I am a 28yo male, new to the forum, who has been suffering from chronic abdominal and groin pain(particularly in the testicles), and chronic epididymitis for the past 4+ years due to a surgical mistake from an army doctor (he thinks). The doctors are not completely sure what the pain is caused from, but think it is some sort of nerve damage or entrapment. It has made life unbearable. I've lost my job and my ability to exercise, I have no hobbies anymore. I don't speak to people because everyone thought I was angry or mean since I have to speak through clenched teeth when I am able to speak. Every action that requires the use of the abdomen (so basically everything), and every bump or jar causes extreme pain. I had an SCS implanted two years ago, with two leads in the spinal column, which provides a little relief, but I am still taking Exalgo ER ,Nucynta, Flexeril, and using Lidoderm Patches just to be able to function at a minimal level. The pain has gotten so bad that it has made walking impossible for most of the day, and I am confined to a wheelchair for about
80% of the time. I use a cane or walker the rest of the time. My wife and I recently invested in a split king, Tempurpedic style, adjustable bed, which has raised my average nightly sleep (even using sleeping pills) from 2.5 hours to almost 4 hours per night. I thought that there was no hope for any added relief, as my last pain specialist (I recently requested yet another switch in doctors, and will start with a new one in a week) stated that I have taken every narcotic and was at the end of the line in terms of pain relief. However, reading through the forum, I see that some have found relief from an Intrathecal Pain Pump. I am thinking about
discussing this option with my new specialist. I looked it up and found some information using Google, but I have a few questions for those with experience with these devices.
1) If I am able to get an IP pump, will I have to give up my SCS? The SCS does provide some relief (even if it is only from a 10 to an 8 or 9 at times), and I don't want to give it up.
2) How useful has the pump been for you? I have a 1.5 year old daughter, and I would love to be able to play with her. I haven't been able to pick her up and hold her since she was around 12 pounds. Have you found that you are able to live a life that is closer to normal having the pump implanted?
3) I take a large amount of medication throughout the day. Has the pump allowed you to curb much of your oral medication use?
I would like to know if there is anything that anyone has found that helps their pain. I'm at the end of my rope. I've been on my current medical regiment since last June. However, either my pain has gotten worse, or my body is just getting too used to the medication, because I am now back to being unable to get out of bed at all some days, and spending all night awake crying, or screaming in my sleep (my wife says it's terrifying, but she doesn't want to wake me considering how little sleep I get). I recently read on the forum something about
a Butrans Patch. I haven't tried that. Would it work for someone who didn't get but a few hours worth of relief from the Fentanyl Patches?
So far, for the pain I've tried:
Shots directly to the groin
Shots in the spine
and over 15 others (including all oral narcotic pain relievers I could find listed online, and lyrica...)
Post Edited (LifeOPain) : 5/7/2012 4:56:33 AM (GMT-6)