Posted 5/22/2012 8:14 PM (GMT -7)
Hi Gary, and welcome to you - and your wife. I'm sorry that she is having so many problems with her stim... When they work well they give wonderful relief, but when they cause problems they can be a real nightmare.
The burning pain she is getting - the first thing that springs to mind for me, just from my own experience, is that there may be current leakage from her lead stimulating the nerves to that area and causing the pain. This has happened to me more than once with lead migration. You mentioned attempts to reprogram - but has her Medtronics tech run a diagnostic check on her lead? Has her doctor done any imaging since this rectal pain started?
They can work with one lead - I only had one lead to begin with (and my original unit only had the capacity to take one lead) but it's my feeling that doctors should be implanting units with the capacity for more than one - when I needed a second lead, I also had to have my battery replaced so that I could have that second lead put in. I guess it depends on each individual problem though. That said... Is that the reason why the doctor wasn't able to implant a second lead? I know my doctor recently wanted to adjust my leads to try to get my stim working better for me (mine has caused intense back pain since I fractured my spine last year - due to tissue sensitisation and a little current leakage) and decided just before surgery that he wouldn't be ale to either move the current leads or get a new one in because of the risks.
If I can be of any help, please ask. And I hope your wife finds some relief soon.
Moderator - Chronic Pain Forum
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.
Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump