Small update and terrible day(s).

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gangsterkathryn
Regular Member


Date Joined May 2012
Total Posts : 44
   Posted 6/14/2012 7:19 PM (GMT -6)   
Hey everyone. I've been a bit MIA, I'm sorry. Things have been eh until Tuesday morning when it felt as if my patch was non existent a bit too early. I changed it early and have been suffering since, pain as if I didn't have medication. Screaming, crying, nausea and inability to eat again. I am on my monthly cycle but it was not like this last month. I feel miserable and extremely depressed. Today has been the worst. Chris (the BF) convinced me to see a chiropractor today. This chiro said he specializes in a disc decompression treatment called the Cox treatment. He put me on the table today and I didn't really feel anything different. He said it takes a few times to notice something but said he thinks I'll feel some relief by the time I see the neurosurgeon on June 25th. I want to be optimistic but I honestly can't. Nothing so far has really helped, I'm so defeated, scared, everything. Everyday I feel like I'm in worse shape. Tonight, the baby doesn't want to go to bed, just play, even though he's tired. I honestly feel as though he won't go to bed and I won't make it through the night. I want to take a steaming hit shower, change my patch 12 hours early and pass out from emotional and physical exhaustion but I can't.

Thanks for listening. The update was the neurosurgeon appointment that I dropped in the story...
Kathryn - 22 years old.
Mommy to Baby Scott - May 18th, 2011.

Accidents: Jan. and Oct. 2008, Nov. 2009.
Surgeries: Eye - 1995, Lumbar Laminectomy L4-5 - Feb. 2008, Cesarean Section - May 2011 and Gallbladder Removal - June 2011.
Current Medication: Generic Fentanyl 50 mcg/h patch every 72 hours (feels ineffective after 48), Meloxicam 15mg once a day and Generic Tylenol for breakthrough.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/14/2012 11:35 PM (GMT -6)   
Will keep you in my prayers and sure hope you can get some relef soon,others will be by with better advise soon, make sure to get a second opinion if surgery is suggested, and also with a small baby you'll need to cosider child care for around the clock, if you could possibly wait until you child is in school then getting child help is easier, I truly wish you were not in this situaion and do hope you can get a low pain days soon, many many Prayers and well wishes, do keep us posted and know this is meant in a good way. Others will be by...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

gangsterkathryn
Regular Member


Date Joined May 2012
Total Posts : 44
   Posted 6/15/2012 6:58 AM (GMT -6)   
Thanks. I typed something out all long and it didn't post so I will try again...

I would love a second opinion but Medcaid only covers two neurosurgeons in my area and one is not taking any new patients. I have to pay out of pocket, which I cannot afford.

I have no clue what I'm going to do with the babes. He is only a year and caring for him another four years in misery like this isn't going to work. Chris is without a job right now so I truly feel this is the best time to have the surgery, this way he can care for the baby while I recover. I'm worried because he won't go to sleep for anyone but me but I am sure he will get over it when he doesn't have an option. The government will give us a discounted rate for daycare but so many terrible things have been happening around here lately, it scares the crap out of me! I can't imagine someone else taking care of him... He's been all I have for the past five months, it is so scary...
Kathryn - 22 years old.
Mommy to Baby Scott - May 18th, 2011.

Accidents: Jan. and Oct. 2008, Nov. 2009.
Surgeries: Eye - 1995, Lumbar Laminectomy L4-5 - Feb. 2008, Cesarean Section - May 2011 and Gallbladder Removal - June 2011.
Current Medication: Generic Fentanyl 50 mcg/h patch every 72 hours (feels ineffective after 48), Meloxicam 15mg once a day and Generic Tylenol for breakthrough.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/15/2012 9:15 AM (GMT -6)   
Sorry to hear about your added pain...

I know everyone has their opinions and thoughts about Chiropractors....But I always thought that if you have actualy spine issues with disc herniations and such it is extremely dangerous.....

And for you...who has had a previous Lumbar Laminectomy....Does your actual Neurosurgeon recommend that you get these treatments by a Chiro??


I'm not trying to be overly dramatic...But a Chiro is NOT a Medical Dr. They don't have anywhere close to the degrees and training of them.

I'm just really worried for you as this Chiro could have done or continue to do some absolutely serious damage to your spine that is irreversible...

Please contact your Neurosurgeon and ask them....I know for myself and my Neuro....he had asked whether I had gone to get any treatments and when I said no...I don't believe in going to a Chiro...he said, "Thank God because that could have paralyzed you because of your herniations"..

Again...I know that everyone has thoughts about Chiros so I'm not trying to start a debate...I just want to know that you have talked with your real Dr...the Neurosurgeon first so that you are being taken care of properly...

Sending you some hugs (( ))

Post Edited (Snowbunny21) : 6/15/2012 10:47:21 AM (GMT-6)


grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 6/15/2012 11:07 AM (GMT -6)   
Hi, sorry to hear about your additional pain. I can not imagine having a baby to watch as well. I agree with snow bunny about the chiropractor.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 6/15/2012 11:41 AM (GMT -6)   
I hate it things are so rough for your right now, but Snowbunny hit upon an excellent point, Chiros can help folks with pulled muscles and such, but someone with a herniation, one surgery behind them, not a very good idea. I know you are getting desperate and wanting to feel better but I am not convinced this is the way to go with your previous history of back problems. I don't remember who is rxing your patches but careful or you will run out early and risk not having anything to take and then you will be dealing with withdrawals from the patches.

Take care...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

gangsterkathryn
Regular Member


Date Joined May 2012
Total Posts : 44
   Posted 6/15/2012 6:12 PM (GMT -6)   
Thanks everyone for your concern, it certainly means a ton.

I know what you mean about the chiro. This treatment that he's giving me is a decompression only technique. He doesn't manipulate my spine. He puts me on this table, places his hand on my back and the table moves to stretch me out... I read a ton of info online about it and it seems to have a good rep for those with herniations but I'm going to look some more before I go back on Monday...
I'm going to try to get into the neurosurgeon and a PCP next week. I called the new PCP a bit too late; he's Jewish and closes at 4PM on Fridays, probably due to the Sabbath (something I'm very familiar with, as I am Jewish). Hopefully I can get into his office next week because even if I change my patch every 72 hours religiously, I will be cutting it VERY close to the neurosurgeon and will wind up in the ER for medication. I won't go to a PM before the neurosurgeon because I am unsure of the ones listed. I'll trust the neurosurgeon to refer me to one, if he even does that.

I went to a new OB/GYN because my cycle was almost two weeks late but he said the chances of me being pregnant were slim to none. I literally got it that night. I am happy that I'm not because of my physical condition, I can have surgery, take my meds, whatever. As soon as the pap comes back, I'm going to get Mirena inserted (very happy about this because I don't have to take pills or worry about anything other than once a month, checking for the strings... Anyone here have this, just out of curiosity?) so that I don't have this scare again! I'm worried because I've heard that it makes you very crampy after insertion and that's what has made me so pained Tues-Thursday... Hopefully, though, it takes them away for the time I have it... I've decided to take care of my back and whatnot, keep it for the five years and re-address baby number two then. I want another one desperately.

I'm hoping to get into this PCP ASAP so I can figure out why I'm having issues eating. It's incredibly scary for me. Even when I'm hungry, I hardly eat anything and feel full for much longer than I should. I ate five bite sized pieces of chicken around 1130AMish, couldn't eat anything else because I felt like I ate Thanksgiving freaking dinner and feel no desire to eat now at 710PM. I've lost 40+ pounds in the past three months and it's scary. I'm glad that I weigh less but not how it came to be.

Okay, I've babbled for far too long and want to make another post about something else. Thanks to anyone who listened.
Kathryn - 22 years old.
Mommy to Baby Scott - May 18th, 2011.

Accidents: Jan. and Oct. 2008, Nov. 2009.
Surgeries: Eye - 1995, Lumbar Laminectomy L4-5 - Feb. 2008, Cesarean Section - May 2011 and Gallbladder Removal - June 2011.
Current Medication: Generic Fentanyl 50 mcg/h patch every 72 hours (feels ineffective after 48), Meloxicam 15mg once a day and Generic Tylenol for breakthrough.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 6/15/2012 6:37 PM (GMT -6)   
You may need to be referred to a gastro to check out the stomach issues, the fullness after a couple of bites. Make sure there is nothing going on in that area. Let us know how it goes with the dr. Careful with the running out early and then going to ER, you don't want the dr to stop rxing meds because of this and they will. You need to get the dr to rx the patches to be changed every 48 hours instead of 72. Some people do not make it 72 hours on them, this is not uncommon.

Hope you get to feeling better....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/15/2012 6:41 PM (GMT -6)   
Agree with Stray...

And just wanted to add...I hope you are not changing the prescription on your own...If you aren't feeling the effects for 72 hours you need to at least call the Dr. who prescribes these and ask if you can change your patch early.

Otherwise, you will run out early and as Stray mentioned, going to the ER because of this is a huge red flag and can get you kicked out of any type of pain management with using narcotics and this would be devastating to you.

So...the key is never deciding by yourself to tweak the dosages...

Keep us posted.
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

gangsterkathryn
Regular Member


Date Joined May 2012
Total Posts : 44
   Posted 6/15/2012 8:15 PM (GMT -6)   
My old PCP won't deal with me anymore because he doesn't take medicaid, he was nice enough to write the RX for me but would not consult with me about it afterwards... He actually wrote me another one when I was there for the BuTrans but since I filled the Fentanyl, I can't fill the Butrans. I have been very good about waiting and have never changed it at less than 66 hours. I am currently not seeing any PM, PCP or neurosurgeon as a regular patient, everyone will be brand new, so I have nowhere to get kicked out of.

I was finally hungry and able to eat more than a few bites. The hunger hit very quickly and I got about five or six pork chop bites in but someone refuses to go to bed so if I'm not too exhausted when he finally goes down, I will eat more...

Thanks, again. I know what you're all saying, I really do. I just don't have a choice, I have to be able to function. I have zero assistance for baby care, whatsoever, so I need to be able to pick him up, carry him, walk, prep food, bathe him and clean up.
Kathryn - 22 years old.
Mommy to Baby Scott - May 18th, 2011.

Accidents: Jan. and Oct. 2008, Nov. 2009.
Surgeries: Eye - 1995, Lumbar Laminectomy L4-5 - Feb. 2008, Cesarean Section - May 2011 and Gallbladder Removal - June 2011.
Current Medication: Generic Fentanyl 50 mcg/h patch every 72 hours (feels ineffective after 48), Meloxicam 15mg once a day and Generic Tylenol for breakthrough.
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