New to healing well

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gachase21
New Member


Date Joined May 2012
Total Posts : 3
   Posted 5/8/2012 7:50 AM (GMT -6)   
Hello everyone, I'm new to healing well. I'm 38 years old, male. I came to this site looking for more info on m scs I've just had implanted. And general chronic pain info. I was injured about a year ago falling off a building landing head first on concrete. I was helicoptered to hospital, had a craineotomy. Broke a foot, bruised etc. I was leaking spine and brain fluid out of my ear, so they had to stick a needle in the base of my spine and drain it for 3 days. The only long term damage I had was facial paralysis and lost hearing in the right ear. I suffered no permanent brain damage. I am also back to work. This has been a work mans comp case, as the accident happened at work, and I've had no issues with getting anything covered. about 4-6 weeks after the hospital stay(about 2 week stay) I started having pain mainly sciatica in my left leg/hip area, down the hamstring to the knee, and the right leg in the calf. At first i was sent to a orthopedic doctor who thought I might have a strained hamstring, he sent me to physical therapy (also found I had a broke foot at that point), then did a mri and sent me to a pain management doctor who gave me steroid shots about 4 times. Still didn't work went to a neurosurgeon(very reputable in this area) who sent me for more mri's one with contrast. He concluded that I had Arachnoiditis, the scaring was caused from blood leaking in my spinal canal when I had the accident. I also had a arachnoid cyst. He stated that nothing surgical could be done and recommended trying a spine simulator. I did the physiological evaul and trial. I had the full implant about 4 weeks ago. I got the medtronics stimulator that has the new feature that can automatically adjust based on position. That part of the feature had not been activated yet, will be later this week.

I've read several post about the scs, many seemed negative. I was wondering if anyone has recently had this new technology put in and experiencing success with it. I want to try to work as hard as I can to make this treatment as successful as possible, from my understanding talking to some other patients, it has allot to do with the effort and persistence of the patient, and continuing contact and any adjustments needed with doctors and techs. If anyone has experiences with this and advice on the best ways to make it as successful as possible I would be glad to hear from you!

gachase21
New Member


Date Joined May 2012
Total Posts : 3
   Posted 5/8/2012 8:03 AM (GMT -6)   
Other thing I forgot to add as far as my condition, doesn't really apply to chronic pain however. I also had another procedure done earlier this year called a Hypoglossal-facial nerve interpositional-jump graft(12/7 nerve jump), where they cut the nerve that goes to the right side of my tongue and move it to connect to my face nerve. Apparently after about 6 months the nerve will connect and I will think about my tongue for my face to work, and help with the facial paralysis. I will require a few months of therapy to learn how to use it. If anybody has experiences with this also and has feedback on it, that will be welcomed also

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16278
   Posted 5/8/2012 8:32 AM (GMT -6)   
Hello Gachase and welcome to the chronic pain forum. What a story you have to tell as to how your accident happened. As bad as your injuries are I am sure things could have been a lot worse. Be as it may we all here have pain for one reason or another and understand that very well.

You are the first person to come here with the new type of SCS unit that does some self adjusting. It will be interesting to see how well it works for you. I had read about them not long ago and posted something here about them. From what I have understood from folks with these units that changing positions could cause a change in the unit and they ended up getting some pretty rank zaps from the unit. Hopefully a lot of this will be eliminated with this new kind.

Unfortunately, you are correct, the units have not been given rave reviews by the people that have come here with them implanted. There is a very broad range of problems with the units from not working at all, to working terrific for just a short time. I watched one member who had one go about four years with hers and was satisfied to later wanting the thing taken out, she just hated it. She was one person I would have never thought would have reached that point. She advocated highly here about them. I

I have watched many people here at the forum undergo the surgery to have them implanted. Each one had high hopes of getting their pain reduced and worked really hard towards that goal. Its really between the patient and the rep from the company because the drs are clueless about the units. Thats another situation that something needs to be done about too. The drs like to sell the patients on the idea of the units, but the drs are of no help when the patient runs into trouble.

It will be interesting to see how you like your unit with its new features and I hope you will keep us informed about it. I do not know if you have used the search feature here at the forum and read up on the units here from other members or not, but the search is at the top right.

Anyway, I wanted to pop on and tell you hello and welcome aboard. Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

gachase21
New Member


Date Joined May 2012
Total Posts : 3
   Posted 5/8/2012 9:22 AM (GMT -6)   
Thank you for reply< I will keep you up to date with how it goes about weekly, and yes, it could have been much much worse for me, I'm overall very happy with my condition and in general great health. I eat right and exercise daily. Thank you for support and comment

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16278
   Posted 5/8/2012 1:24 PM (GMT -6)   
Gachase, I wanted to add I admire your attitude and tenacity. It goes a very long way in any type of recovery. I also just read the part about the nerve and your tongue, wow. For what you have been through, it can be an eye opener for many. I try to remind myself daily there is always many others out there a lot worse off than I am.

I have a Medtronics pain pump that has been my friend for several years. It has improved my quality of life a great deal.

Keep us posted....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum
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