Hello Starmoma, no you and no one else should have to go thru what we as cp patients go thru. Would they to a diabetic, oh , wait until the doctor comes back next week, we cant precAribe for you until we hear from your doctor. Of course not. I am sorry you are suffering, please start writing your local politicians first, then after them keep going up the ladder. I have had much success with this method. Suddenly they have time to listen and respond, this is after threats to write the local papers. I do no make idle threats, I move on these issues if I have not heard from whomever I have contacted.
We have to use the media the same way the people who want to regulate us do. I have found even with these politians, they have family members who suffer from cp.
Good luck and take care,
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson