Fibro Pain/Flare Like you wouldn't believe!!!

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Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 5/15/2012 4:54 PM (GMT -6)   
I am at the end of my wits with this pain today.
 
I thought it might be because of the rain yesterday.  But then it could be because my lyrica was reduced.  Or maybe the amount of emotional stress I have been under.  Or maybe the fact that I have been racing to one doctor's appointment and hospital appointment after the other.  This new bi pap machine has been driving me crazy. 
 
OK today I could cry.  I am hurting in my legs, hips and feet, my usual.  Additionally I am hurting in my arms, wrists and fingers too.  I am taking my pain meds every three and a half to four hours and have increased my lyrica back to where it almost was before I ran out of my pills and lost my prescription--yes my concentration is that bad.
 
Today I just sat on the edge of my bed and wanted to cry, but the tears would not come.  I feel so defeated.  To top it all off, my 72 year old brother is in surgery for an ischemic bowel and they will put in a colostomy and treat him for the infection he has.  He is going to ICU.  All this came on suddenly.
 
So, I thought I would come here to my friends and post my little rant and get it off my chest.  So, thanks for listening.  I am hoping my flare will settle down soon.  I have an appointment with my pain dr on Thursday , so maybe she will get my lyrica back up to where it was before.  I'm also taking some advil here and there to help with the inflammation I feel in my body.  It helps sometimes.
 
Please pray for me and for my brother too.  I think he needs all the prayers he can get.  His name is Charley.
 
God bless all my friends here at Healing Well.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

badreflux
Regular Member


Date Joined Aug 2010
Total Posts : 74
   Posted 5/15/2012 5:05 PM (GMT -6)   
I am praying for you and your brother ....pain sucks :-(

Fusiongirl
Veteran Member


Date Joined Apr 2012
Total Posts : 608
   Posted 5/15/2012 5:46 PM (GMT -6)   
Poor you. So much to deal with. So much to cope with. You are both in my thoughts and prayers. Bless you both.
Jane

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/15/2012 6:18 PM (GMT -6)   
Oh Linda I feel so bad for you, FM is hard enough to manage daily all the ups and downs. You and your brother Charley will be remembered in my evenin prayers.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 5/16/2012 9:11 AM (GMT -6)   
I seem to be in the middle of a fibro flare and my endometriosis is rearing its ugly pain as well.

I am praying for you and your brother. Are things looking and feeling a little bit better today?

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, endometriosis, history of adenomyosis with hysterectomy, ovarian remnant syndrome, IBS, SI dysfunction, arthritis, fibromyalgia, kidney stones, depression, and anxiety with panic attacks.

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/16/2012 11:24 AM (GMT -6)   
Thank you all for your sweet replies.  For those of you praying for my brother, Charley, thank you from the bottom of my heart.
 
Well, what happened with him was, his bowel ruptured right before surgery.  He even heard it.  They took him in and had to remove the entire colon and he has a permanent colostomy now.  But he almost didn't make it they say.  He was very unstable last night.  I spoke to the day nurse in ICU around noon today and she told me he had an excellent nurse named Scott last night.  I'm sure he saved his life.    His blood pressure is stable now and he is on a ventilator.  He is medically sedated and will remain that way for the day.  He is very very ill.  Please, please I beg of you to pray for him, for those of you that pray.  For all the others, please send positive thoughts his way and I will be grateful.
 
As for me and my pain, it is there as you all can imagine.  I am planning the 6 hour car trip on Friday to be with him and the family.  I am hoping he is off the ventilator by then.  I hope I can make the trip too.  Now with oxygen, I seem to be a mess. lol,  but I want to go.  So wish me luck.
 
God's blessings over you all.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/16/2012 3:09 PM (GMT -6)   
I wish you all the luck that you can go show your brother your support. I also hope your flare settles down, they always come at the wrong time. All the best

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/16/2012 4:27 PM (GMT -6)   
Hi Linda I'm so sorry that your Fibro is flaring so bad. I am also sorry about Charlie. I will be praying for both of you. I also pray that the flare lessens and that you're able to make the trip to be with your brother. How scary.

Take care and try to rest up.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 5/16/2012 5:05 PM (GMT -6)   
Oh Linda...I am so sorry to hear about your brother. I will definitely be putting him, and your family into my prayers.

I'm also sorry that you are in a flare right now. Stress, along with trying to get used to the Bi-Pap certainly can make the pain so much worse.

I hope you travel safe...I know that your focus is on your brother...but please take care of yourself as well.

Sending hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/17/2012 7:21 PM (GMT -6)   
Quick update,
My brother is doing well. He is stable and off the ventilator. He is awake and responding and talking. Thank you, God.
He has asked that I not come to see him now, so I will respect his wishes. I am very disappointed, but concentrating on the good news of his status.
My daughters have realized the stress I have been under and the disappointment of not being able to go see my brother, so my one daughter is watching the dogs for me and my husband and the other daughter has booked a mini two day vacation for us by the intra-coastal waterway in Jupiter, Florida. I have such a good family.
As for my pain, I went to my pain dr. today and she has written my script for the lyrica and my pain has improved slightly. I am trying at every corner to de stress. It's been hard these past few days, but my faith and my family and friends have supported me the whole way. I feel truly blessed.
Thank you, all of you, for your dear responses and for your comforting and special prayers for Charley and the family. God bless all of you from the bottom of my heart.
Lindaloo

Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/17/2012 8:46 PM (GMT -6)   
Glad to hear that your brother is doing better Linda.
Also good that you got your scripts from your pain doctor today.
I am sure the mini vacation will help you to de-stress. Enjoy your time away.
 
Suzane

Vander626
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/17/2012 8:51 PM (GMT -6)   
O Honey! I know just what u mean! Does your Lyrica usually help? Have u been seen by a pain specialist? They are the folks from whom I got the most help. I am glad that u got it out of your system and onto the net! It helps! I hope that you have a good support system. I have lived with this for a long time and know EXACTLY what u mean!!! Hang in there! yeah

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/17/2012 9:11 PM (GMT -6)   
So glad your brother is doing better many many Prayers for him and Prayers for you
too Linda....Hope the Lyrica continues to help you...healing hugz and thinking of you...
((((((((((Linda)))))))))))))
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/18/2012 6:37 PM (GMT -6)   
So glad Linda that your brother is improving him. My very best thoughts to him and to you that your flare settles quickly.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump
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