Chronic Pain Help

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snorkels
Regular Member


Date Joined Jun 2012
Total Posts : 40
   Posted 6/17/2012 5:37 PM (GMT -6)   
Hi, I’m new here........I stumbled across this site when searching for Chronic Pain & Depression. I’m 36yrs old, I’m from England & I’ve been in Chronic/server pain for nearly 18yrs now, recently I’ve been feeling very low, I cry at nothing, I have mood swings, I feel so alone, etc......Last week I went to see my Dr, He said I was depressed because of the pain. But, because I have Epilepsy He’s limited to the type of meds he can give me.....Cutting along story short, My Dr has put me on a med called “Citalopram” I had 3 So far, they make me feel yucky, spaced out etc....... but I hoping this is just a short term side effect & will disappear in time. Anyhow the question is, is it normal to feel the way I do with Chronic Pain. I feel so alone at the moment & just need someone to understand the way I feel. My Dr did give me name of someone to talk to, but I can’t bring myself to contact them because I get really anxious & panicky talking to people face to face, when I get like that I end up having a epileptic fit :( TBH its taken me awhile to pick up courage to post here too ..........Also may I asked you another question please? My pain meds don’t seem to work now, I’m currently on 40mg of OxyContin, 20mgs Oxynorm for Breakthru med, Paracetamol, Naproxen & Gabapentin for nerve pai (I have “Lamotrigine & Clobazam” meds to control my Epilepsy) I just wondering if any of you know why my pain meds have stopped working please?

I really hope someone can help me, as i'm really struggling.

Thankyou so much for taking time to read my post.

Much love & blessings to you all
Snorkels

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 6/17/2012 6:25 PM (GMT -6)   
Hi Snorkels,

Welcome to the board, and I'm sorry to hear about your situation. My brother takes Citalopram for depression and aside from some modest weight gain, I think he's otherwise done well with it. If available in the U.K., a similar med is Lexapro. Citalopram is both sides of the stereoisomer, Lexapro is just one side. If you find the former helpful, but with side effects, you can migrate to the latter.

Your experience regarding the efficacy of your meds is quite common. Most people find their meds less effective over time. The opioid receptors adjust to the meds and so doctors will move patients from one opioid to another after some years. In my case, I've been taking tramadol for 7 years (you couldn't take it as it can cause seizures) and just a few days ago started oxycontin.

You'll find this a very supportive site, with a lot of people who can identify with the consequences of chronic pain, including depression.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds:20mg Oxycontin daily, Oxycodone 5-10mg for BT. .25-.5mg xanax as needed for sleep, Verapamil 240mg SR (for tachycardia).

Fusiongirl
Veteran Member


Date Joined Apr 2012
Total Posts : 608
   Posted 6/18/2012 10:56 AM (GMT -6)   
Hello Snorkels

Hi there, I live in the UK too. I am on escitalopram, a similar depression medication to you. I felt awful when I started it but have no problems with it now. It has really helped me, my mood is good now and I was down for several years. Stick with it, try taking it with food and I am sure you will get used to it. Talking with someone is a great idea, how about speaking on the phone first and explaining your problems with epilepsy, and also your reluctance to speak face to face. Maybe someone could come to the house. I have a community psych nurse come to see me and she has been so good. I honestly can't urge you enough to give it a go, it would be so good for you. My nurse, with the help of the medication, gave me my life back.

Depression and chronic pain do often go hand in hand, it is common to get really low when pain hits badly and you are struggling to cope. After all it changes life as you knew it in many cases. You have done the right thing by seeing your GP. Please don't think you are alone in feeling like this. You definitely are not, I can assure you of that. Writing on here was brave but a great thing to do, you are anonymous but will get support and help here. Everyone is in the same boat here, many with depression as well. Try to take the next step and speak to someone. It might be easier than you think!

Good luck and keep in touch

Jane

PS Just an afterthought, you say you don't think your pain meds are working. That may well be due to the effects of depression, that can happen. Do you see your GP for pain or do you see a consultant at the hospital? I definitely think that the hospital pain clinics are much better, there is more on offer. The waiting lists here in Scotland are horrendous. May be better in your area and worth a mention.

