Spasms that never end, any suggestions

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grandmaroses
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Date Joined Jan 2011
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   Posted 6/11/2012 1:54 PM (GMT -6)   
Hi there, most of you know I had a L5-S1 fusion and a discectomy on March 26, I came home and felt wonderful for the first month, of course because I was feeling better I did more and had a set back. I have been having spasms for weeks and take flexerel to help but today I am having constant spasm after spasm and the most I have had a break was 5 minutes all day. I see my surgeon tomorrow who hopefully can help but I really really need a break today.
Pain that is here 24/7 and spasm just to make sure I notice the pain and top it all off with heartburn that tums do not touch. Sorry for the whine but I need some help I will try anything. Does anyone have an idea that might work.

Blessedx8
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Date Joined Aug 2008
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   Posted 6/11/2012 2:31 PM (GMT -6)   
Hi Rose,

I just wrote you a little note on the Survivors thread... but I'm sorry about your spams. I get those too and it's so dreadfully painful. Is the flexeril helping you at all? My muscle relaxer does help - but not completely.

I do all sorts of things for these darn spasms. Sometimes heat and/or ice helps me. I have lidocaine patches. When it's super painful... I pay the younger boys to rub my back, lol. I've been known to roll around on a tennis ball (or other hard ball) - because it helps break up the spasm a bit..... hey, it looks crazy - but when you are hurting - you do what you have to do, right? :)

I will pray for you Rose... I know how painful those spasms are... and I haven't had surgery on my back. I can only imagine. Let us know how your surgeon appt. goes.

Take good care - Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Blessedx8
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   Posted 6/11/2012 2:33 PM (GMT -6)   
Where are your spasms? Lower back?

Mine are mid-back (thoracic) region...
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

straydog
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Date Joined Feb 2003
Total Posts : 16302
   Posted 6/11/2012 2:52 PM (GMT -6)   
Hi Rose, something to consider is trigger point injections, those work great for me when I get where you are. I also use hot packs and get husband to put Tiger Balm on me then put the heat pack over it.

There has got to be a way for you to get some relief. Take care....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Screaming Eagle
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Date Joined Sep 2009
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   Posted 6/11/2012 3:54 PM (GMT -6)   
Hello Rose!

I dont have any secret for the spasms, but I do want to mention "Prilosec" for the heartburn, which can be a real pain. If you have not taken it before, be patient, as it can take a few hrs to work.

I'm also not sure I know the difference between a spasm and cramps, but did suffer severe cramps in both calves while I was on Gabapentin. They went away about a week after I got off of it or so. Maybe the surgeon will have a fix for you tomorrow.

Take care, and we hope you get some relief soon!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 6/11/2012 4:51 PM (GMT -6)   
I forgot about trigger point injections, Rose. I get those, too - like Susie. I've had them work wonders... other times, not so much. But worth a try!
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 6/11/2012 7:30 PM (GMT -6)   
Thank you, I am about ready to scream at everyone because my back is not giving me the teensiest bit of a break. I can handle a whole lot if I know it will go away but the spasms have steady increased. I feel just terrible whining after having such a good start. I don 't know how to write what the difference is between cramp and spasm I just know what I am feeling.

I hope the surgeon does not try to rush me through because this past month has been terrible. My daughter normally takes me to appts but I must have said something because she can find a dozen reasons why she can not help me. My hubby is going to take me but that means he has to go to work then stop come home pick me up , wait for me then take me home and then he will have to go back to work. Whew complicated. I said I could drive but in rush hour traffic it's wise that I don't.

The flexerel I am taking is 10mg does anyone know if it comes in a stronger dose.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Retired Mom
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Date Joined Feb 2010
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   Posted 6/11/2012 8:13 PM (GMT -6)   
Hi Rose,
 
I know you are suffering so and I am so sorry to see that!!  I had hoped you were going to be our best success yet.
 
Anyway, I had the same procedure done and I UNDERSTAND the spams.  I had them when I had my surgery done, 4 or so years ago, and I have them now.  For me, Soma was the BEST overally muscle relaxer. It really worked, however, it is not FDA approved for long term use.  So, now I use Robaxin, which helps some, but no where near as well as the Soma.  The Soma, does give a "high" type of feeling occasionally......so I'm glad they pulled me off of it before I decided I liked it too much to just put down the bottle I had left.
 
Anyway, I use Biofreeze.  You can get it from your local PT or can buy it online or over the phone.  Don't bother with the drug store variety because it is NOT the same.  Even the lidocaine patches that helped one of our members would not touch the spams, but the biofreeze will.  I ordered the gallon jug because it was way cheaper in the long run and I promise it helps more than my tens or anything else!
 
Lastly, the trigger point injections have worked surprisingly well for me.  I was honestly a non-believer, but did the injections to "please" my PM.  Turns out they were right.  The NP explained it to me by saying the Marcaine they inject breaks the spam in the specific muscle.  I can honestly say that has been true for me.
 
Until you can get to the Dr (and having your hubby drive is honestly essential IMHO), please considere a warming blanket (like Sunbeam).  They get as hot as my heating pad and cover more area.  I use it almost every morning to break the morning spasms and then again at night to ease the muscles down before sleep.
 
Good luck my friend.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16302
   Posted 6/11/2012 8:14 PM (GMT -6)   
I looked it up and 10mg seems to be the cap. Sounds to me like its not doing its job and perhaps you need a change to see if you can get some relief. It may have worked in the past, but we all know at any given moment a medication can stop working for us. I take Baclofen 10mg and find it to be very helpful. The max a day is 60mg.

I am sorry to read that your daughter seems to have a problem going on when it comes to you. Maybe she will come around and tell you whats going on.

I sure hope you can get some help from your dr.....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 6/11/2012 8:16 PM (GMT -6)   
oops....forgot the reflux..

zantac 150 (OTC) is a really good med. I use dexilant (prescription) and suplement with zantac 150 per my Dr's instructions. I did have the surgery for the reflux, but it failed....imagine that :(

Anyway, you can take two different kinds of acid relievers (so long as the Dr Ok's it) and it will work on different areas of acid. We were going to have to do more surgery until I started on the zantac at night, with the dexilant daytime and tums as needed.
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

White Beard
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Date Joined Feb 2009
Total Posts : 3695
   Posted 6/11/2012 8:25 PM (GMT -6)   
Hi Rose, You know I get terrible cramp, charley horses, spasms, or what ever you want to call them. I had tried flexeril and all it did was make me "dopey" didn't much for the spasms. Finally they put me on Baclofen, they started me off on 5mg every eitht hours, and then slowly worked it up to where it was effective, now I take 30 mg every eitht hours which is the max recommended dosage. For the most part it has been extremely effective, with the added bonus, that it also has helped with the pain relief. This antispasmodic is usually prescrived to MS patients and patients with spinal cord and nerve damage.
 
I would definitely talk with your doctor about the spasms, and explain completely what you are doing when you have them ans their intensity and every thing about them!  Something is causing them, and I know from experience how painful and disruptive they can be. I am sure that your Doctor can help you. I do wish you well Rosr, and hope that you can get some answers, and relief soon! Please  keep us informed on what your doctor does to treat them.
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/12/2012 12:35 AM (GMT -6)   
Retiredmom,

I think - as w/ all meds - the effects of soma vary from person to person. I've been on it for a few years now... and can take up to 4 a day (although I frequently take less). For me, it's the one medication that actually works the best for my muscle spasms, w/out the side effects of drowsiness, a drugged feeling, etc.

The FDA "recommends" that it be used for short-term use, as it "can" cause (quoting) - "dependence, withdrawal and abuse". That being said... the FDA website says the same thing regarding a whole slew of meds.

As White Beard said - give me flexeril, though - and I'm as drugged as can be. It's funny how we are all so different....

Anyway, I know many people do experience the side effects you describe from it... but just wanted to share another perspective.

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

alsoinpain
Regular Member


Date Joined Jun 2012
Total Posts : 353
   Posted 6/12/2012 5:48 AM (GMT -6)   
Hi Rose,
My husband has really bad gastritis and heartburn and gerd, when his regular stuff doesn't help he uses gavascon, maybe that might be worth a try, you can get it in either the chewable s or liquid. Also that Ben-gay cream that you keep in the freezer does wonders for me.

I hope you feel better soon.

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 6/12/2012 12:37 PM (GMT -6)   
I am home again and the surgeon said all the hardware is exactly where he put it. The spasms should go away as soon as I start PT. He said the flexerel is a good med he felt I needed something more to help. He prescibed liquid valium but my pharmact said they can not get it so subbed diazepam.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
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Date Joined Feb 2003
Total Posts : 16302
   Posted 6/12/2012 1:30 PM (GMT -6)   
Rose glad to hear that he added to the Flexeril, Valium is a wonderful medication for spasms, its just one of those meds not many drs will rx very often. Is your pharmacy going to order you the liquid Valium, I would push for it over the pills. I hope they will have the liquid available at the time of your refill.

Take care...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 6/12/2012 3:39 PM (GMT -6)   
Susie my pharmacy said they can not get it at all. By the time I need a refill I will call the pharmacy right under my surgeons office to see if they have it.

