Update on my flare and my brother. Charley, still in ICU

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Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/24/2012 9:47 PM (GMT -6)   
I recently posted that I was in a bad fibromyalgia flare and also that my brother, Charley was in ICU after emergency surgery to remove his colon.
 
Charley is still in ICU, but is progressing and is out of bed to a chair and is tolerating it for two to three hours a day.  Yesterday was his first day out of bed.  He had the surgery last tuesday (a week ago) after his bowel perforated and they went in and removed his entire large intestine.  He was on a respirator and was in bad shape.
 
Today, he was introduced to his first meal, a roast beef dinner, and enjoyed it very much I am told.  Of course, he is off the respirator and is breathing on his own, but continues to have fluid in his lungs. I should mention again that he has a permanent colostomy bag now too, but I am happy to report that he is doing well.  I pray that soon he will be out of ICU and perhaps I will be able to talk to him myself.
 
As you may recall, I was going to go see him, but my sister in law begged me not to, saying that my brother was agitated to hear I was going to make the trip and she said that he didn't want me there.  I was so upset to hear this and immediately got depressed.  So my daughter Jill, booked a two day vacation in Jupiter, Florida along the intercoastal waterway to get away and enjoy some sun.  My husband and I went and we had a lovely time together.  It was just what the doctor ordered and I was getting updates on my brother via my niece through my daughter.  The news was good, so I was able to enjoy myself.  There was a jaccuzi in the room we had, so that daily soaking was the perfect ticket to my aching fibromyalgia muscles, I tell you!!
 
So, I am back now, feeling better and hearing that Charley is doing better helps my state of mind too.  I went to Tampa today for my oncology surgeon's examinatrion.  All is well and I'm doing well.  He did reiterate that if the cancer returns, there is not much they can do for me, which put my husband into a depressive tailspin.  I am now trying to hold him up and telling him that I am going to be ok.  Please continue to pray for my family, my friends.  I will let you know how things go as time passes.
 
God bless you all for your interest and your prayers.  I feel all the positive energy coming my way and I do thank you from the bottom of my heart.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

badreflux
Regular Member


Date Joined Aug 2010
Total Posts : 74
   Posted 5/24/2012 11:40 PM (GMT -6)   
I am glad your brother is doung better my gosh what an ordeal....sounds like a very nice trip you were able to take good for you ...I am new so don't know what cancer you had but I sure hope it dosent come back I can imagine how scared your hubby and you were to hear your doctor say what he did wow :-(...super hugs

gangsterkathryn
Regular Member


Date Joined May 2012
Total Posts : 44
   Posted 5/25/2012 11:44 AM (GMT -6)   
Your family is in my thoughts and prayers! I hope your brother can come out of ICU soon!

I am glad you're doing better and enjoyed lovely Palm Beach County! I actually live in western Palm Beach County, about an hour from where you were! I love Jupiter, it is gorgeous! Did you leave the hotel at all while you were here?
Kathryn - 22 years old.
Mommy to Baby Scott - May 18th, 2011.

Accidents: Jan. and Oct. 2008, Nov. 2009.
Surgeries: Eye - 1995, Lumbar Laminectomy L4-5 - Feb. 2008, Cesarean Section - May 2011 and Gallbladder Removal - June 2011.
Current Medication: Generic Fentanyl 50 mcg/h patch every 72 hours (feels ineffective after 48), Meloxicam 15mg once a day and Generic Tylenol for breakthrough.

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/25/2012 12:56 PM (GMT -6)   
Thank you for your replies. I appreciate your lovely concern

Yes, we did leave the room but only to eat. With that jaccuzi in the room, I was happy to stay and the heated pool was steps from my door too. So we were comfy in our little room by the intercoastal. The boats going by was so restful to watch.

I had endometrial cancer and the kind I had was a particularly aggressive kind. I have an 80% chance of full recovery, but the drs say, if I am unlucky and it comes back, there is nothing they can do for me.

I first had a D&C and the dr. said all looks good. Then a week later, after the pathology report came back, the dr called me at home on a Monday night and said you have cancer and need treatment. So I went to an oncology gyn specialist surgeon and he did a total hysterectomy and came back and said all looks good. Then a week later I got a call that the "washings were positive for cancer". So I went through chemotherapy, lost the hair and the whole bit. Then I went for external radiation , then for internal radiation and now I am being followed every three months by my surgeon and also by my local oncologist that did the chemo. Yes, it has been an ordeal, but through it all I have had my hubby of 43 years by my side. I've also had my two wonderful daughters and two wonderful granddaughters. I am truly blessed.

As for Charley, he continues to improve, I am awaiting an update from the family. Please keep him in your prayers, please, please please.

God bless and thanks again for caring. It means a lot to me.

Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 5/25/2012 4:22 PM (GMT -6)   
Many Prayers arebein sent, and thanks for the update, it's ever so
important to keep positive. Keep us posted many well wish and Prayers.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 5/25/2012 5:53 PM (GMT -6)   
Hi Linda What good news that the cancer is still gone. It's good to hear that your brother is improving. I will keep your family in my prayers.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/25/2012 9:32 PM (GMT -6)   
Glad to hear your news Linda. Thinking of you.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/26/2012 12:55 PM (GMT -6)   
GREAT NEWS!!
 
Guess who called me today??  My brother, Charley!!  And he sounds wonderful!  He was even joking with me.  I am sooooooooooo relieved.
 
The only worry I have now is that his heart rate continues to drop down into the forties.  I'm wondering if he is going to need a pacemaker.  But even if it comes to that, it is minor compared to what he has been through.  I will continue to pray for him and I ask you, my friends, to continue to pray for my brother.  He really is a wonderful person.  He is a real gentleman and has a great sense of humor.  I bet that anyone who meets him, likes him right away.  He is very easy going too.  Oh, I was so happy to hear his voice.  You just don't know.  I started to cry, but it was a happy cry.
 
Thank you everyone for helping me through this rough time.  It looks like he is going to make it now and I am so greatful.  I will be happy to hear when he is completely out of ICU.  That will be a red letter day too.
 
God bless you all.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/27/2012 8:46 PM (GMT -6)   
Glad to hear he is doing so well Linda. Wishing you both better days ahead.

Suzane
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