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Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/11/2012 1:24 AM (GMT -6)   
Hello Chronic Pain Family....

It's that time again.... it's Monday!

Time to check in... let us know how you are doing.... how you "survived" the weekend.... and what's up for the week ahead.

Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 6/11/2012 3:31 AM (GMT -6)   
Well, here I set at 3am not able to sleep, and my back is not doing so well at the moment. My Dr started me out on 25mcg of Fentanyl….and I don't think it is enough…although it is a starting point. I see him on the 15th and will see if he wants to bump it up a bit. I have a fear that this med is not going to get me into a better place. What I do like about it, is that the transition is smoother than the Oxy products I was taking for several years.

Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 6/11/2012 5:08 AM (GMT -6)   
We got back from boondocking with our RV at 2 local dirt tracks and this time we took our 2 sheltie dogs. The little one chewed his way through the canvas crate and the bigger sheltie rolled her canvas crate from the back of the RV to the front of the RV. So today I need to get metal crates. The little guy was running loose around the inside of the rv without us knowing it so when hubby opened the door to rv the dog skooted out and was running around in the restaurant parking lot. I kept softly talking to him and I gave him a stay command and he rolled unto his back into a submissive posture and stayed like that until i could lift him up into my protective arms..

My heart was pumping so fast andI dont want to ever go through that again.

Next weekend we get to go to 2 local dirt tracks and boondock(no electric hookup or no public water hookup)

Age to a woman is like krypronite to Superman.

Regular Member

Date Joined Mar 2011
Total Posts : 179
   Posted 6/11/2012 7:47 AM (GMT -6)   
I swear its been the longest weekend ever. Having issues with our 13 year old. Makes me want to pull my hair out.

Anyway I saw my PCP last Thursday. My back has been driving me insane. More so than normal. So he sent me in Friday night for an MRI.

He called this morning. I have an old country doc and he calls himself with all test results. Anyways L4/5 he says is unchanged. Lots of new arthritis, but he says I now have a compression fracture to T12. So he's setting me up with the neurosurgeon. I swear I'm not going to make it to my 40th birthday. I'm so tired of all of this.

Sorry venting a little. Just been a really bad weekend.

Veteran Member

Date Joined Jan 2011
Total Posts : 1355
   Posted 6/11/2012 8:37 AM (GMT -6)   
Tina, thanks for asking How we survived the weekend I am wondering how you survived it?

Se hopefully your doc will give you a stronger prescription so you get some sleep and also some releif.

Betsey how nice you dog listened to your command, it's always scared when the little buggers get out. Hope you get a new kennel soon.

Justanotherday I hope you get in quickly to see your neuro. Sorry you are in such pain and to add a disruptive 13 year log my heart goes out to you.

I watched our 4 yr log grandson on Saturday he gives the best hugs and he actually listens, I even took him to the grocery store with me. I don
't know why I am still having horrid spasms they are here all day and they wake me too. I saw my family doctor he prescribed more pain meds and more flexerel. I see surgeon on Tuesday if I can get a ride from someone.
My daughter who promised to help me no longer comes and cleans and she cancelled driving me to surgeon, something is wrong she never behaves this mean towards me. I drove myself to fam doc but surgeon is the other end of city I just do not think I can safely drive that far yet.
Take care

Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/11/2012 3:20 PM (GMT -6)   
Rose, thanks for asking... :)

I'm glad you had your grandson over the weekend... those are the best hugs, aren't they?

I'm sorry you are having such bad spasms.... and I'm sorry about your daughter. I agree - you need someone to drive you to the surgeon - especially on the other side of the city. Shoot - I haven't even had surgery and I need someone much of the time to drive me places!
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/11/2012 3:26 PM (GMT -6)   
I "survived" the weekend... Saturday - my energy was super low. I really need to get in to my endocrinologist and see what's going on. I think my low Vitamin D is causing issues - as well as my thyroid. I feel like a truck hit me by about 1pm in the afternoon. Lots of muscle pain and weakness.

Sunday was good though. Went to church... and was actually on time, lol. (I can't tell you what it's like to get 10 people - including 20 month old twins - out of the house on time?). Then got many of the things accomplished that needed to be done on Saturday.

I see my PM on Thursday. I really want to try Opana.... it's the last oral med that I haven't tried... but there's been a shortage on it.... so we'll see. I've had to take more BT meds this last week - so I'm out as of today until Thursday (I have my LA, of course...).

Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 6/12/2012 3:40 AM (GMT -6)   
Much the same health wise - I'm having more spasms and a lot of issues typing because it's set my CRPS off, so my apologies for not being around much. Now more stressed too - my GI doctor had me get another ECG a few weeks ago to look at my QT interval, which has been prolonged for several years and has been a big barrier to me trying a particular med for my gastroparesis. I had to see my GP today and he had a copy of the results - though neither of us knows yet whether my GI dr and cardiologist have managed to discuss things. Oddly enough, my QT has improved, but there are other changes suggesting that there's been actual ischaemic damage to my heart. Nobody mentioned that on my last ECG (last year), which I'm assuming means it's a new thing.

The cold is starting to really affect my pain levels too.. it was below freezing here last night, which is cold for this early in winter. Usually we don't get freezing nights 'til July.

The good - I'm trialling a new wheelchair this week. I've only had it a few hours, but I like it. It's much more comfortable than's almost half the weight - I think only 7 or 8kg - and designed slightly differently. The wheels are only an inch or two forward relative to my centre of gravity compared to my chair - but it is so much easier to push, much faster and much more manoeuvrable... I like :-) And I had a lovely card from our equally lovely Suzane :-)
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Veteran Member

Date Joined Feb 2007
Total Posts : 553
   Posted 6/12/2012 4:42 AM (GMT -6)   
Well, let's see- its 4:26 am and its Monday night not Tuesday morning. Pain has been exceptionally good until I turn out the lights, then its the only thing I have to focus on. It hurts just enough to destract me from sleep. Not enough for me to really complain (or feel right about complaining) because it has been a lot worse. I think it was easier to ignore,or work through, when it was in my knees or hips than my fingers and toes. Of corse that's easy to say because it is NOT in my knees or hips right now. When I think of how much better I am than a year or two ago I don't feel like I have any right to complain.
writing 'Diagnostic Spaghetti'

"Life seems a little easier when you remember to breathe"

Dx: Rheumatoid Arthritis 2008
Bipolar 2 2006 (symptoms since 1993)
Fibromialgia 2010
Gluten senitivity 2010
Sleep apneia 2007

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 6/12/2012 1:06 PM (GMT -6)   
I survived the weekend. The same old same old until Sunday night when I got to Skype with Michael. I had an appointment with my new counselor yesterday, and we hit it off great. I really like her. Other than seeing her, I don't have any other appointments this week.

Take care Tina and everyone else.

love and hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Regular Member

Date Joined Jun 2012
Total Posts : 21
   Posted 6/12/2012 2:10 PM (GMT -6)   
Hey I'm new to this so here I go.

My weekend was pretty awful I have been in just constant body ache pain, my arms and legs just hurt all the time it feels like my muscles, and I am just constantly tired.
I get so wound up about it as I got told by my doc 2 months ago I had flu ... Obviously not as it's still there.
I will be going back to my Doc tomorrow or the day after when I get an appointement as I just can't take the pain anymore, I feel tired and down nothing helps.

I just joined this and am so surprised about all the positive comments and support people give it's just made me feel better.

Hope everyone has good week.


Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 6/12/2012 3:02 PM (GMT -6)   
hello everyone
last week hubs and i went to niagara falls. we had a blast and gave my all for three full days. now i've been on the couch since we came back as my head pain is terrible.
hubs birthday was on sunday so we had the kids, girlfriends and gr. kids over for a bbq supper. lovely weather and we were all outside and taking turns on my lovely four seater glider swing.
Sleep hasn't been good, the pain is keeping me awake. I am trying to stay sane for the moment and keeping my head in ice.
Next wed. i have a doctor's appt re:the ons surgery. Any prayers and thoughts my way would be greatly appreciated. I have had this head pain for twelve years and I hate the thought of coninuing like this.

Hugs to all and wishes for some low pain day for everyone.

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/13/2012 12:25 AM (GMT -6)   
Laura.... Good to hear from you... but sorry you are suffering so much :( I am glad, though, that you are trying out a new wheelchair... sounds like it is top of the line!

Christina - My insomnia issues are flaring again and my pain flares @ night too. I have so many distractions during the day that, even though I'm still hurting - I have to move on. At night... it's quiet... and I hurt just enough to not sleep. Hoping you get some rest soon.

Hey Loretta - Glad to you got to Skype w/ Michael.... and I'm glad you like your new counselor! :)

Missy - My mind is in 1000 different places - I don't know if I've welcomed you or not to the CP board. (If I have, ignore me, lol). Anyway, welcome aboard. You are right - the people here are incredibly supportive and compassionate... I'm sorry you are hurting so badly... but I think you'll feel right at home here... and I look forward to getting to know you. Let us know what your doctor says.

Suzane - Of course, I'm praying for your upcoming dr. appt. Hang in there, girlie. I know it's hard... and I know how badly you are hurting. :(
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask
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