Upset and confused.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

millymilan
Regular Member


Date Joined Jun 2012
Total Posts : 104
   Posted 6/13/2012 3:23 PM (GMT -6)   
Saw my mental health therapist who uses cruthches and a wheel chair due to spinal bifida she was born with. She is very good and suggested that since we are going on a trip Thur. thru Sat of this week, as a vacation to see some sites in our state,that I use a wheel chair instead ofa wheeled walker. This is because I have a lot of pain in my knees due to arthritis and my back had bulging disc in all the lumbar spine region except for a very large herination in the L5 S1 region with a displaced nerve root. I have pain in the left hip/ buttock region in the morning that is so strong I usually don't know what to do ,scream or cry. I done alot of crying until the pain medication works. I have osteoarthritis and Fibromyaglia too. I am worried about this week- end trip. My therapist suggest I rent a wheel chair instead of using my wheeled walker. I found a place that charges by the day , the week and month. So I talked to my husband and he said okay to get one for the week. Next I called PT to see if they will attempt to get me an order for one so I can use it  permanently and have insurance pay. They said they weren't comforable doing that. They feel I will go down hill and not walk then. I see their point as I was a former nurse. But I want to enjoy life and to be able to go places and see things and not be in so much pain during or afterwards. My husband is ok with this weekend but said it is up to the doctor. Because if  insurance doesn't get the order from the doctor a person could buy one for  $200.- $300. used or $500+ new. I thought he would see  my point and understand how sore and activity intolerant I really am.I have a hard time walking a disance without having the extreme pain that I have. Any suggestions??

Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 6/13/2012 10:44 PM (GMT -6)   
Hiya milly, I'm sorry you're in such pain. I know how it feels to have ruptured disks. Have you had surgery on your back? I have problems sitting as well as walking. I use a pair of crutches on the bad days. My doctor doesn't like that (she worries about my shoulders) and suggested I get a walker. Have you asked the doc why you are still having so much pain? You shouldn't be in so much pain you cry every day.

I can understand they don't want you in a wheelchair full-time and being worried you won't walk at all if you have a chair. Though with a displaced nerve root at L5-S1 I don't see how you could sit long enough anyway. I have to alternate lying down sitting and walking.

I guess I'm not much help other than sympathy. If you aren't happy with your doctor you could always try to find another.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 6/14/2012 12:25 AM (GMT -6)   
Hi Milly Welcome to Healing Well Chronic Pain forum, it sounds like you are really miserable! You know if your having that much pain in your left hip and buttocks and leg and you know that your disk is badly herniated, well have they had you see a surgeon about it? I would think if it is bothering you that much, that surgery would be in order, and yes I can understand about the walking being difficult. I can understand why PT doesn't want to prescribe you a wheel chair, I bet your doctor won't want to do it either!  But I would think your at the stage where something should be done. Because the herniated disk won't get better and if the nerve is being impinged upon, well that could get worse and then you might get permanent damage to it! Something to think about anyway. I sure would be talking with my doctor if I were you. And let him know the pain you are in! You should not have to suffer like that!
 
I do wish you well and hope you can get this resolved. Untill then be gentle with your self. Maybe a wheel chair would be good to have with you , if you wanted to walk a bit you could always use the wheel chair as a walker and put your purse and stuff in the chair while walking, when you get tired or hurt to much then you sit in the chair and enjoy the ride!
 
White Beard
t
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

millymilan
Regular Member


Date Joined Jun 2012
Total Posts : 104
   Posted 6/14/2012 7:28 AM (GMT -6)   
I am renting a wheel chair for a extened weekend vacation trip to our states capitol. This will will help me decicide if this is foor me or not. I understand that no on wants me in a wheel chair. I is just as one doctor put it I am "activity intolerant" . I thought that was a good work to describe this situation. I am to see a neurosurgeon if the treatments at the pain clinic ar unsussessful. I as waking up to a a;ot of pain in the hip/ buttock region even during the night. I had two Medial Branch Blocks done and they were successfull. So the Nerve ablation is next. I am hoping the does the trick. In the mornings I am taking oxycontin and percodan to calm down the pain down to a tolerable level where I can get up and do something.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 6/14/2012 9:43 AM (GMT -6)   
Milly Just remember, when your really hurting and or frustrated, you can always come here and find support, and people that really care and can definitely relate and empathize with you! Your not alone with your pain when your here on this forum!  We are all kind of like family here, and like family we all care about each other, and support each other. 
I do wish you well and hope that you have a good time on your visit to your state capital. I do hope you will come back and give us an up-date on how you did with your travels.
 
White Beard

millymilan
Regular Member


Date Joined Jun 2012
Total Posts : 104
   Posted 6/17/2012 11:30 AM (GMT -6)   
After being on vaction and using the w/c, I decided not to get one for the use of the longer trips in my everday life. It was hard to find attractions to see that was designed for the handicapped in mind. It was really hard to use the chair in some places and my wheeled walker was better. It did give me a better perspective what the wheel chair handicapped go thru.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 18, 2018 6:39 PM (GMT -6)
There are a total of 3,004,441 posts in 329,145 threads.
View Active Threads


Who's Online
This forum has 161739 registered members. Please welcome our newest member, pinky;spoorback.
223 Guest(s), 13 Registered Member(s) are currently online.  Details
momto2boys, SoMuchFun, ANB, OzLyme, countess18, running wild, flowergarden, delta30, 18yearsandcounting, InTheShop, OriolCarol, Normal59, iPoop