Grandma Rose please read this

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straydog
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   Posted 5/11/2012 8:04 AM (GMT -6)   
Hi Rose, its been a good week or so since we have heard from you. I know you were having some issues and I hope everything has started getting better for you.

If you feel up to it and have the time please update us on how you are doing....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
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   Posted 5/11/2012 8:52 AM (GMT -6)   
Oh Susie I like to spread good news and there just not seem to be any. I have made a Dr appt for Tuesday with my GP, I think something is wrong I should be getting better and I am going backwards. I have doubled my pain meds and that is not even touching this. I feel like my back is a constant spasm and if I get a good few minutes in a day I use those to walk because walking should be helping me.

I am so sorry I am not doing better and of course when I start to whine I get the well you should have rested more in the beginning, and this starts an argument because it was not my family that decided to show up for a surprise visit! I was so exhausted yesterday from the pain that I went to bed at 7:30 and was up at 6:00 this morning. The only place I get a break is in bed, I know I can not stay in there forever but I just do not know what to do anymore.

Thank you for your concern
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Acheybody
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   Posted 5/11/2012 9:00 AM (GMT -6)   
I'm so sorry, Rose. It's terribly frustrating and scary when you seem to be going backwards, as you say. I've felt that way at times with this recovery, too.

Glad you're seeing your doctor next week, anyway. Maybe this weekend will bring an improvement...I hope so.

Hugs, Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (with recent surgery), bulging disc L5-S1, other assorted spinal deterioration, scoliosis, Hashimoto's Thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres)

grandmaroses
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   Posted 5/11/2012 9:57 AM (GMT -6)   
Thank you, I feel like a babbling fool. I try to remember all the things I did just before all these spasms started and I was busy. I walked everyday for at least a mile, I did go shopping and purchased a case of pop for my hubby, could lifting that have caused this? I know as long as my pain is so bad I have a hard time balancing by glucose so my diabetes is out of whack and that also increases the pain in my right quadrant. I am about to loose my mind.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

CRPSpatient
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   Posted 5/11/2012 4:26 PM (GMT -6)   
Rose, I'm sorry things aren't going well. Hoping tha you find some improvement and relief soon.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

badreflux
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Total Posts : 74
   Posted 5/11/2012 5:12 PM (GMT -6)   
hi Rose I am new to the board so I don't know your whole story...but I know pain and I am like you my bed is my most comfertable place to get relief...I hope your appointment goes good on Tuesday

grandmaroses
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   Posted 5/11/2012 5:28 PM (GMT -6)   
Laura, thank you I am very disappointed in my progress however I am still in less pain then before the surgery.

badreflux I am recovering from spinal fusion L5 S1 and discectomy, surgery was Mar 26 and I was doing really well until recently. Thank you
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
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   Posted 5/11/2012 9:28 PM (GMT -6)   
Hi Rose, I am sorry that you are not doing so well. Well, you really need to avoid lifting for awhile and then not let it be much weight wise. Even though you have had surgery to correct your problem, this leaves you predispose to further injury if you are not careful in what you do. So, no more lifting cases of drinks, lol.

You know I really am thinking because you went so overboard when you came home, that you probably have really irritated things in there and have a lot of inflammation going on. Maybe if your dr thinks its just inflammation if he gave you a steroid to take for a few days, it may help you out.

I still am flabbergastered that company showed up at your house right after you got home. I would have ran them off and told them they really did come at a bad time. Some people just have no clue. If they had been there waiting on you and helping you it would have been different.

Try not to be so hard on yourself, I know you are going to bounce back just going to take some time for things to settle down I am sure. Let us know what your dr says next week. Hugs, Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
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   Posted 5/11/2012 9:50 PM (GMT -6)   
Thx again I will update.
Ps I. Do not complain about hubby's family because he rarely sees them I did contact them before my surgery and ask them to delay their visit due to my surgery but that was ignored.

I will be having hubby drive me to shop tomorrow, no more lifting soda hell I don't even drink it. Hubby wanted to know why I only buy 5 pounds of potatoes they cost more duh yep that's right honey tomorrow he can buy 20 pounds as long as he is cooking them too. I still cook dinner for him and his 2adult sons even though I can barely move. Something is going to happen soon.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
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Date Joined Feb 2003
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   Posted 5/11/2012 10:12 PM (GMT -6)   
Rose, that was so inconsiderate of them to come after you asked them to wait, wow. What is wrong with people any more you know.

I have this pump implanted so my lifting is restricted and every where I go someone has to do the lifting, I have even managed to get the produce guy to lift my potatoes, lol. I am going to share my grocery store trick when it comes to bagging my groceries. I tell who ever does the sacking that I live in an apt and have to go upstairs so bag my stuff very light. It works like a charm, lol. If I don't then they load up the bags. The other day they put 10 pounds of sugar in a bag and I had to make them separate the bags.

Take care..Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
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Date Joined Jan 2011
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   Posted 5/12/2012 12:12 PM (GMT -6)   
Susie thanks for sharing you shopping secret, I was feeling strong a couple of weeks ago and went shopping on my own and realized I would not be able to bring the groceries inside so I asked tha cashier if she would pack the bags light as I had just had surgery and could not lift yet, she was sweet and I felt good about that one.

I have been getting worse now for a week and it's like my back is in constant spasm, I can not get ahead of the pain. Hubby is going shopping for me today but if I am feeling up to it he wants to take me out for lunch. I really am not up to the trip so he will have to bring me take a way.

I am at a pain level 8 and I am still trying to walk for exercise, I just had a shower hoping the heat would help.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
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Date Joined Feb 2003
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   Posted 5/12/2012 12:30 PM (GMT -6)   
Rose do you not have any muscle relaxers to take? Please be sure to ask your PCP for some when you go in for your appt. That is something you probably will need from time to time. I have a messed up shoulder and have dropped so many sacks of groceries because they were too heavy. Believe me, I have no problem asking them to make my bags lighter, lol. I sure hope you get some answers from the dr, really concerned because you feel so bad....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Snowbunny21
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Date Joined Jan 2010
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   Posted 5/12/2012 12:35 PM (GMT -6)   
Hi Rose...

I agree that it sounds like you have just done too much, too fast after such a major surgery. This is where pain meds can trick us at times where we get a burst of energy...or think that if we feel "ok" at the moment then we go try to get things done...

But that type of surgery is so hard on our bodies/spine/muscles....So we absolutely have to follow the Dr.'s orders to a T...

I forget what medication you are on....but are you taking a muscle relaxer for those spasms?

I'm not sure why you are doing all the cooking...I would just tell the family that they are on their own for a while as well as have them cooking for you for a bit...

I'm wondering, and not in a negative way, but if you are the type that tells everyone.."It's ok...I'll do this"...or when the family was still coming against your will...to just say point blank to them, "I will be in the bedroom resting"....plain and simple...

Or the type that just is so nurturing to your family that you feel bad for not doing everything you did before...

So many women think we should just plug forward without saying anything...rocking the boat....but when it comes to our health we absolutely have to be a witch at times and stand up for ourselves.

Otherwise, it will cause you to be in even worse shape which then is just awful for everyone....

I would be sitting down with your husband and saying, "This is what I need right now...I need everyone to pitch in more, I have got to start resting so I can start geting better day by day but it's a long process"...

And I also can't remember if your husband has come with you to the Dr. appts. so he can hear it straight from them...

Anyway...I just want for you to start feeling better and not hurt yourself worse after the surgery:(....

Sending some gentle hugs...(( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

grandmaroses
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Date Joined Jan 2011
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   Posted 5/12/2012 9:38 PM (GMT -6)   
I spent the entire afternoon and evening resting, hubby brought me lunch and then cooked dinner as well.

I took an amytropoline because I do not have any flexerel or such and it kept me dozey.

My back hurts so very much and the spasms make me cry, so since my day has been so lovely my hubby decided to tell me tonight that he thinks the pain is all in my head and I should get a grip.

I am going to bed now so thank you again everyone for the kind words and support. Hopefully tomorrow will be better.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Snowbunny21
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   Posted 5/13/2012 11:06 AM (GMT -6)   
Rose...Glad to hear that your hubby is helping you:)

So it sounds like you don't have a prescription for a muscle relaxer? I would call first thing Monday morning and see if your Dr. will offer this. You mention that most of your pain is coming from muscle spasms so this would help immensely!!!

There is Flexeril, Robaxin, or Skelaxin to name a few...

Hopefully with Mother's Day, you are being well taken care of today as well!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

grandmaroses
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Date Joined Jan 2011
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   Posted 5/14/2012 2:22 PM (GMT -6)   
Hi still no change, spasms are making life less than a joy. I found an Ativan last night that helped me sleep last night. Tomorrow morning is my dr appt and I will ask for something.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Snowbunny21
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Date Joined Jan 2010
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   Posted 5/14/2012 3:14 PM (GMT -6)   
Keep us posted on your appt....