Post Edited (Fusiongirl) : 6/18/2012 10:04:55 AM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16765
   Posted 6/18/2012 12:32 PM (GMT -6)   
Hi Snorkels and welcome to the chronic pain forum. I am glad that you happen to stumble across and find us. You will meet a lot of people here that suffer just like you do. Our pain may be different and our story, but one thing we all have in common is chronic pain. So, hopefully now that you have found us you will no longer feel alone. Pain can really make a person feel isolated and that is really something we all need not to do is isolate ourselves.

Depression and chronic pain seem to go hand in hand this is a common thing that happens to many of us. I am glad that your dr has given you something to take. The side effects should not last too long ad go away. If you find after a couple of weeks that nothing has changed let your dr know. Sometimes we have to try different ones till we find the one that works the best for us. Also, sometimes these same meds will help with our pain, so hopefully this will be your case too and your pain will be under better control.

Any way, I wanted to pop on and tell you hello and welcome aboard.......Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 6/18/2012 2:03 PM (GMT -6)   
Hi Snorkles and welcome :)

I'm also on Celexa (Citalopram) though I've never had side effects. Some people who can't tolerate the side effects of Celexa have better results with Lexapro (Escitalopram) It does help tremendously with my depression.

I would certainly talk to the doctor about your pain meds if they have stopped working. Perhaps you need a med change.

Don't be shy about posting on here there are many really nice people on here who listen and don't judge.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7

snorkels
Regular Member


Date Joined Jun 2012
Total Posts : 40
   Posted 6/18/2012 2:34 PM (GMT -6)   
Hi everyone, Thankyou so much for you’re replies, just
talking yesterday helped & you’re comments saying “I’m not alone” helped too. I feel alittle easier knowing I’m not on my own.....With all the 18yrs of being in Chronic pain 24-7 I never felt like this, it just all hit me at once......I have got appointment to see my GP on 6th July. To check how I’m going with Citalopram, I’m hoping the side effects like Susie said will disappear & what you said too Jane taking it with food will help too. Thankyou both for your help......As you mansion Jane, I’ve been to see a pain clinic 10yrs ago but he
didn’t do anything for me, said theirs nothing can be done with you’re pain only tens machine, My GP put me on OxyContin back in 2009 from hydrocodone & paracetamol.....I did started of a low dose & work my way up to 40mgs OxyContin & started on low does of Oxynorm too, been on the same dose for 1yr now, as Cogito & You all said, maybe switch in med or increase will help.....When I see my GP I tell him about pain meds not taking edge of like it was on my good days, bad days nothing helped.

I forgot to tell you what is wrong with me, I was born with dislocation of patella, I had to operations when I was younger,
one day 18yrs ago I knelt down, I felt a something snap in my knee & server/intense pain surge thru me, since that day I’ve been in server/Chronic pain 24-7 I also can’t bend my knee either & my knee unstable, I have to wear a knee brace. I’ve been to see specialist upon specialist & theirs nothing can be done, no surgery will help because they took things away in my
knee when I was 7/8yrs old. (They don’t this sort of op now days) I’ll be like this for rest of my life........I was also born with one leg shorter then the other & my hips are uneven, because of my knees, hips & legs I’m putting all my weight on one side, it’s left me with server/intense pain from spine to tips of my toes 24-7, my legs. ankles & feet are swollen all the time, they burn, I get also of restless legs & Cramp/spasm......Also my spine is twisted at the bottom which is painful.......I haveB ursitis in my Hip again is very pain........Recently I also found out, I’ve got Degenerative Changes (Arthritis) in my Spine (L3/4, C4/5 & L5/S1) this
is also giving chronic pain 24-7.........Back in 2005 I was diagnosed with several Fibroids, they so painful too, last year I went for Total Hysterectomy because the fibroids are so big (one of them is size of the babies head) Anyhow cutting along story short, While I was under general Anaesthetic, My Gynae
specialist picked up my womb, my heart rate dropped so fast, went into Cardiac Arrest I was resuscitated, & Op was abandoned. I’m now under heart specialist, I’ve had tested done all come back clear, now I’ve have a Loop recorder implant fitted under my skin, to find out whats going on. At the moment, I’m stuck with these painful fibroids until they’ve sorted my heart out, because of the weight of the fibroids (l look 8mtrhs pregnant) this is adding too chronic pain I’m already in.

Thankyou again everyone from bottom of my heart for
you’re replies, Thankyou for you're tips, advice & thankyou for not judging me. It means alot, you've all been so kind :)

Much love & Blessings

Snorkels

Ps: sorry abt font size before, fingers crossed got right size now

Post Edited (snorkels) : 6/18/2012 5:36:39 PM (GMT-6)


Fusiongirl
Veteran Member


Date Joined Apr 2012
Total Posts : 608
   Posted 6/19/2012 11:39 AM (GMT -6)   
Snorkels

You and I sound alike in many ways. My problems started off with issues with my patellar. Started with one then the other. about twenty ops later, every op known to man for patella problems, I eventually had partial knee replacements. They worked reasonably well for a while but then I broke my leg, just below my knee which has resulted in full blown arthritis. I need a knee replacement now. Unfortunately walking badly has caused me huge back issues, had to have a spinal fusion in august 2010 folioed by sacroiliac fusion in January of this year. I go back in to hospital next week to have my other sacroiliac joint fused. Oh and I also have to have the plate removed from my leg before I can have the replacement. All the back problems seem to have stemmed from walking to one side, that also caused scoliosis.

You have been through so much so I know how you feel and I can honestly understand exactly how you feel and why you feel like that. I have been there too. Why would we judge you. You sound like a warm caring person who needs help with pain and other issues. I really urge you to take the next step and phone the person your doctor suggested you talk to. It really would help, speaking from experience here you know!!!! Go on you can do it!!!

I am on here often as are many others, even if you just want to chat and know there are people out there who care. Keep in touch.

Warm hugs

Jane

gangsterkathryn
Regular Member


Date Joined May 2012
Total Posts : 44
   Posted 6/19/2012 6:43 PM (GMT -6)   
I'm so sorry you're suffering and have been through so much.
If your medication isn't helping, I would call your GP and see if they can get you in.

I think you will find help in speaking with someone trained in mental health. They're usually very accommodating because of people with agoraphobia and other similar issues. Maybe someone can come to you or you can start over the phone. I've always been a huge believer when it comes to mental health issues, medication and counseling go hand in hand. I, unfortunately, don't follow my own advice quite yet, haha. I will be very soon, though! What about a journal while you're starting these meds, then working up to speaking to someone?! I'm sure they wouldn't mind reading your journal and speaking to you.

I really hope you can get everything you need. We are not judgey here as we all suffer from the same thing: pain. And many of us are also fighting depression because they do go hand in hand. I've been pretty depressed my entire life but it has gotten pretty severe these past few weeks.

Good luck and keep us updated.

Kathryn

Edit: as others have said, you become tolerant of your medication as time goes by. I would ask your doctor about a patch-type medication. BuTrans, Fentanyl.. They can help, although I'm not sure if you can take them. Doesn't hurt to ask, though!
Kathryn - 22 years old.
Mommy to Baby Scott - May 18th, 2011.

Accidents: Jan. and Oct. 2008, Nov. 2009.
Surgeries: Eye - 1995, Lumbar Laminectomy L4-5 - Feb. 2008, Cesarean Section - May 2011 and Gallbladder Removal - June 2011.
Current Medication: Generic Fentanyl 50 mcg/h patch every 72 hours (feels ineffective after 48), Meloxicam 15mg once a day and Generic Tylenol for breakthrough.

Post Edited (gangsterkathryn) : 6/19/2012 5:46:19 PM (GMT-6)


millymilan
Regular Member


Date Joined Jun 2012
Total Posts : 104
   Posted 6/19/2012 9:12 PM (GMT -6)   
I have also been crying alot and feeling depressed about things. I am in pain 24/7 and it has been affecting my sleep which has been making me feeling even more depressed. I have found talking to someone does help. Your post made me feel better to know that I am not alone.

snorkels
Regular Member


Date Joined Jun 2012
Total Posts : 40
   Posted 6/23/2012 2:36 PM (GMT -6)   
Hi Everyone, I’m so sorry I’ve not been on, have a few rough days with side effects of the new meds (Citalopram) the Dr gave me. I've been in so much agony with my pain I've been in tears most of the time. I'm still in agony now but the side effects of the new meds have settled down alittle not as space out as much, so I can reply to everyone. The feeling of sick has calmed down alittle too, I've still got the shakes tho. Which is horrible but I know from what you all have said, it can take upto few weeks to settle down.

Hi Jane, so sorry you have been thru so much with pain/problems Hunni, I too walk badly my bad knee goes inward & I walk on one side too. Like you my problems with my spine come from walking badly, plus one leg shorter than the other & hips not being level adding to spine issues. I Have to use a crutch to walk & in server pain 24-7, I pray everyday to have just 30mins painfree or 10mins will do I’m not greedy but it never happens.

