Statin induced periferal neurapathy.

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cats
Regular Member


Date Joined Jun 2012
Total Posts : 28
   Posted 6/21/2012 1:20 PM (GMT -6)   
14 yrs ago I was on zocor for cholesteral. I developed muscle problems and periferal neurapathy. Two trips to Mayos and talks with the drug company concluded it was the statin that damaged the small nerve fibers in both feet. This is a very burny  -like pain. I was wondering if anyone here has nerve damage from Statins or suspects that they do. For me the damage is permanent. I have to depend on hydrocodone to get relief. So far 1/2 tab makes it bearable so guess I am lucky that way. I don't abuse my my pain meds. I had tried other statins but they all caused the muscle/foot pain . Its my belief that all statins share a common ingred. The one that does the damage if you are suseptable.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 6/21/2012 1:35 PM (GMT -6)   

 

       Hello Cats!

          I have been on most cholesterol med's at one time or another, and found that the statins were the cause of most of my joint and muscle pain. I was dumb on the subject, until my wife bagan to take them as well, and decribed some of the same symptoms as I had. After some investigation, we found this as one of the side effects to taking them.

     We both stopped them, and after a few weeks the symptoms went away for the both of us. At the moment we are not on anything, so that is a problem with the cholesterol numbers. I have had one Heart Attack already, so I'm at high risk for another. shakehead  

 I don't have an answer as what to do to lower it, but I believe diet and exercising will help some. There are some natural OTC supplements that may help as well. One of our Moderators on the Fibro forum, has done quite a bit of research on this, and she is my go to person on this subject. I will ask her to chime in her if she has some time. She is a bit ornery, but makes me laugh, and that all that counts at the end of the day! tongue  

 Good luck!

   SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 6/21/2012 12:48:27 PM (GMT-6)


Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 6/21/2012 2:41 PM (GMT -6)   
Hey cats,

I've never taken statins, but I'm diabetic and I imagine the peripheral neuropathy is much the same. I take Gabapentin for mine. It works much better than normal pain killers on that pain at least for me.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C6-C7

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17896
   Posted 6/21/2012 4:24 PM (GMT -6)   
Hi!

I do take Zocor. I have fibromyalgia so I have a lot of muscle pain to begin with. But I seemed to be developing more pain so I researched all of the medications I took to see if any could be causing this extra pain, since fibro is not a progressive illness. That's when I saw that statin drugs can do this and that you should talk to your doctor if you start to get muscle pain.

It seems that statin drugs can deplete your body of CoQ10, a very important enzyme that is found in nearly all the cells in our body. I talked to my doctor about this and he had me stop the Zocor and take 100 mg of CoQ10 in the morning and 100 mg in the evening for one month. Then I was to start up the Zocor again but continue taking the CoQ10. This did the trick. I'm on both now and don't have the extra pain.

There is a good site all about CoQ10 but I'm not on my computer right now. I'm on my iPad. I'll see if I can find it and post about it. I hope this helps you some.
Okay.  I'm on my computer and here is the site I was talking about.  CoQ10 has many health benefits as this site will explain. 
 
 
Thanks, SE.  The type is very small on the iPad so I can't see what I'm typing! 

Sherrine


(Sherrine, I know that your on your iPad, so I corrected a few typo's for you) Your Very Welcome! SE smilewinkgrin
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 6/21/2012 3:44:35 PM (GMT-6)


Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 6/21/2012 4:54 PM (GMT -6)   
Cats, I hope you,... and other members take a peek at the information that Sherrine has posted here for you. Many Dr's will recommend taking this supplement, and ours did as well.

Good luck!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

cats
Regular Member


Date Joined Jun 2012
Total Posts : 28
   Posted 6/21/2012 6:58 PM (GMT -6)   
I have done quite well without the statins. I wouldn't take one ever again. I'd die with a higher than normal chol. level first. I have went through the gamit of drugs to control the pain. Neurontin( it stopped working) lyrica( elevated my bl sugar, gained 30 lbs of fluid in my body/legs..very unsteady on my feet. Cymbalta..gave me muscle jerks and balance problems. I talked it over with my dr. and we decided a better alternative for me was to take the hydrocodone being 1/2 tab will knock the pain down to a tolerable level and at my age (73) I am not likely to get addicted and very few side effects, if any.  
    As for the cholesteral. I was on Niaspan for awhile. The flushes got the better of me. Inbetween I had Gall bladder surgery and developed Bile Salts diarrhea. Dr. took me off the Niaspan and put me on Welchol which  constipates me and hopefully lower my chol. at the same time .I'd much rather deal with the constipation than diarrhea. . So far, its working well.The surgeon said I may develop diarrhea after my Gall Bl, was out. I did and it got so I couldn't plan anything, go anywhere and the cramping was another painful thing.
    I think I am just a person who is sensitive to medications. I now believe, the less, the better.I am very leary of any new medications anymore. If the dr. has to order something for me, I ask for a generic; not because its cheaper(which it is) but because generics have been around a long time and the side effects are well known. Its also my belief that most dr's don't know the side effects of the drugs they are ordering. That fact is why zocor damaged my nerves in the first place. The dr. I had then kept denying zocor could cause nerve damage. ( I fired him).( off my soap box now).

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17896
   Posted 6/22/2012 7:31 AM (GMT -6)   
We can't expect our doctors to know absolutely everything.  We need to be advocates of our own illnesses.  We need to pay attention to what our bodies are telling us.  When I was feeling extra pain, I didn't ignore it.  I took charge, did some research, and thought I discovered the problem.  Then I spoke to my doctor, he agreed, we took a plan of action, and now I have no problems. 
 
Pharmacists know more about medications and supplements than our doctors.  After all, that's their job.  I talk to my pharmacist about what I'm taking and if it will interact with anything, too.  When I pick up my medications, I'm always asked if I have any questions for the pharmacist, too.  Also, you can go to Drugs.com and look up the medication and see a list of side effects if you are starting to get other symptoms. 
 
The statin medications are good medications and help many.  I know quite a few people on them.  I'm also diabetic...for 20 years....and neuropathy is an issue with diabetics but I have no problems taking Zocor.  I'm taking it, not because I have cholesterol problems, but because my doctor wants to keep my cholesterol extremely low because diabetics are more prone to heart attack and stroke.  Actually, Zocor is in a generic now, Simvastatin, and I take the generic.  I agree with you totally about generics, too.  I believe drugs have to be out there for 20 years before they are made in generics.  This helps pay the pharmaceutical company for all the time and research in developing the medication.  I'm not positive of that time frame but it's a long time.  By the time a drug is generic, people know if there is a big problem with it.
 
I'm right with you in saying less is better.  I only take what I think is necessary.  I use more vitamins and supplements to help with my health problems and, so far, it's paying off.  But some people need medication like statin drugs.  They have a fine history but you need to know about it depleting the CoQ10.  I'm sorry you had such a problem with it and hope you are doing better now.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1380
   Posted 6/22/2012 8:27 AM (GMT -6)   
My DH and I are both on statins. He is diabetic - T1, I do not have diabetes. He has had a heart attack, so the med is very necessary for him. I have several other issues and I have neuropathy. My DH has neuropathy from the diabetes. He is also on the gabapentin. It helps to a degree.
 
My back in particular is either numb or burning, all day, all night. Sherrine was talking over on the Fibro forum about something she used to help w/ the 'fun' of Fibro. The product she used was called Sombra, she ordered it from Amazon. I figured it might be worth a try. I have tried sooo many things, and they really didn't help that much.
 
I ordered a jar of the 'warm therapy' - I don't like cold things near my body.  shakehead   My DH rubbed it on my back and I can't begin to tell you the relief I felt. I suggested to my DH that he might want to give it a chance. He didn't expect much from it. He rubbed it on his feet (big source of pain) and his knees. He couldn't believe how much better he felt in just a few minutes.
 
My DH's foot dr was very interested to learn about this product, maybe mention it to other patients.
 
I had my gallbladder removed over 20 yrs ago. I also developed BSD while still in the hospital. My dr had no idea what was going on, thought I had an infection. After many months of this nonsense, I went to the gasto who put me on Questran. It was first used for High Cholesterol, but off label is used to control diarrhea. It helped me so much. I don't use it right now, I guess I'm in a stable place w/ the Big D. lol   Also, I can't take Questran & the statin together.
 
