Flare? Who knows....RANT

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Noinsanity76
Regular Member


Date Joined Apr 2012
Total Posts : 35
   Posted 4/8/2012 1:09 PM (GMT -6)   
So in a previous post I mentioned my issues, but to summarize, suffer with chronic neck, shoulder, hand, hip, knee and feet pain. No one has diagnosed me with anything. I do know I have a negative ANA but that was about 5 months ago. Anyway, I have been flaring for almost 2weeks now. Today my face is swollen with my right eye being very swollen. My hands are swollen, red, and hot to me but not to touch. This has been going on for about a month when I first get up. The stiffness is insane, but today everything just hurts.ijust want to understand,WHY? I apologize for the rant, I just don't understand it.
C-PTSD, Anxiety, Depressive Bi-polar. Chronic pain with no diagnosis. Still smiling and trying to make the most of life, even when it gets really hard!

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 4/8/2012 3:02 PM (GMT -6)   
Oh my, first let me welcome you, sorry you have to be here, but its a great place to be.  I dont know where to begin as far any diagnosis, I guess you need to  keep going to doctors until you get a diagnosis.  Please hang in there.
 
Good luck, take care,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/8/2012 8:24 PM (GMT -6)   
I would say that you need to find a good Rheumatologist in your area, and
get seen...and if those doctor's can't help, just keep trying til you can find a
doctor that will listen to you...Sometimes that can be the hardest part is getting a doctor to listen...
Many many well wishes to you and don't apologize for ranting, everyone needs to here and there...
Others will come by with better advise so pay attention to them...and keep us posted as we do care....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Noinsanity76
Regular Member


Date Joined Apr 2012
Total Posts : 35
   Posted 4/9/2012 11:24 AM (GMT -6)   
I agree, I think a rheumy is my best bet. Unfortunately, as I said in my previous post, I will be moving to a different state and will have to find a new PCP, PM and a decent rheumy. I just don't understand what this flare is and honestly, I'm not sure if it's common to have flares with fibro? (my pm thinks its fibro, I question that, so I can't wait to see a rheumy!) don't understand the joint pain. I swear, I can't handle this and I am in tears not being able to enjoy life. Easter, with the family, felt like work and it all becomes so depressing!
C-PTSD, Anxiety, Depressive Bi-polar. Chronic pain with no diagnosis. Still smiling and trying to make the most of life, even when it gets really hard!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 4/9/2012 1:15 PM (GMT -6)   
It sounds like something in the rheumatoid family, as that can cause joint pain and swelling...
Check webmd for a Rheumy doctor in your new area...sometimes it can take a couple of months to get seen by a good doctor,
it took me 3 months before I could get into see my RA Doctor....But I will hope it's not RA for you and that your
feeling better soon...more well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 4/9/2012 3:55 PM (GMT -6)   
NoInsanity yes, people with Fibro do have flares all the time. It is just part of the disease. If you have not visited the Firbo forum here at HW, please pop over there and check them out. They are a great group of friendly people and they can help you more with questions about Fibro than we can here at the CP forum.

When will you be moving, I remember you mentioning that in another post of yours that I had responded to. Take care...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Noinsanity76
Regular Member


Date Joined Apr 2012
Total Posts : 35
   Posted 4/10/2012 7:23 AM (GMT -6)   
I think we should be moving within the next two months tops.(not having a date to move does help the anxiety go rampant, which in turn, does not help the pain.) Thinking about talking to my primary and having him take over some of my meds during the transition. My PM is In the middle of a move, as well, and I can't get in to see him...when i asked for the next date, they say my favorite words..."I don't know?" as I said my PM's staff is a bunch of idiots.
C-PTSD, Anxiety, Depressive Bi-polar. Chronic pain with no diagnosis. Still smiling and trying to make the most of life, even when it gets really hard!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 4/10/2012 8:12 AM (GMT -6)   
I hope your PCP will take over rxing your meds until you make your move. I don't blame you one bit, hearing the words "I don't know" is not the extra grief a CP patient needs to hear.

Take care..Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Noinsanity76
Regular Member


Date Joined Apr 2012
Total Posts : 35
   Posted 4/12/2012 4:55 PM (GMT -6)   
Well, my PCP won't take over my pain management for the time being so I have another appointment with the pm and it is two days past my refill dates which kind of sucks, since I'll be without anything for 2 days. He did however order kidney, thyroid and rheumatoid factor blood work. The PCP disagreed with every med I was on, so who knows what the right treatment is. Seems like every doctor s so different, you'd think they'd be somewhat on the same page. Anyway, pain is a definite 10 today. Woke up at 2 am with it, lol. They say child birth should be a 10. I have 2 kids and I have to say I'd take childbirth over the pain I feel right now. I'm not saying this for sympathy, but I thought I'd share. Chronic pain just sucks, especially with no diagnosis. Is it weird that I actually want something to come up positive?
C-PTSD, Severe Panic and Anxiety, Depressive Bi-polar. Chronic pain with no diagnosis. 1800mg Neurontin, 10/325mg Percocet x3, Klonopin 1mg x3, Prozac 20mg, Robaxin 500mg x2. DDD in shoulders and neck, bulge in C5/6 and 6/7. (apparently this is "normal" lol.)
Anyway, still trying to smile and and make the most of life, even when it gets really hard!
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