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Fusiongirl
Veteran Member


Date Joined Apr 2012
Total Posts : 608
   Posted 4/20/2012 8:19 AM (GMT -6)   
Hi all
I am new to pain forums but pain is just about taking over my life just now.

I had sacroiliac fusion right side in January. Had real problems as I was non weight bearing for three months. Problem was I have arthritis in my knees and my supposed good leg just wouldn't take my weight. Pain was awful. So it was three months lying on the bed and wheelchair bound. The problem now is I urgently need a knee replacement but before that can happen I need to have a plate and pins removed from my leg (broke it three years ago)and that needs a month of non weight bearing. On top of that I was told on Tuesday that I need my other sacroiliac joint fused, as I have been having more and more back pain. Also there may be a disc issue, I have already had one fusion.

I had hoped that after this fusion I may be able to reduce my pain meeds but unfortunately I have had to have a new one introduced. I am on fentanyl 75, lyrica and now oxycontin 25 as well. I have had around twenty years of pain after years of unsuccessful knee ops and more recently chronic back pain and spasms.

I know that after these ops the situation may improve but I am so fed up of surgery and maybe a bit scared. I have very low blood pressure and that always seems to cause problems after surgery.

Sorry to moan but I just feel all those pain and surgey is never ending. I hope you are all having a good day and thank you for listening to my moans!

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/20/2012 9:59 AM (GMT -6)   
 
      Good Morning Fusiongirl!
 
           We would like to Welcome you to the Chronic Pain Forum!
 
    You have found the perfect place to let out a rant or two about your pain issues! Rant alll you want!...were here to support and listen! wink
 
    WOW!....you have what seems like some very serious health issues...and we understand the pain you are going through. All of us here understand! I also have had a fusion...and actually was a double lumbar fusion at the L4-L5, L5-S1....and the surgery is one that I will never forget...nor do I look forward to another...of which I will need one of these days at the Cervical area. I don't recognize the Oxycontin 25mg? is that a total daily amount or do you take it multiple times a day?...the same question on the Fentanyl? 75mg total a day?
 
  I work with a gentleman here at work who also had a need for a multiple lumbar fusion....five of them all at the same time....and also needed a knee replacement. His Dr refused to fix the knee, until the back was repaired first. It sounds like your Dr is headed in the same direction.
 
     I'm really sorry you have to endure all of these surgery's...but hopefully they will give you some pain relief in the end. I know,.. that most knee surgery's are usually pretty successful these days. I work with several men that have had them done...and all of them have turned out well.
 
    Again!...Welcome to the CP forum...Enjoy...and I hope you visit us often. You will certianlly enjoy our members. They are a great group...and will warmly welcome you right in here!
 
      Take care,
 
  SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 4/20/2012 11:35:16 AM (GMT-6)


grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 4/20/2012 12:23 PM (GMT -6)   
Fusion girl I just had a l5 s1 fusion and the recovery is going very well. I hope when you have your surgery you have terrific results so the dr can hurry up and do the knee replacement. I am not at all pleased with the hurry up and wait mode we get stuck in. I was originally told my surgeon would not do fusion until I was in a wheelchair and I was quickly heading that way.

This site is awesome, the support and caring comes from all over because we are not doctors but patients and we all have chronic pain in one spot or another, so we have empathy for one another.

Hopefully someone will pop in ere that is dealing with the same issues as you and they can offer some constructive advise. I also have low blood pressure and in the past surgeries have made me I'll but I was told things had improved, I am not aware of any issues and if they had any I am sure I would have been told.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16779
   Posted 4/20/2012 12:37 PM (GMT -6)   
Hi Fusion Girl and welcome to the chronic pain forum. After reading your post, jeesh you have every reason to feel like ranting. You are so right about being tired of surgery and feeling like its never ending. I went through a two year period of having six different surgeries and I just got sick of it. I was so tired of the after effects of trying to recover, it seemed like that was all I was doing was recovering from this one that one. Each one took a little longer than the last one to recover from too. For your sake I do hope you can get these two out of the way and get on with your life.

Just keep telling yourself the outcome of these surgeries is what is going to get you back up on your feet and living life again. Hopefully, by the time you recover you will have been able to reduce your meds and that is going to make you feel better too. Nothing like being tied to a prescription bottle.

Anyway, I wanted to pop on and say hello and welcome aboard. Please keep us posted on how you are doing. Take care......Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Fusiongirl
Veteran Member


Date Joined Apr 2012
Total Posts : 608
   Posted 4/22/2012 9:29 AM (GMT -6)   
Thank you all for your very kind words. It's so good to speak with people who really understand pain and just how it affects your life.

I keep telling myself exactly what you said stray dog, that all this surgery will be worth it, but when I am lying awake at night hurting badly it is hard to see an end to it all. And I also agree totally that each surgery takes a little longer to recover from. Maybe that is an age thing too. Lol

I am lucky with my medication. Although I see a pain doctor, I can still have meds prescribed by my GP or my orthopedic surgeon. And all my medications are free!!! I really feel for you all having to pay for all your meds. How cruel is that to penalise you when you are ill. Screaming eagle I take oxycontin 25mg orally twice a day, the fentanyl is the trandermal patch which is changed every seventy two hours, I also take lyric 300mg twice daily and I have sevredol for breakthrough.

I am finding it very hard to get back on my feet after the sacroiliac fusion. The other side of my back hurts so bad. I woke up this morning unable to move. My husband, God bless him, had to help me move and get comfy. I am still in bed. It's the only place I am comfy. I know all about keeping going but I can hardly move, far less walk. Then there is the knee issue. That makes me walk to one side.....not good for back issues. Despite all this my ortho surgeons happy with my progress. We knew it wasn't going to be easy with all the issues I have going on. I am blessed to have an amazing husband, he has been my rock and looks after me so well. My daughter is a nurse an she is a lovely kind girl who comes often to help out. And my ortho surgeon is amazing in every way, he gives me hope and understands the issue of chronic pain.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 4/22/2012 6:33 PM (GMT -6)   
Fusiongirl, welcome. I'm sorry that you have so much on your plate - but like the others have said, you couldn't have found a better place to come and vent. This is a wonderful friendly place and you will always find support here when you need it.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump
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