Survivors....Monday!

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Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/20/2012 10:42 PM (GMT -6)   
Hey Chronic Pain Family.....

Another weekend is over and a new week is ahead.... time to check in and let us know how you are doing.... how you "survived" the weekend.... and what's up for the week ahead.

Hoping you all have the best week possible yeah

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/20/2012 10:49 PM (GMT -6)   
I've literally had a record 8 or 9 days in a row where I am "stable" - both physically and mentally. For me, that means I still have all the normal, "chronic" stuff.... but nothing that is putting me in bed, or the hospital, etc. It's been a long time - as in years - since I've been able to say that. Don't know how long it will last - but trying to think positively and be thankful for these days.

I've also been trying very hard to just pace myself and not overdo, just because I've had some good days. Very hard to do this, but absolutely necessary.

That being said, I've been able to do things in the last week w/ my family and friends that I haven't been able to do in a long while....

So, just being thankful for the good days and focusing on each day as it comes.... I also turn 39 at the end of the week.... my last year in my 30's, lol. I never really think about the age thing.... but it does seem strange that I'll be turning 40 next year!!

Love, Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

justanotherday
Regular Member


Date Joined Mar 2011
Total Posts : 179
   Posted 5/21/2012 6:45 AM (GMT -6)   
Its been hectic here for the last week.

I had an appointment last week with a surgeon. I go in on the 30th to have a 10cm by 16cm tumor removed thats sitting next to my spine. So I've been trying to get meals put together ahead of time and frozen so hubby can just pull them out and heat them up. The kids are grateful for that.

I had to cancel my next set of RF;s for next month. My insurance company is being a pain in the rear.

I have to take 3 of the kids back to the dentist on Wednesday. The youngest has a chipped tooth that needs to be fixed, the next to youngest needs 2 fillings and the oldest needs to have 2 fillings removed and refilled. Apparently their last dentist didn't get the fillings in tight and she's got moisture and bacteria underneath them.

We managed to get most our planters filled this weekend, still need to get the cukes and squashes into the big garden.

We're also working on painting the house. I've been banned from the ladder and painting anything over my head. Hubby doesn't want me giving myself a pain flare. So I've been sitting in a chair and painting the shutters that he's taken off the house. lol

The kids wanted to go to the ocean and fly kites this past weekend. Just not enough time or energy. So possibly next weekend we'll head down to Ft Williams.

Hope everyone has a great week!

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 926
   Posted 5/21/2012 8:30 AM (GMT -6)   
My wife and I had a difficult conversation about my pain on Saturday -- how every day when she gets home, she feels this weight upon her as she arrives -- how bad is my pain and what I will and won't be able to do that evening. But we had a good talk about it and the next day was a very good day together. Aside from that, the weekend was mostly filled with my preparing for a meeting later today, as I'm moving into a new project for the next six or so weeks.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg & 2-3x 10mg Hydrocodone daily. Oxycodone 10mg for BT. .25-.5mg xanax as needed for sleep, Verapamil 240mg SR (for tachycardia).

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 5/21/2012 3:05 PM (GMT -6)   
made it thru the weekend and my boy toys did too, (amazing) we took them to the low
cost vaccination clinic and they were all good lil boys except for the crying in the car, (4 boy kitty cats)

I had injections 2 weeks ago and I now have a bruise and some swelling on one side, the other side
is good, and I will talk about that with the doctor and my hubby felt me and thinks I have a mild fever,
Wednesday is my appointment day will talk about this then...

Hope everyone else is having a good day...I'm looking at getting an electric tea kettle the cuisinart tea
100 perfectemp looks nice...might spoil myself and get it...I do like tea and hot coca every so often...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

LexiRae
Veteran Member


Date Joined May 2012
Total Posts : 828
   Posted 5/21/2012 4:32 PM (GMT -6)   
I'm not going to mention last week....

I woke up early today thinking I would get stuff done, but about 30 mins after I woke up I started feeling really ill and have been getting sick randomly all day.

I have a lot to get done this week because on Saturday the 26th I'm leaving to spend a week in CT with my dad and that side of the family. So I'm praying that if I have to have another bad week let it be THIS week and not the next.

I'll be coming back on June 1st, and my 25th birthday is on June 2nd. Then my man has his 30th birthday on June 8th. Tons to plan for, and so little room for sickness or pain!

Here's to hoping and crossing my fingers that I and everyone else here has a bearable and productive (and maybe even happy) week!

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 5/21/2012 10:23 PM (GMT -6)   
Sorry I've not been around here for a while- have quite a bit going on at the moment. My weekend was OK- all I did was homework. Pain wasn't too bad, but still enough to make it difficult to do homework. Oh well. This week I will be studying like crazy as midterms are at the end of this week. Have an appt with my Psychiatrist on Wednesday to talk to him about going off of Paxil- I've been on it for 9 years and need his help to wean me off it it. That's about it with me, my life is pretty boring ;)
Hope everyone has a good week!
Current: DDD L4-S1, Arthritis L3-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/21/2012 11:56 PM (GMT -6)   
I've said this before.... but I enjoy hearing how everyone is doing..... thanks to those for checking in.

I, too, hope everyone has a decent week. :) --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

PainIsARealBummer
Regular Member


Date Joined May 2012
Total Posts : 30
   Posted 5/22/2012 1:17 AM (GMT -6)   
I'm new and you guys don't know me that well but thank you for caring.

I hard a hard well to say very bad Wed and Thu but God blessed me when my Doctor called me back and changed my medications back to Opana ER after testing and finding out that the Nucynta ER trial did not work for me.

So thankfully my weekend got better and not that I'm getting the Opana ER back in my system I still hurt but I can at least look at my PC next to my bed and type a few words minus the tears and having to tell my self it will pass and everything will be OK and work out in time.

God bless you all

PainIsARealBummer
Regular Member


Date Joined May 2012
Total Posts : 30
   Posted 5/22/2012 1:17 AM (GMT -6)   
love your quote Chartreux

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/22/2012 2:47 AM (GMT -6)   
The weekend was fine...as weekends go.  Pain levels just won't get where I want them.  My main concern is hubby.  He's really very sick and until last evening, wouldn't even talk about it.  He's having horrible bouts of vomiting and terrible stomach problems.  I finally got him to talk (just a little bit) last night and he has agreed completely to go to the DR as soon as I can get him in.  I'm thinking the gastro, since she is by far the best.  He has his own issues that I do not wish to discuss, but the gastro and I are friends as well as dr/patient and she was going to work on that issue too the next time she saw him.....of course, he has put it off as long as humanly possible....to the point they won't do any refills on his meds until he sees her (but somehow he has some old meds left over from me filling a day or two early).  He has a bizarre condition where he has to take singular to keep the strictures from forming in his esophogus....like many, many of them in a row.  Singular is the only thing that works....He also takes Dexilant, but nothing else in the meds department.
 
So in a few hours I go in for trigger point injections.  I have a little time for my meds to get into my system so I can have something to numb the overall pain of the injections (I'm sure I'll get 30-45 or so) and it takes its toll after a few.  You guys know how it is.  He has to be there as a driver (and then we are hunting his gastro).  I'm sure I can get him in with her if I can only find her for a few minutes and get to talk to her.  i'll do everything I can for him!  I'm afraid he either has to have his gallbladder out, has pancreititis (sp) or is having some sort of liver problem.  He thinks it is just an ulcer.  I'm really afraid for him.....this was bound to happen some day.
 
Anyway...wish us luck today and I will wish everyone a pain free week to come.
 
I enjoy the Monday check-in's because it gives us a chance to see how our friends are actually doing.  I love the new members, but it is difficult to keep up with all the new people (and yes...I was new once too and very happy for the welcome and the support).  If I fail to say hello to a newbie or even an old friend, please forgive another person in pain, who loves each of you as her own family and finds many hours of pleasure when someone here has a good day.
 
 

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/22/2012 9:07 AM (GMT -6)   
Painisarealbummer,

I'm so glad your meds got changed... and I really hope the Opana helps you.

Keep posting.... look forward to getting to know you better.

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask
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