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kembub
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/26/2012 12:12 PM (GMT -6)   
Hi all
Just found this forum, not had a chance to look round site or forum etc yet but wanted to post an intro message
 
I am kembub, 28 f, from Glasgow, Scotland.
 
I have had chronic pain since Aug/Sept 2009 - started quite suddenly, and after three hospital stays within a month and loads of tests they took my gallbladder out by keyhole surgery. I have had every test, scan etc since then and its been put down to "nerve damage".
 
I have been on various pain killers, take pregabalin 300 morniig and night, but mostly its paracetamol+dyhydrocodeine (codydramol) that I have to take regularly to try to keep on top the pain rather than wait for it. sometimes take ibuprofen too. I have to say this has varied outcomes - sometimes it hits the pain other times it doenst really. I was on buprenorphine transdermal patches @10mg for a month or so but the specialist pain clinic advised my doctor against that so im now off them again. they did help tho and it was nice while it lasted. Mostly beside drugs, I use a hot water bottle, tho i do have a TENS too. But i think i like the comfort of the bottle better.
 
I also have depression, and am on duloxetine for this (which apparently hits nerve pain a bit). I just feel so low so often, and do cry. I really struggle emotionally to cope with the pain sometimes, and other times i just wish i could cry it out but no tears can come. I also admit to self harm sometimes in a bid to cope with feelings. (Sorry - now just ranting it out)
 
My one fear, well, sometimes i fear and othertimes i kind of wish it could happen - is that I have to go to A&E at hospital again. I say i fear it as i think the medics would read/listen to my history and say theres not accident or emergency so nothing they can do, but i also say i wish it sometiems as i just think they could give me morphine and that way id get a few hours total pain free.
 
SOrry to rant, just glad to find a place where i can do this. thanks iv youve read this far!!! xxx redface

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/26/2012 12:19 PM (GMT -6)   
Welcome aboard, glad you found HW. It's a great place to be, and the chronic pain community folks are a great source of help and comfort.

Sorry you are dealing with so much pain. Like you, mine has been diagnosed as severe chronic nerve damage, as the result of having faulty radiation done to me back in 2009, as the result of Prostate Cancer. Been on pain meds every since.

I hope you find other ways to help you through what you are dealing with. Finding the right doctor is most of the battle in my opinion. My oncologist is one of the rare ones, very compassionate and caring, and he's a certified pain specialist as well as being a great cancer doctor. Either the doctor or his nurse, call or e-mail me about every 2 weeks in-between visits, to make sure that I am ok, and to see if he needs to adjust any of my meds.

Please keep us reported on how you are doing, and please, ask all the quetions you need to ask. There is a lot of combined experience here, and folks love to help out each other.

My best to you,

David in South Carolina
Age: 59, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities

kembub
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/26/2012 12:24 PM (GMT -6)   
thank you! I see my doctor at the moment every two weeks to check in with her and she is good. i just sometimes find myself going in and not saying what i really want to say - maybe i should take a bit of paper in my hand so that i force myself to say it. I was there this morning and wanted to say stuff but didnt then walked out and felt bad.
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