me, no problem. I've got nothing to hide. Counting my pills and disposing of any extra, though? Don't think so.
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