i spend most of my time at HW in the Prostate Cancer community of course, and I am nearing the 15,00th post mark, hard to believe, lol. But we get newly diagnosed men every single week, and I can't find it in me to turn my back on all the new men, or their wives, that come to us shocked and awed with a new cancer diagnosis. Most come very afraid, until they have a chance to learn more about that type of cancer.
i need to spend more time here to be honest. my cancer is no longer remotely curable. i have a great oncologist, who's main goal right now, is to keep me out of as much pain as possible. my CP is officialy diagnosed as cancer pain, which can include pain caused by cancer treatments, as is the case with me.
i have great communications with the doctor and his nurse, and when i am not seeing him for regular visits, we have a constant trail of e-mails, regular letters, and phone calls. he's always ready to adjust my pain meds on an instant, i know i have one of those rare, caring, and very communcative type of doctors.. wouldn't consider switching away from him.
there's little that can be done for the rate of progresion for the cancer at this point, but so glad he understands fully, what it is for a patient to live with serious CP. He is a pain specialist as well.
i just keep on keeping on, attempting to enjoy what time i have left with my wife and family.
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities