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Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 4/25/2012 11:19 PM (GMT -6)   
Hey Folks,
Been awhile since I posted here.  My prostate cancer is still busily building up speed, as my last
 PSA test nearly tripled in just 3 months, and I have already been through surgery and radiation.
My oncologist is still great in the pain control department.  Still on Fentanyl patches for the main pain, and still taking 5-8 Loratab 10/500 pills for breakthrough pain.
I have added severe lower back pain to my existing pain areas in the past 3 months, and it has been getting progressively worse.  Underwent extensive MRI' scans a week or so ago, and a spot has shown up on my lower spine.  Believe it is at the L3 & L4 portion.  (Not good with spine anatomy, sorry).  Dr. doesn't think its of the degenerative nature, as this spot wasn't there in the July 2011 scans.  It's possible that it may be evidence of bone metastisis taking place.  The scans are currently getting a 2nd opinion, still awaiting results.
The doctor recently added a nerve med, the script version of neurotin  (not sure how to spell), but after taking it for 6 days, going to stop it.  Been making me feel very agitated, moody  - not like me, having dizzy spells, nausea, stomach cramps, and diarhea.  Was on it about 10 years ago, and did the same thing to me then.
The best med help the doctor did for me, was changing the fentanyl patch up to 50 micrograms, and having me switch it every 48 hours instead of 72.  Before, every 3rd day, I was having a major pain day.
And for some reason, at my local CVS drug store, its cheaper for me to buy 15 patches at a time, then to buy 10.  Why?
At this point, keeping the pain under control is the top priority.  On the cancer front, there's still talk of using chemo to shock the cancer, hopefully into some kind of remission.
Will keep better posted in the future.  I spend a lot of on-line time at the HW Prostate Cancer community of course, but I care about my fellow/lady pain suffers as well.
My best wishes to one and all,
David in SC

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 4/26/2012 9:24 AM (GMT -6)   


     David...I'm sorry to hear that the cancer is getting worse. My wife's father had this as well...and also had cancer on his spine.

       It's a tough road....but you seem to be a trooper about it. We do apprecate the update's...and I sincerely hope the rates slow up for you. Your Dr seems to be pretty compassionate about the pain...and I'm glad he is treating that..for the best comfort you can get.

     Take care,

      SE wink

Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 4/26/2012 12:14 PM (GMT -6)   
SE, thanks.

My doctor is one of my greatest blessings in dealing with the out of control cancer. Only so much we can do about the cancer right now, but he stays on top of the pain control. I have nothing to complain about there, I know I got one of those rare, caring type doctors.

david in sc
Age: 59, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities
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