I hope it's not too late

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grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 5/19/2012 8:37 PM (GMT -6)   
I have quit doing housework, lunches, meals,. My dear hubby invited people over and I did not make sure the house was presentable, did not prep or cook dinner. I stopped doing laundry, stopped doing grocery shopping.

I told him I was going to stop because instead of me recuperating I was injuring myself everyday. Now I really hope its not too late, I have decreased the amount of walking I do because I m still having spasms but as they get fewer I will start walking more again, I have tried so hard to be superwoman but reality has stepped in.

Thank you for all the messages and well wishes, since I did not get any release info please feel free to give me advise.

pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 5/19/2012 9:11 PM (GMT -6)   
Dear Grandma, to me you are a breathe of air. I thought I was the only one who finely gave it all up. My husband does all grocery shopping. He takes his shirts to laundry. I do nothing if company is coming. I do have a house keeper on tuesdays who I just love. we put in a pool last fall so I could walk in water for exercise. Have been in twice, cold yet. I have almost given up driving. Unless I have a doc. appointment I dont leave my house. We live in the country and I use to keep and mow 3 acres of lawn weekly. We have a pond and some lovely woods. I have no need or desire to go do a thing. I know that its not good for depression, but I really dont have a choice. I am an antisocial person so its works out fine. My neuropathy is so bad I cant walk or stand very long. Im so happy that you are doing what is best for you. I did it and the world didnt end. We have power that we just werent using. Until lather......Cathy turn

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 5/19/2012 10:24 PM (GMT -6)   
Rose, I think you will get back to feeling good, its just going to be a long draw out process. When we overdo it just takes so much out of and we don't realize it till its too late. So, don't be so hard on yourself because you had the best of intentions. The sooner you can get back to your walking the better, but not a mile either, thats way too much.

Just keep taking care of you, all the other stuff can be done by others or it can wait. You are what is important here. Rose you may want to alternate using heat & cold packs too, that may help with the spasms.

Take care.....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 5/19/2012 10:49 PM (GMT -6)   
Rose,

I'm w/ Susie.... just keep taking care of you. I've done the "superwoman" thing WAY too many times - and ended up paying for it in the long run. Right now - you just need to take care of you and your needs to heal. Trust me - all the other stuff will be there and doesn't go away (unfortunately!).

Keep us posted on how you are doing.... Take care --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/20/2012 9:41 AM (GMT -6)   
Thank you for the support, I thought the more I could do was making me stronger but when everyone started expecting more and more. I am so hurting it feels like a fibro flare only way worse. I can not find a comfy position. The nurse at hospital told me not to sit on couch due to not enough support, I have been using my lift chair but it's not comfy either. I just got up and can't wait to go back to bed. I have to get stronger my 2 grandsons 7&11 are coming to spend the summer with me, they moved away last Sept.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 5/20/2012 9:56 AM (GMT -6)   
Rose even if you have to make the date back on their arrival do it, you need to be on your feet good before taking on two kids that age. I have a 7 yr old grandson that wears me out in one afternoon. You need to let the parents know now that you are having a lot of difficulty and they may have to change their arrival date because of your health. I feel quite certain if you discussed this with your dr he will tell you the same thing.

You just have to recuperate this time the right way there will not be many second chances, this is such an important time for and your future.

Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 5/20/2012 12:03 PM (GMT -6)   
I will not be up to much but the boys will jump on trampoline and grandpa is talking about setting the pool up again. My daughters both said they want the boys at their place for visits and they also have their other grandma here as well so I will get breaks.

Susie thank you for your concern I am totally shut down no more doing anything that will mess with my healing. Its very hard to get comfy, and my back gets cold and takes forever to warm up now. I though the cool would be nice because of the hot flashes but I was wrong.

Changing my position every 20 minutes is hard to do I sit in my lift chair and I go between sitting straight up to reclining. I go to my couch and lounge on each side for about 20 minutes and then I walk around and around my kitchen island. On nice weather days I walk around our cul de sac and then I rest again. Because my back feels so cold I use my hot water bottle to warm me.

Hubby is mowing the lawn today, he is also doing laundry. He makes bacon and eggs every Sunday so the kitchen is a mess. If the government would stop thinking they have medical degrees and would accept 2 dr letters saying I am disabled would just sign off on my medical disability I could afford to hire a cleaning service. but thats another rant.

Feels so good to have friends who care. everyone so far on hw have been supportive, I can not thank you enough for being here.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/20/2012 8:47 PM (GMT -6)   
Rose is there anyway for you to get a visiting physical therapusts?
Maybe call your surgeon, or pm doctor...at home easy physical therapt
should help yoy get back on track...many well wishes and keep us posted as
we do care, blessings
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/20/2012 9:21 PM (GMT -6)   
Chartreus I do not have any coverage for physio therapy but I am going to call the surgeons office tomorrow morning to see is I can get in earlier than mid June.
Tonight walking feels weird and my right leg has a cramp, it's hard describe the feelings going on inside my back and legs. I accomplished nothing today tried napping a couple of times.
Hubby invited the neighbour over for dinner tonight again he cooked she offered to do dishes he refused it saying he I'll do them tomorrow.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Fusiongirl
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Date Joined Apr 2012
Total Posts : 608
   Posted 5/21/2012 2:42 AM (GMT -6)   
Rose
I had spinal fusion surgey eighteen months ago. When I left hospital my instructions were absolutely no sitting, I was to be either lying down or standing. I was allowed to walk as I felt able but absolutely no overdoing it. I had to use a raised toilet seat. I was told to do no lifting or bending. The back was to be as straight as possible. Going up and down stairs was limited to once a day. That was the strict instructions for the first six weeks. Only after I had my first x Ray, and there was evidence of fusion taking place, was I allowed to begin to build up periods of sitting. Bending was still to be avoided to the three month stage. The aim was to keep the back as straight as possible.
Recovery was hard but it was worth it as I had a good result. Sometimes it seemed as it was never ending but you will get through this. It is hard when you are a normally active person to allow yourself to be waited on hand and foot but you have to allow yourself this 'luxury'. It is not for ever and if the shoe was on the other foot I am sure you would be telling your husband to be careful and not overdo it.
I am sure you will enjoy having your grandchildren and they will no doubt lift your spirits. The key is to accept that this visit you will not be the active granny you normally are. Kids are usually very accepting if the situation is explained to them.
For the time being try to relax, tension causes more pain, and allow yourself to heal. Other than the core back strengthening exercises, I was told to do no more in the first weeks, then seeing a good back physiotherapist would be a good idea. Try to get on top of the pain, not to be able to do more, just to be comfortable. If you want to ask me any questions fire away. I know everyone is different in their recovery so my situation might be very different to yours but I hope maybe you can see that you are doing OK. Your only mistake, I think, has been in overdoing it a little. Keep your chin up, you will get there.
Thinking of you
Jane

CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 5/21/2012 6:37 AM (GMT -6)   
Rose - I don't have any advice to give, but just wanted to offer my support and very best wishes.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 5/21/2012 11:16 AM (GMT -6)   
Rose, I am right there with you about needing the heat. Whenever we tried cold treatment with me the pain became worse, so we learned quick to leave it to using heat only. Now with the warm weather I have a lot of trouble using the air conditioner in my car, which in Tx you need it in a car. I usually run it with a window rolled down. The same thing in the house in the evenings I usually end up with pants on and a hoodie. I messed my shoulder up last spring and the cold absolutely causes it to throb like a tooth ache. I have always been hot natured, but I have Dilaudid in my pump which causes me to sweat something awful. In fact, it gets embarrassing because it can be 20 degrees outside I have sweat rolling off of my head. I had to give up trying to dry my hair with a hair dryer. One thing I will pass on to you about the heat, the dr told me not to use it continuously, he said to use it 20 minutes at a time then take it of for an hour before putting it back on. He said heat can cause the inflammation to kick up more, makes sense when you think about it.

Just keep your spirits up that you will get past this and back on your feet. I have the faith in you to get you there again. Take care...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/21/2012 5:04 PM (GMT -6)   
Thanks again everyone, I am having another bad day. The flexeril is barely working just making me sleepy. The spasms are here constantly, I will need to go back to Dr and get something else. The only time I have any comfort is lying down , walking is painful and I keep feeling like I am going to fall down. Pain is at a 8+ that's with pain meds.

LexiRae
Veteran Member


Date Joined May 2012
Total Posts : 828
   Posted 5/21/2012 5:20 PM (GMT -6)   
Have you been in yet to make sure you didn't do any damage during the time you were being so active? If not, then it probably wouldn't hurt to do that ASAP, and then ask for advice as to the no sitting/stairs/walking and everything else! Plus you may get some insight into what's causing your spasms and increased pain.

If you have been in to see someone...they didn't give you any instructions? That's ridiculous.

I hope tomorrow is a better day for you and that relief comes sooner rather than later!

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/21/2012 5:46 PM (GMT -6)   
I went to my GP last week and he sent me home with a prescription for flexeril again no advise other than take it easy, the week before I saw my pain management doctor who said go home rest and do nothing for 2 months. Our health care is certainly lacking there is no communication between dr and patient.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 5/21/2012 7:29 PM (GMT -6)   
Rose, I could not agree with you more. What really is disturbing is the drs not being totally upfront with patients when they have surgery. This is something that has been ongoing for many, many years. I always felt like if the drs told the patients how long they were really going to need to be of work to recuperate say from a lumbar fusion, many patients would not agree to the surgery because they cannot afford to be off that long financially. In many instances they may do physical work and cannot go back to it, they don't get told many things.

I know as patients we have a responsibility to ask questions but drs should be more informative than they are.

Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/21/2012 8:48 PM (GMT -6)   
I also think drs do not want to answer questions, I know mine don't. I will ask my GP a question and he gets all uppity asking me if I want someone else as a dr because he is not wasting his knowledge on trivial things. It is so hard to find a doctor here I don't want to loose the one I have.
Even when other doctors send him letters they tell me they have to word it differently for him. When I went last week he did ask me when I see the surgeon for follow up. On my home care sheet it says to see my GP unless my incision become red and infected then to see surgeon.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/22/2012 1:19 AM (GMT -6)   
Grandmaroses,

I'm sorry you had a bad day :( I've tried flexeril in the past - and I know it works well for some people - but, for me, I couldn't stay awake! It knocked me out. Hopefully, they will give you something else to try.

I'm sorry your GP has an attitude. To me, you should be able to ask him any question.... and have it answered. Nothing should be "trivial" to him when it's concerning your health! You are paying him for his expertise. I'm sorry - but doctors such as these drive me nuts..... I've seen plenty like him.

Please continue to take care of yourself.... it's so important. I know many of us are concerned for you....
Hugs, --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/22/2012 1:26 AM (GMT -6)   
Susie,

I'm so glad it's not just me re: the heat and sweating! I run really warm, too.... and the meds make me sweat like crazy (attractive....NOT, lol). We keep our home at 68 degrees - and it's expensive.... but I have to. But, yes, I sometimes have a light blanket on me too.

The sweating is so embarrassing.... but it's become something I just laugh off, because I can't help it. I feel like once I put makeup on - it just runs off.... same w/ my hair.... ahhh, the joys of CP.

Hugs.... Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

LexiRae
Veteran Member


Date Joined May 2012
Total Posts : 828
   Posted 5/23/2012 1:50 AM (GMT -6)   
So far the flexeril has been the least "sleep inducing" muscle relaxer I've tried. At first, it knocked me out just like all the rest, but then after a few weeks I got used to it and was able to stay away and function.

On all the rest I would fall asleep no matter how long I'd been on them!

Its so frustrating trying to coordinate all the meds; plus trying to maintain a quality of life; plus get things done; plus be a productive member of the family/society/your own life!

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/23/2012 9:30 AM (GMT -6)   
The flexeril is making me sleepy but it is working. I had a good couple of hours yesterday that was a treat.
I am struggling to find a comfortable spot to lounge, I have a lift chair but can only handle sitting in it for an hour, and it's not really sitting .
I feel so bad for my family, they do so much.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 5/23/2012 2:38 PM (GMT -6)   
Rose, awesome that the Flexeril is starting to do its job, now kick back and let it happen. Please do not put yourself on a guilt trip about your family pitching in and helping out. That is what families are suppose to do when someone gets in a pinch. I know for a fact that you go way beyond when it comes to doing things for your family, now its their turn to give back a little to you. I am sure its important to them for you to take care of yourself from this surgery so that they will have a healthier Rose, mother and grandmother versus one that was so wracked with pain that she was not able to do much. This recovery is not a life sentence, you hit a bump pretty hard in the road so its going to take some time to turn things around.

Hugs, Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 5/23/2012 3:42 PM (GMT -6)   
So glad to hear the Flexeril is doing it's job...I am also like Lexi in that it really doesn't make me too sleeply anymore. I agree with Stray...just let it do it's job and take a nice nap if you need and yes....let your family and friends help you...

I love to volunteer through my church...I love to be able to help my family or friends when they need me.

I bet many of us feel exactly the same. Something that I learned from my Pastor a few years ago was life changing for me.

He told me..."You know how good you feel inside when you are able to help someone else. It's not for recognition...It's just that wonderful feeling of love that you feel when you can make someone's life even a tiny bit better or easier. Well....if you never let people help you....you rob someone else of the opportunity to feel this way. Just smile....say thank you from your heart and give them a nice big hug"...

This hit me like a ton of bricks because I was someone who always tried to do it all. Would never ask for help....And then I realized that this is what makes the world go round...

I learned how to be humble enough to reach out for help and say that I can't do it all. I learned how to receive graciously...

As mentioned...the recovery process is a roller coaster...there are going to be good days and bad ones. The key is to pace yourself on the good days and rest and "give in" on the bad ones..

Sending you some hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 
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