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Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/21/2012 3:17 AM (GMT -6)   
     Well, i made it home from having another surgery. Too be exact it was my 16th surgery, different locations overall. It definitely is wearing me down physically, mentally, emotionally. i get so tired & overwhelmed by all the chronic daily pain that never seems 2 ease up. Sorry i'm complaining, just thought y'all understand all 2 well.
     Within a month my tests showed that if i trip or fall, or even try physical therapy, or see a chiropractor...just popping my neck in a certain way could paralyze me. Boy did that wake me & scared me in just 2 seconds. Then 4-days ago my neurosurgeon performed the neck/spinal surgery. it took 4-5 hours long. They totally went longer than expected. Once they finished, adding a drainage tube stitched & glued it closed & bandages on...i started excessively bleeding thru, so they had 2 open me back up & figure out what was causing the bleeding & close me back up again...ugh. Now just another long healing process & another summer not being able 2 golf. it certainly does not help mental/emotions 2 deal with as well.
     Thanx for letting me vent & i wish all of U the best in healing & healthy living.
Ur Healingwell Friend,
Serenitee

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/21/2012 5:34 AM (GMT -6)   
Serenitee, you've been through the mill - gentle hugs, and sending many healing vibes.

Rest up, and I hope that you heal well.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16294
   Posted 5/21/2012 9:12 AM (GMT -6)   
Serenitee, wow thats a lot no wonder you needed to vent. Take good care of yourself and be kind to your body, its has been through a lot trauma. Perhaps this surgery will heal quicker than you think right now. Keep us posted on how you are doing....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/21/2012 7:20 PM (GMT -6)   
Laura & Susie, Thank U for Ur words of encouragement i definitely needed it. i noticed i hadn't even stated what this surgery was...Lol
They went in thru the anterior (front) side of my neck. They operated on
C-4/5, C-5/6, C-6/7...Extra plates, pins, screws, and 3 or 4-cadaver bones for fusion. Oh, and i was very surprised when i was discharged that they gave me the information from the Donor's family that donated these bones for me to contact them if i want too. What a blessing from what this family did.
P.S. I know a lot of people have had this surgery so my thoughts and prayers go out 2 any and all of us greatful patients.
Your Healingwell Friend,
Serenitee
Bipolar 2/ Borderline, Anxiety/Panic-Disorder, Major Depression, DDA-Dual Diagnosis...Recovering Addict/Alcoholic. 9 years-clean from Meth and 353-days sober.
Lamicatal, Buspar, Gabapentin, Vistaril, Trazadone

Loop ileostomy, Pelvic & Bladder Trauma & Dysfunction, Colon tore thru Vaginal Wall & Colon & Bladder fell out of my body thru Vagina, Vaginal Vault Lift w/mesh, 2-Bladder Lifts w/mesh,

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 5/21/2012 7:52 PM (GMT -6)   
My goodness Serenitee you have gone through so much. I just popped in to say I wish you the best. How nice it must be to be able to thank the family who donated for you.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/22/2012 12:09 AM (GMT -6)   
Serenitee,

Never apologize for "complaining", lol... that's what we are all here for.... to share the ups and downs. I would feel the exact same way you do.... all of these issues wear me down, too - physically, mentally, etc. And 16 surgeries is just so much for one person.....

I'm praying for healing for you.... not just physically but in all ways. Your body has been through so much. Please take it easy.... and let us support you while you are healing.

Take care of yourself..... and keep us updated. --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

PainIsARealBummer
Regular Member


Date Joined May 2012
Total Posts : 30
   Posted 5/22/2012 1:05 AM (GMT -6)   
I have already learned everyone on this forum does understand and vent all you want or need to God knows I understand chronic pain dealing with it everyday and already included you in my prayers.


Keep your head up high and stay strong I know it's hard but it does help me to focus on good things and everything God has blessed me with like my family. I find my self in pain thinking how I don't like this or that and when this happens I instantly correct my self and make my self think of good things or the blessings God has given me like my family. It's hard but I know you can do it I do and have found with time and correcting my thoughts and anger of why me over time it does help you change your focus from the pain more which help greatly.

I found sometimes when my medications do not help and the pain is so great the my best medication is my inner self and some times you have to tell your heart it's going to be OK and you will get though this.

Finding things to be thankful for is better than worrying about what could happen. They told my dad he would only live six months he said what do they know and lived another four years. I use a cane and can barely walk and over 98% of the time in bed do to my pain but I'm thankful I can walk and I got to spend the extra years with my dad and will never let my pain take control to the point I cheat my loved ones the time to know me or cheat my self the chance to know my grandchildren the change to know grandpa even if it has to me in a bed in pain.. Some times finding little things like that as a blessing helps.

Focus on golfing and all the good times have had golfing.

Don't worry about what others tell you or say you can't do. You want to Golf picture your self on that green as much as you can especially when the pain is the worse and tell your heart I will be on that course soon. Because, If there is the will and you believe God will find the way we may not know when or how but that's one of the wonderful mystery's of life.

People seem me struggling to walk and say I hope you feel better seem. I just tell them it will be OK some day I will be running again.

Don't give up or give in to pain. You can tell me all day I don't understand I give you my word I do understand for five years and over 16 pills a day and a nerve MyStim pain unit reminds me every second but I remind my self I will win this fight and pain may make me suffer and hurt my body but it can not damage my will or soul unless I let it because God will keep me safe no matter the trials I endure.

Tomorrow maybe a bad day and I have to fight harder but it only makes my soul stronger by not giving in.

Stay strong and God bless you...

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/22/2012 8:58 AM (GMT -6)   
Sure sending you many prayers and well wishes for a very good recovery...and wow what a great thing that
family did in their donating tis for you...if it was me, I'd contact them but only after your mended up, for now you need
to rest and just take it easy as possible do not hurry back to things...again Prayers and well wishes...
wishing the best for you...now rest up you just had major surgery, rest...and give your body time to mend...
posts back when your rested up....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16294
   Posted 5/22/2012 4:18 PM (GMT -6)   
Serenitee, I know you have had prior surgery and know the ropes as good as the next one. However, lol, you mentioned being upset over missing out on playing golf because of your recovery. I do hope that your will wait quite a long time before picking up another golf club. I have seen far too many people pick up the clubs, or the tennis rackets way too soon after this kind of surgery and paid for it dearly. I am talking from being pain free to the pain being as severe as it was before they had their surgery and the setback knocked then so far backwards it really did look like they were not going to get any better. I sure would not want to see this happen to you.

Take care and keep us posted on how you are doing......Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 5/22/2012 9:02 PM (GMT -6)   
I feel so blessed that i have every single one of U. And i do truly mean that. i am also here for U anytime as well. I feel for everyone on this sight & what a blessing to have found this sight. I loved the great ideas y'all gave me & i will definitely try them. In regards 2 golfing...

Painisarealbummer...i loved the visually picturing myself golfing, what a great idea this is.

Straydog...Thanx for telling me about people U have known that picked up early 2 do activities that they physically shouldn't have done early. "Yes" i will definitely honor this advice & follow my doctors directions. i know this is a long recovering process but am oing 2 do everything that is asked of me. i figure instead of golfing, i can spend time with my girls going 2 parks & feeding ducks. My girls also love the library wich is also on a beautiful park, paths, water, fountains & more ducks...Lol So this will completely give me a lot of time 2 enjoy reading with them in gorgeous settings.

i owe y'all a great big hug cuz i wouldn't have thought of these ideas without U. Love 2 all....
Serenitee
Healingwell for everyone
Bipolar 2/ Borderline, Anxiety/Panic-Disorder, Major Depression, DDA-Dual Diagnosis...Recovering Addict/Alcoholic. 9 years-clean from Meth and 353-days sober.
Lamicatal, Buspar, Gabapentin, Vistaril, Trazadone

Loop ileostomy, Pelvic & Bladder Trauma & Dysfunction, Colon tore thru Vaginal Wall & Colon & Bladder fell out of my body thru Vagina, Vaginal Vault Lift w/mesh, 2-Bladder Lifts w/mesh,

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16294
   Posted 5/23/2012 8:05 AM (GMT -6)   
I think going to the park and library with your girls is a wonderful idea and it gets you out of the house which we need. One of my favorites at this time of year is to hit the farmers markets and find some good fresh veggies & fruit. I hope to find some this weekend, thought I would do a google search for my city.

I think sitting back imaging yourself out there on the golf course is an excellent idea. My son is a golfer and so is my 7 yr old grandson. We have already found him a golf camp to go to this summer. He went last year and loved it. His mom is lining up different activities for him for the summer we have to keep him busy or its trouble, lol.

Take care and keep us posted on how you are doing...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 5/24/2012 4:28 AM (GMT -6)   
When I had my fusions I was given the donor information also so I could send a letter of appreciation. They didn't give me their names, just a code but I did write a note to them letting them know how much I appreciated this gift and how it has improved my quality of life. I hope you take the time to do this!

Good Luck with your recovery. I've had lumbar & cervical fusions and yes listen to your doctor & follow all limitations, this will make your healing process go much smoother.
---Jag---


DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, herniated disc at L-2/3 , fibromyalgia, polymyalgia rheumatica

Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 5/24/2012 4:34 AM (GMT -6)   
It sounds like you have definitely earned some venting time! I hope your recovery time isn't too horrid but definitely follow your doctor's orders to the letter. Sending you good thoughts :)

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/24/2012 8:30 AM (GMT -6)   
Dear Serenitee
You have been thru so much. I wish you a speedy recovery and that it goes smoothly for you. Take it easy and be kind to yourself. Listen to your body.
Sending you prayers
 
with healing compassion,
Suzane
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