Is there anyone that has my condition?

I would love to hear from someone dealing with the same thing I am. Thank you
3
Chronic Pain From muscle spasm. - 75.0%
1
Cervical Dystonia - 25.0%

 
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presly02
New Member


Date Joined May 2012
Total Posts : 3
   Posted 5/29/2012 9:31 AM (GMT -6)   
I have cervical dystonia, chronic myofacia pain and 3 buldging disc 2 are herniated. It took 3 years to get botov shots approved for spasmn in my neck and shouder thru workmans comp. I had my first one 12 days ago and no relieve, pretty discouraged right now. Is there antone who knows how long it will take to get relief? I am scheduled to get a epidural in 3 weeks. hopefully that will help.

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 5/29/2012 2:03 PM (GMT -6)   
All I can tell you is that there are several different types of injections available that may help. Some involve injecting different sites and others involve injecting different medicines.

It is not uncommon for it to take a few days to know if an injection is going to work as it is also not uncommon for the injection to irritate and inflame the area temporarily which sometimes can cause an increase in pain.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/29/2012 6:14 PM (GMT -6)   
Hi Presly and welcome here. I have had dystonia in my legs and feet for several years now, secondary to Complex Regional Pain Syndrome. My feet and ankles are permanently twisted because of contraction of my calf muscles. More recently it seems to be becoming more generalised and I have dystonic 'attacks' where my whole body is rigid or twitching or has tremors - sometimes for several hours.

As far as botox injections go - I didn't have good results with it, but I certainly noticed a change within about 3 days. The maximum effect usually occurs within 7-10 days, and then wears off again over 3-6 months. It may be too that they just didn't use enough, or didn't get into the right muscle groups

Are you on any oral muscle relaxants?

Best of luck with the epidural

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 5/29/2012 10:22 PM (GMT -6)   
Hi Presly, i wanted to welcome you aboard, glad you found us but sorry you are having so many issues and so much pain.
Laura gave you good info regarding the botox. I believe i have read that you may need a series of three sessions of botox inj. Where are they injecting.
I suffer with continuous severe headaches and tmd, tried the botox injections but it did not help my pain.
Sure hope you get some relief soon.
Let us know how the epidural goes.

Suzane

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 5/30/2012 8:20 AM (GMT -6)   
Hey there! Sorry that you're in so much pain and dealing with these issues, but I am glad you joined us on the site and have shared some of your story with us.

I have several issues with my back, but I also have muscle spasms in my lower and left back due to having scoliosis. I take oral relaxants (Robaxin) for it, as well as Naproxen for inflammation. I'm assuming my problems aren't as severe as yours are, but I personally did get help with oral relaxants and pain medication in conjunction with physical therapy. The physical therapy helped me to ease the pain from the muscle knots that I got from the spasms, and just the general pain. They used hot compresses on me as well and that helped over time.

I hope you find some relief! Keep us informed! :)
--Patrick, aka Misterkatamari

I'm active on several boards. Main issues are: Chronic Pain due to Scoliosis & 2 Herniated Discs, possible DDD and arthritic facet joints. Also active in the Depression/Anxiety boards. Meds include: Prozac 40mg, Xanax .5 mg, Tramadol 50mg

“We must let go of the life we have planned, so as to accept the one that is waiting for us.” - Joseph Campbell

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16388
   Posted 5/30/2012 9:02 AM (GMT -6)   
Hi Presly and welcome to the chronic pain forum. I am sorry to hear that the Botox was of no help. My neighbor did the Botox for this same condition and it really helped her a lot. When do you see the dr again to discuss the Botox injection?

Try not to get too discouraged, it just reminds us that what may help one person may do nothing for another person. Maybe the epidural with be the one that gives you relief. It seems with the injections it can be either a hit or a miss on whether they work or not, everyone is so different.

Anyway, I wanted to pop on and tell you hello and welcome aboard. Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 5/31/2012 12:46 PM (GMT -6)   
I'm so very sorry I know you are in pain. I always say no one gets it until they are where we are. The headaches, no appetite, side effects of medicine & what I miss the most is sleeping more than 2 hours a day. (If I'm lucky) One thing my pain management doctor told me (7 years ago) it may take a long time to find the right combo to work- hang in there. And I started with Norco, I am now on a pain pump with dilaudid & I take dilaudid orally as well. Addressing the injections- I have met some people in the waiting room who went years with success from them. I only had a few months at a time & never any "real" pain free days. And I have even had trigger injections, I am actually scheduled Saturday to have kind of similar to an epidural done (I have a lot of pain in my tail bone- sitting, etc.) though my issues are everything from my neck to my tail. (same as you- herniated, bulging, even a few breaks, muscle spasms, etc.) Just hang in there.... Unfortunately this crusade the government is on about pain medication is making things even more complicated for those of us who really need it. And usually my drs. do the injections in sets of 3 (one week apart) so don't be suprised if they ask you to do that. There is a medication, I can't remember the name they can inject into those shots to help numb (like I'm having done) areas that bother you. Good luck!

presly02
New Member


Date Joined May 2012
Total Posts : 3
   Posted 6/2/2012 8:52 PM (GMT -6)   
Thank's to all, You gave me a lot of info. Really do appreciate your replies. Good Luck to all!
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