The reason why I said about being judged is because all my life I have been bullied & judge because of the way I walk, look & the way I am, because I walk badly, I get got bullied, because I have a massive scar on my leg from the 2 surgeries when I was younger, I got bullied & judged, The scar started of small but as I grow, my scar grow with me, it horrible ugly looking thing, even every Specialist I’ve seen comment on it, how awful it looks & that they botched up the surgery both inside/under my patella & on the outside , other things happen too, which I will tell you all another time..…………Jane sweetie, I want to wish you good luck for your op hun, you are in my thoughts & prayers. Hopefully you’ll find some relief & make it easier for you sweetie.

Hi Kathryn, Thankyou for your reply hun, I never thought about a journal, I will start doing that, thankyou for you’re suggestion. I still haven’t plucked up the courage to call the number the Dr gave me,everytime I think about it, I get massive anxiety & panicky, but I do like the idea of Joural Thankyou & Thankyou also for your reply regarding pain medications, unfortunately I can’t have any patches meds, I tried Fenantyl patches (before Oxycontin) & had a massive allergic reaction, I also got the whole dosage in one hit, I was really ill, I took it off & called my Dr. Thankyou tho for you’re suggestion hun, I really appreciate it.

Hi Milkymilan, I’m glad my post has help you sweet, I felt/feel so alone too, I stumbled across this website realise I’m not alone. Good luck sweetie, I hope you find help & comfort you are looking for & find some pain relief.

Thanks again everyone for you’re reply, you don’t know how much it’s helped me, knowing I’m not alone & people in the similar precision as me has help me so much......I see my GP in 2wks time see how I’m getting on with Citalopram, I will talk to him regarding my pain relief, I’m hoping he’ll increase the dosages, I’m scared of switching meds incase they don’t do for me, I am allergic to alot of meds & other things, I'm terrified if I switch I have allergic reaction again, like I did with Fentanyl patches..........Thankyou again everyone from bottom of my heart, you are all so kind.

Much Love & blessings
Snorkels

Ps: How do get rid if the smiles at the the bottom & change font size please? I'm using Motorola XOOM Android Tablet.
> mad mad

Post Edited (snorkels) : 6/23/2012 5:03:50 PM (GMT-6)


grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 6/23/2012 8:44 PM (GMT -6)   
I will agree neuropathic chronic pain and depression seem to go hand in hand. I think they are directly linked, especially since anti depressants can improve the symptoms of both (not all the time of course but in many cases).

Personally, I find Nucynta (tapendtadol) has worked well for me, as it has NRI and Mu opioid properties similiar to tramadol, though its moderately stronger. Although the risk for sizures (and seratonin syndrome) is lower than tramadol's, its still a risk, so the medication is worth looking into but with the caution that its not without risks. I say this because Nucynta builds tolerance somewhat slower than oxycodone.

However, pain control sometimes means risks, whether its through surgery or being prescribed a new medication. We just have to hope the benefits outweigh the cons.
 
I've also found Lidocaine patches do help in a limited fashion with pain, but they are costly.
 
Additionally, there's an NSAID called Mobic that's easier on your stomach and lasts 24 hours that might be worth looking into.
MRI revealed disc bulge and test injections revealed RA. Radio Freq procedures helped for months, but pain is up and im having the procedure done again. Currently on 75 mgs of Nucynta (tapentadol - A MOR + NRI) 2 to 3 time per day and Soma 350 as needed.

Post Edited (grainofsalt) : 6/23/2012 7:47:09 PM (GMT-6)


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 6/24/2012 7:39 PM (GMT -6)   
Hi Snorkels, i wanted to welcome you to our chronic pain forum. So glad you found us but sorry you are suffering so so much.
I am glad you are feeling so comfortable here. The members are so caring, understanding, non judgemental and have so much knowledge. Come here and share, vent, cry, whatever, whenever you want. I hope you will keep coming back and keeping us posted on your situation.

Take care
Suzane

snorkels
Regular Member


Date Joined Jun 2012
Total Posts : 40
   Posted 6/26/2012 2:16 PM (GMT -6)   

Hi All, Sorry I've not been on, my pain been really bad but on a plus side I’m more or less got over the worst of Citalopram side effects., but I still feel same, very low, teary, mood swings etc.....tho, but I don't feel so alone as I did since coming on here, you've all made me feel so welcome. Thankyou from the bottom of my heart.

Hi Grainofsalt, thankyou so much for your reply, I think some of the others said the same regarding depression can make pain worst, I didn't know until I come I've read peoples posts this thread & other peoples posts/threads.

I've never heard of "Nucynta" pain medication before, I've Google it & as you said it can cause fits (seizures) I have both Grand-Mal & Pati-Mal Epilepsy, Grand-mail Epilepsy is more or less controlled but I still have Daily Pati-Mal Epilepsy. Also it warns you about "curvature of the spine" which I have also, I have to be careful what I can take.....I really do appreciate your input tho hun. As for patches pain medication I can’t use any due to a server allergic reaction to patches sticky, I tried Fentanyl patches in the past, I had server allergic reaction, plus I got the whole SL dose in one hit, it need me really sick...........I've also never heard of Mobic med before, I will defo look into it, Thankyou & Thankyou once again for your advice, I really appreciate.

Hi Suzanne, Thankyou so much for your welcome, means alot, I’m really glad I stumbled across here, you & others have made me feel so welcome & I do feel very comfortable here......I will keep coming back, I might not post as much as others due to my pain/health issues but I will keep you all updated as much as I can.

I see my GP just over a weeks time, to see how I’m getting on with the new meds, I’m going talk to him regarding my pain, I will update you all...........Thanks again for your warm welcome

 

Much Love & blessings to you all

Snorkels


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/26/2012 8:58 PM (GMT -6)   
Snorkels,

Welcome here. You will find great advice and great support here without judgement. From reading the posts, you have been giving so much good advice so far, that I can't add anything productive to the mix.

I wish you the best, and hope you find some better solutions for controlling your pain.

Another good thing about being here at HW, is that you can vent freely, we all do from time to time, and it helps most of us.

You are definitely not alone anymore with your medical troubles. And the only advice I can give you (I am dealing with advanced prostate cancer, cancer pain, etc with no hope of a cure), is to never, ever give up hope.

David in South Carolina
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities

snorkels
Regular Member


Date Joined Jun 2012
Total Posts : 40
   Posted 6/27/2012 2:01 PM (GMT -6)   
Hi David, Thankyou so much for your warm welcome & kind words. I'm so sorry you are going thru this, I wish their is something I could say to help you thru this too. 
 
Before I found the forum, I had hit rock bottom I felt so alone, then suddenly I stumbled across here, the relief lifted me, (when I plucked up courage to post) I don't feel alone any more, the advice people has given me has help so much, I don't know how to thank everyone. I owe you all alot. Thankyou to you & everyone from the bottom of my heart, you've all been so kind
 
Much love & blessings to you
Snorkels

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/27/2012 2:15 PM (GMT -6)   
You owe no one a thing. Support is freely given and heart felt by the good people here. There may be different reasons and causes for our chronic pain, but we walk the same path and fight the same beast: Pain.

I have found in my "real life", that few can comprehend what it really means to hurt 24/7 without a break. Even in my condition, many see me and say, "Hey David, you sure are looking good." Probably an honest comment, but I am usually thinking, gee, if you only had to live 24 hours in my body. I don't feel good inside. I hurt all the time when I am awake, obviously the degree of pain is masked by the meds I take, but I still often wake up in the night from sheer pain. I haven't been pain free since at least July of 2010, so coming up on the 2 year mark. I know that it is not as long as some members here, but its been long enough, that I can no longer contemplate what it would feel like to be pain free.

With my cancer progressing, I know that I am only at the beginning of the end, and just barely started on a pathway of even more pain. My only consulation, is that my oncologist/pain manager assures me, that as things develop, he's confident that he will be able to keep me out of the worse pain that may lie ahead. Without that assurance, it would almost seem hopeless and pointless.

I live one day at the time, and thank my blessings for the day completed. I no longer plan far ahead, as each day is its own burden. What I have found in almost 4 years at HW, is that the more I attempt to help others, the better I feel. For as bad as I think I have it sometimes, it doesn't take long, to read of those that are far worse off than me.

We are here for you, we are here for each other. Trust me, I take as much as I give here, I am not some super-hero, I have my weak moments, my depressions, my concerns too, I am mortal and pain feels the same for me as it does the next person, nothing unique in that. We just share a common burdern in life, and we can relate to one another, as fellow pain sufferers.

David in SC
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities
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