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AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 4/25/2012 8:45 PM (GMT -6)   
How do you lower your tolerance to pain meds without increasing the pain?
 
I really afraid of my tolerance levels. If I get a diladid shot, it takes like 6mgs to just touch the pain. (just one example). My fear is if something happens really bad, that we won't be able to controll the pain. I experienced this with my last shoulder surgery, NOTHING seemed to help post-op, I had enough to put down 2 hourses, and was wide awake and screaming almost.
What if I get cancer, or have a major tramua.
Plus, I take 3 10/325 hydrocodone now for my shoulder and I can tell I'm getting a tolerance to that too. Docs say you have to back off, but that means, more pain.
This is so hard.
 
(major problem is my doc won't do surgery to repair the crazy damage I have because I have Non-epileptic seizures.) FRUSTRATION!
27 years old
Dx's: Depression/anxiety, Non-Epileptic Seizures, Migraines, repeat joint dislocations, suppressed immune system
14 Major surgeries
Meds: Cymbalta, Vyvanse, Valium, Trazadone, Ambien, Loratab

Daniweb
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/25/2012 8:57 PM (GMT -6)   
I had the same experience after my second back surgery. Absolutely could not get one bit of pain relief for weeks. Recently had a procedure done that required light sedation. Was given Verced and fentinol and it did NOTHING. I too worry that if I become ill or injured I will be in a world of hurt (literally). I will be looking for replies to your post. In the meantime hang in there and remember you are not alone. Good luck to you.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/25/2012 10:33 PM (GMT -6)   
michelle,

sorry to read your story. you are truly in the classic catch-22 in that situation. hope you can find a better solution to what's going on there. the more you are in untreated pain, the worse you feel, and the worse you feel, the more you need the meds. hope your doctor(s) can see the falacy in how you are being currently treated. good luck to you.


david in sc
Age: 59, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/26/2012 9:07 AM (GMT -6)   

 

    Morning Michelle!

         I think we could have a indepth discussion about tolerance and dependency here on the CP forum...and it's probably overdue! But as I look at your post...it just seems that you may be under medicated....as your only on #10 hydrocodone x3. May I ask what were you on before your surgery? Possibly a higher dose?

    ...as for the dilaudid...well many of us have a natural... very high tolerance to many med's...and it may be that you needed a different post-op med. There are other factors that may have been a source of your post-op pain....one being on a very high dosage of pain med's for a very long time prior to the surgery. I don't know your prior information...so you may have to fill us in here, if you can. One way to lower the tolerance is for your PM to switch med's for you.

     As for your Dr saying you need to be backing off your med's...well there may be some truth to it....but I wish you could fill us in a little more on your history of medications prior to the surgery.

 

          Take care,

    SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 4/26/2012 9:11:50 AM (GMT-6)


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 4/26/2012 11:27 AM (GMT -6)   
Its kina of a hard story to tell....but I'll try and help.
One, I don't take pain meds on a regular basis normally. But over the last few years I've had a lot of different things happen where I've been on a lot of pain meds, at different times. Never needed an ER(well I did once few about 6 months and I was in a total fog and don't remember much of that)
or anything really, just a lot of random thing occuring close together.

Currently, I just had shoulder surgery. Pain was totally hard to manage. Woke up in tears within minutes of them waking medically, they saying I should still be asleep and at least drowsy, and that I had to have Tons of meds to stay down, and the pain post op was horrendous. Home pain magagment after was really hard as well. I eneded up on 2 10mg Hydro every 4 hours, and that was hard. (Thats alot!)

I had a seizure 6 weeks after and have all kinds of crazy damage and stuff giong on now and I still have recurrent dislocations and stuff. They will not do another surgery b/c of the seizures.
For a long time, when I have surgeries or need sedation or pain relief, nothing seems to help. Morphine, is like a saline injection, diladid, takes about 6mgs to touch pain, and I could walk a straight line if I had to. After surgery they try things like Fentanyl, demerol and I just don't respond. Now my O2 will sometimes go down, but I am wide awake and in pain.
When i have a dislocation I usually have to be sedated. I have a crazy reaction to Veresd so can't do that, and what they normally do doesn't begin to sedate me, so they have to use like 25mg of atomidate or a butt load of propofol, and that only last a very short time for me, when most people would be out a while. Also, when sedated, i sometimes don't remember but they say I still react as if I'm in a lot pain.
With the things I've had, 7.5 of hydro should "normally" work but I don't think that word is in my vocab.
I can tell I'm building a tolerance to the 10mg hydro's, too. I could probably take about 60-80 and be fine. I don't by the way.
I am afraid one, of soemthing happening, really serious that they can't controll the pain. If they can't magage my shoulder now, what if I have cancer or have a major trauma or something? What they could give on scence or in hospital without putting me on a vent, just doesn't seem to work.
Two, I hear of opiodes actually making your pain worse at some point, I could go into all the neuro transmitter stuff, but won't.
I just am ATYPICAL in every way. I think I'm going to get that tatooed on me.
Feel free to ask questions, I don't know really what to say. I just know my tolerance is huge and I want to know how to lower it.
27 years old
Dx's: Depression/anxiety, Non-Epileptic Seizures, Migraines, repeat joint dislocations, suppressed immune system
14 Major surgeries
Meds: Cymbalta, Vyvanse, Valium, Trazadone, Ambien, Loratab

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/26/2012 11:59 AM (GMT -6)   

 

     Michelle...thank you for the added information...and now I do remember you posting here a week or two ago about your shoulder. I think you are a rare type of indivual....and understand your fear now. Sadly...I don't have anything to offer...but will support you.

 Lets hope one of the other members will have some ideas. I have experienced both Tolerance and dependency issues...and at times I struggle with the difference. LOL...but I think I'm begining to get it! tongue  

     Your case would be a nightmare to deal with....and I feel badly for you. What do your Dr's say about all of this! If your surgery was done just a short time ago...then I would think yes...you should be on pain med's....as it takes time to heal. However at some point your shoulder should be getting better....but I know for a fact it takes quite a bit of time. I work with men that have had their's replaced completely.

     If dependency is the problem...then Suboxon might be a possibility...but if tolerance is the issue...then...you may have to go up on your med's....something a surgeon will not be happy about...and will buck the idea.

    sorry I cannot be of more help....but again I hear the fear and the pain in your voice. shakehead

       Take care,

    SE wink           


Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."
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