Hi Presly and welcome here. I have had dystonia in my legs and feet for several years now, secondary to Complex Regional Pain Syndrome. My feet and ankles are permanently twisted because of contraction of my calf muscles. More recently it seems to be becoming more generalised and I have dystonic 'attacks' where my whole body is rigid or twitching or has tremors - sometimes for several hours.
As far as botox injections go - I didn't have good results with it, but I certainly noticed a change within about 3 days. The maximum effect usually occurs within 7-10 days, and then wears off again over 3-6 months. It may be too that they just didn't use enough, or didn't get into the right muscle groups
Are you on any oral muscle relaxants?
Best of luck with the epidural
Moderator - Chronic Pain Forum
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.
Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump