I don't know where to start besides saying thank you to those of you strong enough to be there and speak about your experiences and really follow through with communicating some seriously difficult issues.
I am a new member, signed up today. I am fairly new to the RSD world, as my initial injury was only six months ago, and my actual diagnosis by my neurologist was only two weeks ago. I am thoroughly upset and confused and lost and appreciate any guidance.
Everything started on Nov. 11, 2011, when I tripped over my dog, and while falling, stepped on my left big toe with my right heel. Instead of just removing the heel from the toe and falling, I gracefully ripped the left foot out from under the right foot... felt a "pop" and silently cursed while hopping up and down, to not wake up my sleeping husband and daughter. Next day, went to ER... pain was moderate... ER DR gave me X-rays, which he took almost two hours with to tell me that I had a hairline fracture, but I need to see a podiatrist asap. Then, the wonderful DR put a fiberglass piece around the top of my foot (wet it and made it so tight I could not bend any part of my foot) and that's when the pain really hit. My husband was next to me, and when they put that piece of evil on my foot, my eyes started tearing uncontrollably, the pain went from a 2 to an 8.
I went to a podiatrist, who put me in an orthopoedic boot told me I had no fracture, and that my "pain was inconsistent with a fracture anyway" so he sent me for an MRI.
MRI was "unremarkable." minor contusion and small ganglionn cyst. He told me that it would heal on its own and to take the oxycodone for the pain.. barely cut through it...
January, started feeling relief, so I thought the "bone bruise" was healing... two weeks later, the evil night pain came back. My skin looks shiny, red/purple/blue/ spotty bruising, horrible swelling, I feel like a machine is inside my toe grinding my joint to dust... my throbbing and burning seems like a pleasant memory... so I go back to the doctor, who is totally unavailable until March 1.
Then, four months later, he says "your pain is inconsistent with your injuries (duh, you said that in December), You may have something called RSD"... finally reality.
Went for second opinion to orthopoedist. FInally got in with a neurologist, who diagnosed RSD without and EMG due to color/swelling/temperature difference/ shiny skin/..... Diagnosed at 5 1/2 month.
Pain is moderate at times, manageable during the day ( I don't usually end up in tears or choking at work)
Pain has spread from toe to entire foot. I can see something popping out of the bottom of my foot before the pain escalates.
My husband is maybe out of denial and on board?
I am going for Calmare treatment Monday, with hope of something.... Anyone have advice?
I am just lost and depressed. I am also completely unwilling to let this take over my life and I will not let this beat me. I will fight until the end and I will stand by anyone who needs an advocate.
Just looking to make contact.
Right now, I am on gabapentin. just started, so at 600 mg/day. DR has me doing a bone scan... pain is variable, mostly happens at night, and gets to the point that I feel like I am breaking apart on a sub-atomic level, but it is localized thus far to near the initial injury.
Any input is welcome.
Thanks for listening.