i can completely relate to your post, and i wish there were better answers for what ails you. you have to be in severe chronic pain, to even begin to understand even remotely what, we that do, have to live with every single day.
my situation is perm as well. i am dealing with cancer pain related to advanced prostate cancer. i am never going to get better, its only getting worse over time. most of my pain is severe nerve damage, and its unlikely that it will ever heal, due to how extensive it is.
the best advice i can give you, and the only advice i will give you, is to, never, ever, give up hope. no matter what. you just have to keep keeping own, despite how you are feeling, despite the pain. i honestly believe this, and it helps me make it from one day to the next.
my best to you, hope you see some signs of improvement and hope. i feel bad for you at your age in particular, as i am about to turn 60 and have lived a pretty full life
david in sc
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities