Weird Pain - Get's worse when elevated? & More please help!

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Jimmy0240
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/13/2012 5:39 PM (GMT -6)   
Long story short, I have widespread chronic pain all over my body and my doctors can't seem to figure out what it is and it's getting very bad. One of the things I noticed is that when I am doing something with my hands (tying, for example) and they are elevated, the pain kicks in much quicker than if I am doing it on my lap. Why could this be?

There are also other things that cause pain if it helps make a connection. Activity is the worst. Any type of movement/activity imflames whatever part of the body I'm using and it does so quickly. But it's a different type of imflamation. It hurts a lot but there no redness/swelling/tenderness. Simple things like wearing a belt will cause lower back pain, or I have to sit/sleep/stand in very specific positions (for example, my hands always have to be by my side and fully supported. If my elbow is just hanging it will start to hurt, same goes if my hand is hanging off the arm rest, my arm/wrist will start to hurt.) If you want more details please ask.

I am about to give up. I am clueless where this pain is coming from and so are my docs. They're treating it like arthiritis and ankylosing spondylitis but none of the meds have worked (Meloxicam, Sulfasalazine, Indomethacin, Enbrel & others I can't think of.) They treat the pain when I'm sitting around fine, but once I get up moving around my body becomes imflamed very quickly.

All of this started with a elbow pain when playing video games and slowly progressed over the last 4 years to the rest of my body. I went from being 100% healthy at 19 years old to barely being able to leave my house at 23.

Does this make any sense to anyone? Please help!

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 4/14/2012 7:38 PM (GMT -6)   
Jimmy

Welcome to CP family. I am so sorry to hear that the doctors cant figure out what is going on with you.

I have no clue as to what may be your condition.

Please keep us updated on your condition as we do care about you.

Soft Hugs
Betsey
Age to a woman is like krypronite to Superman.

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 4/14/2012 7:57 PM (GMT -6)   
Have your doctors run any circulation and/or cardiac tests on you?

A circulation issue is one thing that comes to mind.

The other is something like fibromyalgia. The problem with fibro is that it is very hard to diagnose since there are not really any definitive tests that can be performed. It pretty much boils down to widespread pain with no apparent cause once other causes are eliminated.

There are medications like Lyrica and Cymbalta that are FDA approved for treatment of fibro, but there are not any cures and the treatment rarely eliminates the pain 100%, 100% of the time, but once the right med and the right dose is found it usually does greatly reduce it.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 4/14/2012 8:25 PM (GMT -6)   
The medications you have tried and/or are on are for arthritis, and if you don't have arthritis then they won't help. How did they come up with the diagnosis of arthritis? MRI's, x'ray's, CT scans done?

The first thing that comes to mind is Fibromyalgia and if it is that you definitely need to be on other medications.

I do not know enough about Complex Regional Pain Syndrome, but you have some symptoms of that. There are others here that are very familiar with it, so they can help you with that.

I am certainly no Doctor and could be completely wrong with what your condition is....So please just take what I say as just trying to rule out other things.

What type of Doctor's have you seen? Have you seen a Pain Specialist?

If you've not had any diagnostic tests done, then I definitely think that is something that you need to do.

Have any of your Doctor's ever tried pain medications on you? That is something that should be tried.

If you can give us a little more info it would be helpful. I hope you get some answers soon as to what is going on. Please keep us posted!

wink
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Jimmy0240
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/15/2012 7:23 AM (GMT -6)   
Thanks for the replies, I really appreciate it! Here's a list of the current tests that they've done. They all came back normal except the MRI which showed vertebrae inflammation.

Extensive bloodwork
MRI on SI joints
Whole Body Bone Scan
X-rays on hands, chest & lumbar

I have only seen my primary doctor and a rheumatologist that he referred me too.
Also one of you mentioned circulation problems and I definitely have that. My limbs go numb very easily. As for the cardio test I don't think I would be physically able to do one. I am unable to walk even just a few blocks.

Fibryo has crossed my mind but I don't know enough about it to really know, I've just seen a bunch of TV commercials for it. I'll look into that, thank you!

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 4/15/2012 9:35 AM (GMT -6)   
There are other cardio tests besides the treadmill. If they want to do a cardio stress test they can use a hand bike, a regular stationary bike, a recumbent stationary bike or a combo hand and foot bike. All that is really required for a cardiac stress test is that you get and keep your heart rate up for a period of time. If your doctor decides a stress test is warranted make sure he understands your mobility issues so that a non treadmill test can be ordered.

The same can be done for certain circulation tests if need be though the most common involve an injection of some kind of dye or other material and monitoring by a type of x-ray machine. Not 100% sure of the exact details...only the very basics of this kind of tests.

BTW: I can fully sympathize with you on doing a treadmill test. I have had several over the years and the last one I did I managed to get through 75% of it before my back seized up and my legs gave out. I told the tech that I was about to drop and what was happening and she kept pushing me to finish. She really looked like an idiot when I went down a minute later and she almost lost her job over it. Fortunately the only injury I got was a "rug" burn on one knee.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 4/16/2012 7:49 PM (GMT -6)   
I am sorry you are in such pain, I popped in to say I recently had a cardio stress test done and I had the option to treadmill or be medically induced. I was only able to walk a block but I tried the treadmill and was able to complete the test.

I hope they soon find out what it is so you can hopefully get treatment.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol
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