I am posting here really as my last attempt to get proper treatment. Here is the situation:
I am currently 26 years old white male, average height, and somewhat on the slim side. Previous to age 22, I was a very social, outgoing, productive person who had a fulfilled life. Around the age of 22 years old, I started to produce an insane amount of kidney stones monthly. These stones were extremely painful, and usually required emergency intervention. Not only was the pain an issue, but the stones usually had to be removed via cystoscopy, and there we serious infections at times. Between the ages of 22 and 24, I would assume that I have produced at least over 100 stones, and have visited the OR about
20 times for extraction. The doctors tried different medications, diets, and other techniques to prevent the formation of kidney stones, all pretty much failing. I was also on a lot of pain medication, typically IV Dilaudid, and numerous oral/patch narcotics. As these we not required all the time, I didn't have an issue yet taking narcotics.
At age 23, following a routine cystoscopy to remove a kidney stone, this is when things really went down hill. I had the sensation of severe left flank pain radiating to the front ALL the time. Even to this day, I am still feeling the pain constantly. I received a CT of of left kidney to rule out any damage from the procedure, and they saw scarring of the ureter. I was told that the scarring and inflammation of the ureter would subside, and they continued the pain medication prescript
ions (Vicodin 7.5/750 x120 with 7 refill), and referred to pain management. I would like to add that at this time, I am working, even though barely.
I arrive at the pain management doctor. She asked me for a history, as well as other questions, such as allergies, medication, drug/alcohol use, etc. Her boss enters the room and starts talking about
this medication called "Suboxone" and how great it is for pain. I have never heard of it, so he advised me to look it up and come to the follow up appointment with any questions. Before I leave, they also do a drug test (which only showed the vicodin I was taking). I did research on Suboxone, and I found that it was used for opiate dependency and addiction. I was a little freaked out, because I was neither of these things, but willing to do anything to help myself function, I agreed to taking them. Within a few days, it was clear this medication did not help with pain, and I went back to the Vicodin ES. At this point, I started to require more and more of the medication in order to obtain the "pain management" dose. I did talk to the doctor at the next appointment about
this, and she instructed me to not take more than prescribed, and changed the medication to MSContin. She prescribed the lowest doses possible, and because they we're not helping, I took more than prescribed. She tried pretty much every non-narcotic and narcotic pain medication available, only prescribing the minimal dose, which didn't help. I decided to change doctors a few times following this experience, all resulting with the same level of treatment.
Eventually, I said "Screw this". I still received my prescript
ion for Vicodin, however, my tolerance was so high, I was going through all 120 in 2 weeks. This is when stuff got REAL bad. I have friends who use pills for fun and stuff, and I knew they were able to get morphine and other narcotics. I started to be comfortable with obtaining my pain medications this way, instead of dealing with doctors....
When I was 23, I had face numbness, and started to appear stroke-like. I was rushed to the ER, where they found two brain lesions from the CT scan. After some testing, the neuro said it is Multiple Sclerosis, and decided to try different MS medications to stop progression. Since this diagnosis, I have seen a total of 2 neurologists, one saying it is MS, the other saying it isn't. The doubt from the one doctor comes from the fact that my labs are not consistent with a MS patient, such as my spinal fluid (tested 3 separate times) always comes back negative for MS. The flipside is that I have had 3 MRIs, and there shows ZERO progression. However, since this issue, I have not only severe left flank radiating pain, but extreme depression and fatigue, as well as a narcotic dependency. I have had to stop working at this point, because I couldn't be relied on.
Long story short from this point, I attempted to return to college for the 2011-2012 semester, and that failed. My health was not well enough to take on such a role. I am 26 now, and have no health insurance. I have moved back from school to live with my parents, and during Christmas break, I, cold turkey, got rid of the narcotic dependency. At this point, I am on my last straw, I still experience pain.... and I am tired/depressed all the time. Is there anyone else who has any advice on this issue?
Post Edited By Moderator (Momto8kids) : 4/21/2012 10:43:50 PM (GMT-6)