I'm totally new to this forum and this is my very first post and I'm just looking for some support and to introduce myself.
So here's a little bit about me... I've been in constant pain (some days are much worse than others) for 5 years. In 2007 I went to the doctor because I felt like I had the flu for 3 months. They tested me for mono at the time and that's not what I had. Then in 2008 after being in pain for a year a doctor diagnosed me with fibromyalgia because he didn't see anything from my blood test (just regular blood test). For years I had some not so great doctors that didn't fully believe I was in pain so I didn't find relief and I just became worse. The fatigue started to rule my life. I'm a field biologist so I've always had a physically demanding job in remote locations.
Fast forward to now.. After moving to a new city I found a new doctor who right away after listening to me and looking at my records thought that I might have Lyme disease. I kept track of my temperature for 3 months and I was always running a fever. She sent my blood to a special lab and it turned out that I didn't have Lymes, but I did have a blood infection with biofilm communities. The lab is currently doing more research and I'm on anti-biotics, but my doctor said it should take a minimum of 6 months and then we'll see if the infection has lessened.
I'm very hopeful that after I'm done with the antibiotics (which make me feel so much worse) that perhaps the pain will start to go away. My doctor did tell me though that I could have fibromyalgia or a form of pain for the rest of my life from the severity of the infection and how long it's been in my system.
It's so hard to still do my job since I'm in so much pain and so fatigued, but I do need to be able to support myself. I'm just looking for a way to be able to keep going and stay positive.
Diagnosis so far: unknown bacterial infection (doc thinks at least 5 years, as long as I've been in pain), daily fevers, night sweats, constant joint and muscle pain, migraines, herniated disc C4-5
Right now I'm just trying to find a better way to deal with the everyday struggle, trying to stay positive :)