My DH and I take the Co-Q-10. Our cardio was very happy to see that on our list of meds/supplements. Thank you again, Sherrine!  yeah
 
Hope you all have a good day!
 
God bless.  Alice.

Tyrion Snow
New Member


Date Joined Jun 2012
Total Posts : 1
   Posted 6/22/2012 10:11 PM (GMT -6)   
Hi all,
 
Am new to this site. My 1st post. I have been on statins for 3 years now and my Dr was surprised that I got peripheral neuropathy so soon after being diagnosed as a Diabetic. I developed it only 6 months after starting statins and becoming a diabetic.
I am now on Norspan 20mg patches and Gabapentin 600mg x 3. I have tried a number of other things 1st but to no effect. I still have the pain but it is nearly manageable.
I asked my Dr about going off the statins and he was dead against it. Would love some more feedback as I am not convinced. I am very overweight (100kg) but I can't walk very far or for very long. Shopping is even a problem......
 
Just blowing off steam I guess,
 
Nice to meet you all
 
TS confused
Major Depression, Diabetes, Peripheral Neuropathy (feet), Chronic pain in feet

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17896
   Posted 6/23/2012 6:57 AM (GMT -6)   
Hi, TS, and welcome!  Did you read through this whole thread?  There is a lot of info here that might help you.  You might need to be on CoQ10...a supplement.  I would suggest that you read the info about it and talk to your doctor.  Hope you feel better soon.
 
Sherrine   
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

cats
Regular Member


Date Joined Jun 2012
Total Posts : 28
   Posted 6/23/2012 11:34 AM (GMT -6)   
Statins and the side effects of same are sure a controversial subject. It is my opinion that physicians should do heart tests, bl vessel scans, inflammation tests and so on before they hand that patient a prescription for a statin. Access their need for a statin beforehand. They should prescribe more exercise, lo fat diet, maybe some niacin and fish oil over the counter before they give the patient the loaded gun of a statin which has ruined the life of many people.Physicians are very uninformed when it comes to diet. Why don't they send people to a dietician?
    Its very ironic that I am doing much better on non flushable niacin, fish oil, eating a few walnuts everyday( they raise the good).than I did on zocor..There are alternatives to statins. Those should be tried first! I have read that generally its the inflammation in the bl vessels more than the plaque that gets one in trouble. I am diabetic and I am well aware of its effect on bl vessels and organs. It really does boil down to diet and exercise and your genes. I also have a suspician that some of the memory loss/dementia patients have taken a statin. Please do some research. Tell your dr you want to try something else if you have achy muscles, numb/tingling toes/feet./forgetfulness. It may save you from a life time of pain like I have.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17896
   Posted 6/23/2012 1:04 PM (GMT -6)   
Cats, I didn't have high cholesterol to begin with.  I'm taking it to keep it extremely low because, being diabetic, I'm more prone to heart attack and strokes.  My cholesterol level was 123 at last check.  I feel good and have no problems taking the statin drug since I started including CoQ10.  CoQ10 great for the heart, too, if you read the link I put in yesterday.  For me, I consider this preventative measures for my health.  I think it will pay off for me, too.
 
But, again, it's so important to "listen" to what our bodies are telling us.  If I started having numbness or pain, I would be questioning my medication along with possible other problems.  If it turned out to be the statin drug, then I would stop it.  But, so far so good.
 
Irish Babe, aka Alice, mentioned the Sombra.  I really love this.  My daughter has used it for severe back pain, too.  Alice said that it did help her husband's neuropathy, too.  Perhaps you would want to try this.  It's all natural, too.  I prefer the roll-on so I don't have to get my hands in it.  I live by myself and my back is my greatest issue.  I bought the long barbeque tongs with the little lock and lock the roll-on in those and can reach all areas of my back all by myself!  (Do I get a gold star???  LOL)  Anyway, here is a link to it.  Read the reviews, too.  It really is good stuff.  My massage therapist introduced me to it several years ago and I have told many about it. This is the product I use...the warm therapy gel.  If the "ball" gets dry, just shake it.  I'm not always holding it upside down.
 
 
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 6/23/2012 12:31:24 PM (GMT-6)

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