My pain doc wants to switch all of my pain meds to other type.

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Regular Member

Date Joined Feb 2008
Total Posts : 257
   Posted 6/8/2012 4:40 AM (GMT -6)   
I just went in for my 60day medication follow up and my Pain Doc wants to switch me from my methadone 90mgs a day plus oxycodone-15mg x4-daily and Nucynta 100mg x3 daily.She wants to use long and short term dilaudid. has anybody had any experience with long and short acting dilaudid..Thanks Beck

Post Edited By Moderator (Momto8kids) : 6/8/2012 3:53:46 AM (GMT-6)

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/8/2012 4:59 AM (GMT -6)   

I've used (instant release) dilaudid many times on my CP journey. Although I've grown tolerant of it orally, when it used to work - it did work well for pain with no side effects. The IV form still works for me when I have acute pain needs.

If you don't mind me asking - why is your PM doc switching you over? Are your meds not working?

I hope the dilaudid works for you... Keep us updated.

Take care, Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Regular Member

Date Joined May 2012
Total Posts : 44
   Posted 6/8/2012 7:25 AM (GMT -6)   
It is strange that your doctor wants to change your pain meds and I'm curious as to why, as well.

I've had dilaudid injected (just as a shot in the ER, not through an IV) and it worked (I wasn't in pain but did get very nauseous and vomit plus couldn't really walk steadily for the first hour or so), but they gave me a prescription for the pills when I left (2MG, I think) and it didn't do anything for my pain; I was miserable. I've learned though, that pills are relatively ineffective for me and patches are my life savors. My boy friend, on the other hand, took dilaudid as well, and was incredibly loopy, not in pain and passed out... The funny thing is he made fun of me "you're going to be so high and out of it, haha!" Medication reacts different for all of us, I just wanted to share my experience with dilaudid.
Kathryn - 22 years old.
Mommy to Baby Scott - May 18th, 2011.

Accidents: Jan. and Oct. 2008, Nov. 2009.
Surgeries: Eye - 1995, Lumbar Laminectomy L4-5 - Feb. 2008, Cesarean Section - May 2011 and Gallbladder Removal - June 2011.
Current Medication: Generic Fentanyl 50 mcg/h patch every 72 hours (feels ineffective after 48), Meloxicam 15mg once a day and Generic Tylenol for breakthrough.

Regular Member

Date Joined Feb 2008
Total Posts : 257
   Posted 6/10/2012 4:08 AM (GMT -6)   
I've been on the methadone and oxycodone for over 5 yr's and there not working that well. some days they work OK. But what I am afraid of is what happened to Kathryn when she used dilaudid by mouth. I've had dilaudid many times before thru an IV for my post op thoracotomy,plus my shoulder and hip should be a real interesting month...Thanks Beck
AVASCULAR-NECROSIS (AVN) in 6 joints. HIPS,KNEE'S and SHOULDERS-Replaced RT shoulder.Left hip2011
Bilateral Empyema-Thoracotomy with Decordication.(Removed the Sac or Lining of left lung)
MED'S-methadone 45mg's Bid---oxycodone 30mg's Bid--nucynta 100mg-Prn

Veteran Member

Date Joined Jan 2010
Total Posts : 3557
   Posted 6/10/2012 9:10 AM (GMT -6)   
Ah...I think we misunderstood the "60 day follow up" in your first post and thinking they had just put you on all these medications a few months ago.

Many chronic pain patients will end up cycling through different medications over the years as they develop a tolerance and the medication stops working so well.

Please don't get too discouraged about Kathryn's experience with Dilaudid....I would think your Dr. is going to calculate what you are on now, and then move you to the appropriate dosages for the Dilaudid.

The good news is that your Dr. doesn't seem to fear pain medications based on everything you are on now, so they seem to really want to help make you comfortable.

And I'm sure you know...there is also so much more to pain management then just the opiates.

From daily exercise, PT, acupuncture, massage, TENS unit, injections, etc..

Are you on a muscle relaxer? Or a nerve pain med?

It may take a few weeks to a month to figure out the exact dosages for the new medication so this is the hard part...Not expecting it to be exactly the same from day one....

Hopefully it all works out in the long run!..

Keep us posted..
SB and "the pup who snores loudly" 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006

Forum Moderator

Date Joined Feb 2003
Total Posts : 16804
   Posted 6/10/2012 10:17 AM (GMT -6)   
What was the drs reasoning for switching you, perhaps if you told him how your days were going this may be why. I would ask. Five years is a pretty good run at it I think. Hopefully things will go well for you.

Take care.....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum
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