New To Forum/ Where To Go Next To Help Pain

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LifeOPain
New Member


Date Joined May 2012
Total Posts : 3
   Posted 5/7/2012 5:43 AM (GMT -6)   
Hi,
I am a 28yo male, new to the forum, who has been suffering from chronic abdominal and groin pain(particularly in the testicles), and chronic epididymitis for the past 4+ years due to a surgical mistake from an army doctor (he thinks). The doctors are not completely sure what the pain is caused from, but think it is some sort of nerve damage or entrapment. It has made life unbearable. I've lost my job and my ability to exercise, I have no hobbies anymore. I don't speak to people because everyone thought I was angry or mean since I have to speak through clenched teeth when I am able to speak. Every action that requires the use of the abdomen (so basically everything), and every bump or jar causes extreme pain. I had an SCS implanted two years ago, with two leads in the spinal column, which provides a little relief, but I am still taking Exalgo ER ,Nucynta, Flexeril, and using Lidoderm Patches just to be able to function at a minimal level. The pain has gotten so bad that it has made walking impossible for most of the day, and I am confined to a wheelchair for about 80% of the time. I use a cane or walker the rest of the time. My wife and I recently invested in a split king, Tempurpedic style, adjustable bed, which has raised my average nightly sleep (even using sleeping pills) from 2.5 hours to almost 4 hours per night. I thought that there was no hope for any added relief, as my last pain specialist (I recently requested yet another switch in doctors, and will start with a new one in a week) stated that I have taken every narcotic and was at the end of the line in terms of pain relief. However, reading through the forum, I see that some have found relief from an Intrathecal Pain Pump. I am thinking about discussing this option with my new specialist. I looked it up and found some information using Google, but I have a few questions for those with experience with these devices.
1) If I am able to get an IP pump, will I have to give up my SCS? The SCS does provide some relief (even if it is only from a 10 to an 8 or 9 at times), and I don't want to give it up.
2) How useful has the pump been for you? I have a 1.5 year old daughter, and I would love to be able to play with her. I haven't been able to pick her up and hold her since she was around 12 pounds. Have you found that you are able to live a life that is closer to normal having the pump implanted?
3) I take a large amount of medication throughout the day. Has the pump allowed you to curb much of your oral medication use?

I would like to know if there is anything that anyone has found that helps their pain. I'm at the end of my rope. I've been on my current medical regiment since last June. However, either my pain has gotten worse, or my body is just getting too used to the medication, because I am now back to being unable to get out of bed at all some days, and spending all night awake crying, or screaming in my sleep (my wife says it's terrifying, but she doesn't want to wake me considering how little sleep I get). I recently read on the forum something about a Butrans Patch. I haven't tried that. Would it work for someone who didn't get but a few hours worth of relief from the Fentanyl Patches?
So far, for the pain I've tried:
Physical Therapy
Shots directly to the groin
Shots in the spine
Neurontin
Tramadol
Naproxen
Amitriptyline
Ocycodone
Vicadin
Percocet
Lortab
Oxycontin
Fentanyl Patches
Morphine
Robaxin
and over 15 others (including all oral narcotic pain relievers I could find listed online, and lyrica...)

Post Edited (LifeOPain) : 5/7/2012 4:56:33 AM (GMT-6)


CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/7/2012 11:17 AM (GMT -6)   
Hi LifeofPain, and welcome once again,

I'm sorry for your pain - especially at your young age (I'm 27) and with a young family.

I'd guess that there is certainly no harm in trying the Butrans patch. The Buprenorphine - although it's still a narcotic - does work differently to a lot of the other opioids. I've actually read a few studies recently suggesting that it may be more effective for neuropathic pain than many other opioids.

As to your other question - I did answer it when you asked before - but yes, you can certainly have a pump and SCS together. It can get a bit uncomfortable - I have a 40ml pump on the right side of my abdomen and my SCS on the left... I've had my SCS for six years and my pump for four years.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16794
   Posted 5/7/2012 12:20 PM (GMT -6)   
Hi Life and I too would like to welcome you to the forum. I am sorry you are having so much pain and not getting much relief. I see Laura answered your question about the SCS and a pump. I have a pump for back pain. Have you checked out Medtronics website? They have a wonderful information filled site that tells it all about pumps on what they can do, including a list of different dx's pumps will help. You can go to Medtronics.com and read the info. A trial and a pysch eval is done before a permanent implantation.

I had ran out of medications to take, either the side effects got me or full blown allergic reactions took place. The pump no doubt gives me much better quality of life over oral medications. You still have pain with a pump and at times use meds for BT pain, once with chronic pain you will always have pain. I have some limitations but nothing I wasn't already limited at doing anyway, so it really did not make much difference. If you have any specific questions please feel to ask. You may want to check out pumps in our search feature here at the forum.

Keep us posted on how you are doing. Take care...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum
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