Thanks guys! I have an appointment on the 17th of this month thank God.
As a reminder of my pain issues, I have had Crohns disease for about
4 years now...its in remission now but I still always have a baseline of pain from it that the maximum dose of Ibuprofen and tylenol combined doesn't touch not to mention bouts of severe sharp pain....I've seen about
5 GI's (horrible experience in the past but thats another story) and everyone is saying its Crohns...I had such sharp pain at times I went to the ER because I was seriously afraid something was wrong but each time it was just a spike in pain and nothing serious...script
for Vicodin call your GI :/ . My body temperature is usually all over the place from the Crohns so I have to stay hydrated, no big deal.
a month ago I was diagnosed with Ankylosing Spondylitis after I had severe neck pain for a little over a year, I always had muscle tension in my neck so I thought it was nothing until it got worse and worse on top of a bulging disk in my neck. Today I live in constant pain I probably couldn't even fathom a while ago, I never thought hell on earth was real. I was a competitive athlete all through out high school rowing pretty much all year long, I ate a very good selection of food and made sure I stretched, TENS unit after a rough practice with lots of muscle tension following, regular massages, and counseling. I still do all of those and make a point to stretch every morning...I loose track of conditions, medicines, treatments, etc. these days now as I'm trying to focus my energy on other things, I still do them I just have trouble recalling them thats all :p I'll update my signature too. (EDIT: I also have degenerative disc disease...its inevitable for every person in my family, literally the whole side of my dads family has it and my moms side all has AS or RA...as if I could notice the degenerative disc disease above everything else!).
I've always had pain, I never expect it to be a consistent below a 4/10 but I do expect to have a much higher quality of life than I currently do know when I KNOW its possible...my conditions may be bad but their are people that have it MUCH MUCH worse that live much better, yes everyone is different but I KNOW If doctors instill a little trust in me and stay consistent, stop playing around with medications without warning, and actually collaborate I can live well. I take honesty and
openness very serious in everything about
life, I'm not going to say Ive not told a lie but I'm pretty darn honest lol. I tell my doctors everything and I tell them I believe the best patient-physician relationship is built on honesty on both ends which is why its frustrating when they make assumptions about
my honesty or intentions, I do not sleep with a dirty conscience and allot of the assumptions and guilt from other things still haunt me in my sleep every night...I think the guilt of letting people down, missing school, and distrust from doctors has got to be tied or a close second to the actual physical pain. If I say Im going to do something I usually mean it from the heart, breaking that hurts allot I'm not sure if you guys have similar trouble with that or not.
My whole goal is to be active again. I know a few people who have severe chronic pain that requires 24/7 opioid management and you would never know because they are so active. I don't want to be a couch potato....that to me is not a fair way to treat your body if you can get up :D
Post Edited (Medicalkid2) : 4/14/2012 3:33:27 PM (GMT-6)