New Doctor, New Problems

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Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 4/6/2012 11:32 AM (GMT -6)   
Hi my friends,
 
I have been very short of breath for six months and my personal doctor has been just ignoring it.  Well, the shortness of breath has gotten worse, so he sent me to a respiratory specialist.  I had a cat scan, a VQ scan and lung perfusion tests. 
 
The results showed I have restrictive lung disease, which means I have to lose weight  (something I am working on) and exercise more.  Good luck to me, as I have fibromyalgia and I can hardly move these days, but I will certainly try as I need to do that to lose my weight too.
 
The doctor also ordered a sleep study to see if I need a C pap machine; and a six minute walk on a treadmill to see if my oxygen drops and if I need oxygen during the day.  I personally feel like I need oxygen during the day sometimes, but not often.  He also ordered an inhaler, symbicort.  So we will see.
 
Thanks for reading my latest woes.  Hope you all have a low pain day and a great Easter!
 
God bless.
 
Lindaloo
 
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/6/2012 2:25 PM (GMT -6)   
Linda,
I was thinking of you in how you were doing...Sure hope the cancer is in remission or gone for good.
Having any lung problems and being told to exercise, well, just don't over do it...you can easily over
do things, so you might want to maybe ask about light physical therapy, to start with and don't let
them push you...or maybe if the weather is nice outside take a short 2 minute walk for a start...
But wait and see what the 6-minute treadmill test reveals, before doing anything...and maybe also
look at your diet and try doing without one thing in your diet such as chips, but again start slowly...
Hope this helps...
Hope your healing, Prayers and many many well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 4/6/2012 7:12 PM (GMT -6)   
Linda, I have been on oxygen 24/7 for several years now and will tell you honestly, I hate it. Yes, I feel better on it, I have COPD. It is embarrassing to me out in public, I feel like a dog on a leash in my house because of being hooked up to a long hose that allows me to walk all over downstairs. Yes, I have had some professional help because of these feelings too. My sister has been on it much longer than me and she still feels this way too. For your sake I do hope you do not have to go this route, it is not easy.

I don't know if you have ever tried water therapy or not but I did it one winter at one of our local Y's. Our instructor had failed back surgery and was a CP patient herself and she was wonderful. It really is easier to exercise in water and you are non-weight bearing as a result and run very little risk of hurting yourself. Our instructor went slow and easy with us and it really did help. This may be something you might want to consider for PT. My dr is the one that found this for several of his patients.

Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 4/6/2012 10:01 PM (GMT -6)   
Thank you both to Char and to Susie. I appreciate your replies so very much.

My daughter always puts up an above ground pool each summer and I am looking forward to that. I can swim in it and get some sun for vitamin D. The exercise will be great, so I am just waiting. The temperatures have been in the nineties here every day, so I am ready.

Last year, my other daughter bought me two new bathing suits too, so I am all ready. The only drawback is, that the water has to be warm enough for me to get in it or, with my fibromyalgia, I just hurt and hurt. 

I certainly hope I don't need oxygen all the time during the day, Susie. I really don't think I do. I don't think I need a C pap machine either, to tell you the truth.  Only time will tell and I will see how the results pan out.  I only know that when the dr told me I now had small lungs and couldn't hold a lot of air in my lungs, I was shocked.
 
But I will let you know the progress of my situation and I am so touched that you cared enough to respond to my post.  Thank you.
 
Blessings.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

Post Edited (Lindaloo) : 4/6/2012 10:10:20 PM (GMT-6)


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/7/2012 3:09 AM (GMT -6)   
Lindaloo,

I know how hard it is to drop weight, especially when you have fibro and/or other things that make you feel terrible. I'm very, very slowly losing my weight.... it's taken me 18 months, but I'm finally below where I started when I got pregnant w/ the girls. (Only another xx to go, haha).

Seriously, though, I've got lung stuff as well..... and it's very scary, as I know you know, to not be getting in enough oxygen. I think the swimming and water therapy is a great idea.... I would much prefer this to most other exercise. I also try to get out, as much as possible, and walk w/ the girls.

Take care and please keep us posted.... --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 4/7/2012 11:08 AM (GMT -6)   
God bless you Tina and thanks for your reply.  I will get into walking soon.  My daughter is on weight watchers with me, only she finds every excuse not to go and not to write down the points every day.  I have to say, I went to weight watchers this morning and weighed in and I lost 1.8 pounds.  yahoo!!!!  I am so motivated to keep on keeping on. 
 
This week I did more activity rather than just sit in my recliner and I think that's what made the difference.  I need to move more and do more right here in the air conditioning of my house and I am going to do more each day as my breathing and fibro pain permits.
 
Thank you for your encouraging words, Tina.
 
Blessings.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 4/7/2012 11:23 AM (GMT -6)   
Linda when you can get into the pool, please go slowly starting out and slowly build yourself up. If you try to do too much at first which is easy to do in water, it can really cause a setback. A good exercise in the pool is simply walking around the pool in the water, another is to get some water noodles and sit on one of those and kick your way around the pool. Its not all about doing laps, we never did those. I am excited for you to start in the pool, just remember slow & steady.

Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 4/7/2012 11:28 AM (GMT -6)   
Thanks Susie.  Appreciate your wisdom.
 
Blessings.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 4/7/2012 12:39 PM (GMT -6)   
Sorry to hear you are having a tough time. I sure hear ya on the weight issue, but i too am getting on the right track. I love the aquafit classes best of all. I did try a yoga class for the first time ever and enjoyed it. It was peaceful and great stretching, although i must always wear my ice pack.
 
Hope you get feeling better soon.
 
Suzane

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/7/2012 10:06 PM (GMT -6)   
Wow, way to go...1.8lbs. is a very good start. Keep up the good work,
but dont push to hard yet..and do keep us posted on the treadmill
test...thinking of you.
Many prayers and well wishes...

Boxerlover
Regular Member


Date Joined Dec 2006
Total Posts : 275
   Posted 4/12/2012 9:32 PM (GMT -6)   
Hey Linda, I will need to be on O2 as well but I was 1 percentage point away so not quite yet.  I hate the thought! I too have been trying to walk and exercise a little to increase my lung function. We too have a pool and as soon as it is warm enough I am getting in! But I can't unless it's 88 degrees. We have a heater but it is so expensive to run until the nights stay warm. But water is excellent exercise.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 4/12/2012 10:44 PM (GMT -6)   
Hi Linda That shortness of breath stuff is really difficult to deal with, last year I had to go to respiratory Rehab classes for about 6 to 8 weeks to build up my stamina, Iguess it helped a little???? Anyway keep us posted on how you are doing. Especially how your sleep study turns out! You know allot of times pain meds can cause central apneas and can be a cause of sleep problems. If they say you have sleep apnea, you know they do have a variety of different machines that can be used to treat it,  as well a  huge selection of different masks. I am a big advocate of PAP treatment for sleep apnea. So if you do have it, if there is anything I can do to be of any help to you, just let me know. ( I have had numerous sleep studies over the years, and was first diagnosed with it in January of 2007, I also have to have 3 liters of Oxygen with my PAP machine when I sleep at night)
 
Anyway I am here for you if you need any help with it. Wishing you the best......
 
White Beard
 
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 4/13/2012 7:31 AM (GMT -6)   
God bless you Whitebeard!

Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda
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