Out of curiosity...what do you mean by "found an Ativan"? Is this not a medication that you are prescribed recently by this Dr.?

As I mentioned...with there being a decent choice in muscle relaxers, hopefully your GP will prescribe something tomorrow and this can put a huge dent or even take away your spasms.
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

grandmaroses
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Date Joined Jan 2011
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   Posted 5/14/2012 8:33 PM (GMT -6)   
SB to ease your curiosity my dr gave me 20 Ativan pills because I was getting pretty scared before my surgery, with all the extra testing they needed me to do I was a basket case. He told me to use sparingly because they would knock me out. I thought I had taken them all but when I went through my pill bottles, looking for robaxit. I found A pill in the bottom of the bottle of Ativan.

I guess things are a little different here in Canada where medications are involved, I read on here people being drug tested and contracts and such. I don't keep medications that are no longer prescribed for me I turn them into pharmacy only because I have so many grandchildren I don't want to have a bunch of pills laying around. I will update tomorrow hopefully with good news
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
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   Posted 5/15/2012 5:10 AM (GMT -6)   
Rose, I hope the dr gives you good news and some muscle relaxers. I am glad you were able to get a little rest, it was sure needed. Take care...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Blessedx8
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Date Joined Aug 2008
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   Posted 5/15/2012 8:23 AM (GMT -6)   
Rose...

You didn't have to "explain" re: the Ativan thing, lol. I've "found" medication like that too. I think - especially those of us that have been on this chronic pain journey for awhile - know what we are doing... when we need medications.... and all that. Keeping Ativan around for times you need it is completely appropriate - that's what it is meant for!

Anyway... Look forward to hearing your update today.... Like Susie, I hope you get some muscle relaxers too. They really help me w/ my constant muscle spasms.

Praying your spasms are a little less today.... -- Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Snowbunny21
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   Posted 5/15/2012 8:51 AM (GMT -6)   
I was only asking as yes, in the US we have to be very careful about drug tests and taking medication. And I wouldn't have wanted you to get into trouble accidentally by taking a medicine that was prescribed previously. Not that you found it under the couch or something...LOL

I wasn't trying to infer that you were doing anything wrong....Just trying to help look out for you if you happen to be new to certain DRs. like PM's and chronic pain issues.

So...I hope that most people who know me on here and that my intentions are pure and of that to help...

Hope all goes well today and you come back with good news:)
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 5/15/2012 5:37 PM (GMT -6)   
SB I thought that is why you asked. Our rules are very different here.
I went to dr he gave me a prescription for flexeral 10mg, he also changed my l/a oxycodone to targin because I am needing little help with coNstipation again.

As an example only I had 80 20mg of long acting oxycodone to be picked up when I took the targin presciption to pharmacy they asked me if I wanted all of my previous script before setting me up with the targin which is oxycodone plus a laxative . I only posted the above comment to show how different things are in Canada.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Snowbunny21
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Date Joined Jan 2010
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   Posted 5/15/2012 5:45 PM (GMT -6)   
Thanks for the update! Glad he gave you a muscle relaxer..I use Flexeril right now myself. It makes me drowsy....so I try and take it when I am not going to drive. But it works really well on my muscle pain..

And that is good that they switched to the Targin...I use Miralax which is now OTC here....a few times a week for my constipation...

Also...thanks for explaining things about Canada..It is interesting to read about healthcare/PM works ifrom all our members in Canada, Europe and Australia...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16272
   Posted 5/15/2012 5:46 PM (GMT -6)   
Hi Rose, I am so glad to hear you got some muscle relaxers from your dr. I remember you saying before your were on Targin and it helped. Since I have no clue what Targin is other than for pain, what is it similar to here in the states as a pain med.

I sure hope in a day or so you start perking up and feel better, I have been concerned about you. ...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
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Date Joined Jan 2011
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   Posted 5/15/2012 6:32 PM (GMT -6)   
Thx SB and Susie, I just took my first one with dinner and I am a little tired but because I have spasming for so long it will take awhile for them to settle down.

I should ave never changed from targin but we have been pinching pennies and I thought I could handle it. My targin is 20 oxycodone and 10 mg of laxative, I had dr change it to 20 oxycodone and because we eat fairly healthy salads, ww, and I drink about 20 cups of water I thought I could just supplement it with an OTC laxative, my bad.

I swear i am my own worst enemy only I would decide to remove my daily laxative that actually works for an OTC laxative sure a great time to get constipated too with all those spasms.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol
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