I tried half a pill 4 hours ago and I fell asleep and my body wants more sleep so I might have to give in. Thank you
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Kaely
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Date Joined May 2012
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   Posted 6/12/2012 4:40 PM (GMT -6)   
If you have any valium that also helps with the spasms. Get a pillow and an ice pack (or heat if that works for you, ice works for me) and lie down on your left side (i said left because of the heartburn). Lying on your side, bend your knees a bit and put the pillow between your knees. Put the ice on your lower back just above the tailbone. 15 min on, 15 min off. This used to help my spasms and I get them so bad they pull my spine out of place. As to the heartburn...is this normal for you? Because it could be caused by the flexeril. I use the generic version of Prilosec OTC. Take it once a day, no heartburn :) I hope this helps and you feel better.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7

Kaely
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Date Joined May 2012
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   Posted 6/12/2012 4:41 PM (GMT -6)   
oh and Valium IS diazepam that's it's real name lol.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7

Fusiongirl
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Date Joined Apr 2012
Total Posts : 608
   Posted 6/12/2012 5:26 PM (GMT -6)   
Oh Rose, I feel for you and know what you are going through. I am having exactly the same problem just now. I use baclofen or diazepam, both work OK but make me feel tired and sad! I had my surgery in January and am going back in on the 27th for yet another back op, my third in less than two years. I am so fed up too.
I hope you are able to get some answers and some relief soon.
Thinking of you.
Jane

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 6/13/2012 1:26 PM (GMT -6)   
I am sleeping a lot, glad to know that Valium and diazepam are the same thing so the only diffence is they gave me 10mg and dr said 5 in liquid form so I am cutting the 10's in half as per pharmacy instructions. My spasms are gone but as soon as the med wears off the spasm begins again. It's kind of strange but my daughter suggested lemon juice in water for the heartburn and that seems to be working.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 6/13/2012 9:20 PM (GMT -6)   
I'm so glad you are getting some relief. My spasms just wait for the meds to wear off too. Fortunately it wears off about the time to take it again so it works out. I'd never heard of lemon juice in water for heartburn so thanks for the tip!
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 6/14/2012 5:07 AM (GMT -6)   
Momto8,

I just got a chance to read the thread again. Please don't think I was knocking Soma. It works great, but my PM recently got audited and changed EVERY patient that was on it to Baclofen/Robaxin and then others as they were able to take them. The didn't even give the patients warning and when I asked, they exact statement made was that the FDA does not recommend long term use of Soma, so the Dr was changing everyone to another medication. Apparently it was due to the audit.

I am happy that Soma helps you and I agree that the other muscle relaxers don't touch the spasms like Soma did, but was saying that it was a medication I would have a great deal of difficulty doing without. It was honestly quite difficult to just stop taking it cold turkey. I even have a large bottle of it left here in my safe....just in case there is an emergency when nothing else helps. So far, I've just been able to live with my spasms using other methond and other muscle relaxers. Zanaflex is another that works wonderfully, but I can't use it because it makes my throat feel like it's closing up. Otherwise, I would be asking for that one.

I would sincerely suggest that you be as prepared as possible about the PM pulling Soma from your meds. I was also told by one of the nurses that they are "after" Soma like they were with the Oxycontin. I personally never took oxycontin (just oxycodone) but she was just talking and I hope you will never have to face loosing a med that works so well for you.

Good luck my friend.
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

lynneann
New Member


Date Joined Apr 2012
Total Posts : 17
   Posted 6/16/2012 11:39 AM (GMT -6)   
Yes this may help.  I am NOT a medical person. PT's use press/release but that hurt too much so I use pool water jets to press on nerves to help them relax some. Helps.  Wanted to try botox but decided no.  To each his own on that and other things. Pain meds and water pressure for me. I hope you get relief soon!
  

Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 6/18/2012 8:37 AM (GMT -6)   
Steven....What type of therapist are you? A licensed one that performs Physical Therapy or Psychology?

Considering you say you were injured on a construction site...I am curious about this.

Or are you calling yourself a "therapist" who does this EFT for others?

You have been asked a few times to post your own thread with an introduction so that we can get to know you better if you are truly wanting to be a part of this community.

And being part of this community means not trying to keep luring people off this site to promote this EFT as you've mentioned it in every single post.

You have also not respected others with their choice of medical treatment.

I have no problem with people who find things to help with their pain....what I have trouble with is when people throw around medical "terms" like therapist which is insinuaiting that you have actual medical knowledge.

Obviously your herniated discs were not that bad that they didn't need surgical intervention to take the pressure off the spinal cord which is great. And that all of your issues have been helped just by "thinking them away" with positivity.

This is not going to be the case for most people. As I wrote earlier on another thread...having a positive attitude will absolutely help emotionally "deal" with chronic pain...But it doesn't "cure" anything. Everyone should always seek an actual Medical Dr. to get proper diagnosis and treatment.

We are just asking that you please stop telling people they are somehow "weak" or wrong by doing this.
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 
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