Had my cath/angio today.

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Jim1969
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   Posted 6/22/2012 7:36 PM (GMT -6)   
Had my cath/angio today and I am not a happy camper.

The procedure went fine, at least as far as no complications and as far as what they did but it is what they did and especially what happened afterwards that has left me quite angry.

For starters all they did was diagnostics today. The reason this has me mad is that I had an MRA done a short time ago under the impression that it would eliminate the need for a diagnostic angio and reduce by one the number of times I might have to undergo this procedure to get all the blockages cleared up in my right leg. This is what I was told/led to believe at my initial consult with the IR department. I honestly feel that I have been lied to.

The worst of it though started during the procedure and after it was done and I was taken to recovery where I had to lay on my back for 5 hours.

At the last consult with the doctor where I agreed to undergo the angio, as well as multiple time today I told EVERYONE that I suffered from back problems and that laying on my back is going to cause me a lot of pain. I was assured many, many times that any pain I would have will be well managed. This turned out to be nothing but one huge lie.

My back started acting up during the procedure but was tolerable with the general pain meds and sedative I was given. By the time I was being wheeled to recovery my back pain was around a 5. Within 30 minutes of getting to recovery my pain shot to a 9 and I reported it. I was given 2mg of Fentenyl through my IV. 30 minutes after that I still had no relief so they give my 6mg of oral dilaudid. Nothing, zip. While this is what I take normally for my pain I have never had to take it for a 9 closing on a 10 pain level and at home I am able to switch positions to remove/reduce any pressure. Not so in the hospital.

There next thing was to give me 1mg of dilaudid via the IV and this because I was ready to get dressed and walk out AMA. Water would have done more good.

Through all of this I was using every meditation/mental discipline at my disposal and the best I could do was to keep the pain in my back from going from the 2nd worse pain I ever had to the first. At some point in the last hour I know I passed out from the pain. Before that I was crying and screaming in pain, and was all but ignored.

The next thing I know I am being woke up by the doctor just before it was time for me to leave. He wanted to schedule the next procedure. I flat out told him that there was no way in hell I was going through another procedure with him. In no uncertain terms I told him that one he and everyone here knew before hand that I have major back problems and that I could not lay down on my back, or in any single position for long with out some major help in the way of pain management. Secondly that he as well as all the nurses I spoke to before the procedure early that day assured me that any and all pain I had during and afterwards would be taken care of and finally if leaving someone in pain at a rating of 9-10 for 5+hours was his or this hospitals idea of adequate pain management it is beyond pathetic and there is no way I was going to subject myself to any more of it. The pain I have in my legs in a pin prick compared to what I went through today.

Before the weekend is out, first of next week at the latest the hospital administration is going to be hearing from me. There is absolutely no reason why I or anyone else should be left in that type of pain. IMHO it borders on the criminal.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

Blessedx8
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   Posted 6/23/2012 12:06 AM (GMT -6)   
Jim,

I'm so sorry you had this horrible experience.... You did everything "right" on your part - letting your worries be known beforehand and so forth.

I've had a few very similar situations happen... the last time I had it happen was after my D&C in September. I was brought into recovery and - very similarly - given IV Fentanyl.... then onto oral dilaudid. It wasn't enough. I've had 8+ uterine surgeries for goodness sakes.... I won't get into details - but I threw a FIT (I'm normally an easy going, pretty reserved person....). In the end, I was kept in recovery and given more IV meds... but it took me going ballistic to get that.

I really think a contributing factor is that pain management by many in the medical field is poorly understood. It could be that many people do just fine w/ that 2mg of fentanyl... and they thought they were doing you a "favor" by giving you the 6mg of oral dilaudid... and how in the world could it not be working??

But, once again, I'm tired of people having to suffer for others not understanding pain management. For your sake and for others... I really encourage you to follow through w/ your complaint to the administration.

None of this will make up for the suffering you went through.... and I'm really sorry for that.

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Jim1969
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Date Joined Jul 2009
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   Posted 6/23/2012 12:32 AM (GMT -6)   
Yeah. I honestly thought I had covered all the bases before the procedure. I even informed the doctor that I was a CP patient and that I had been taking narcotic meds for many, many years. I also informed him that the amounts I take are just barely enough to allow me to function and that is all. That they were not enough to take away all of my pain.

In addition to all of this I explained my feelings about pain management and what I found acceptable. I told the Dr, and many nurses as well, that I do not expect to have 100% relief but that I do expect to have any pain I have to be kept at a 4 or less, which I think is being very reasonable.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

White Beard
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   Posted 6/23/2012 7:17 AM (GMT -6)   
Jim this post brings back memories of my last surgery I had on my neck with the posterior fusion of the articular joints, I was in the hospital for 8 days, and majority of them was in severe pain, and then when I was transferred to the rehab facility they gave no orders at all for pain relief! So the first 16 to 24 hours was the worst I had ever experienced! There is absolutely no excuse for the way you were treated, no excuse for any chronic pain suffer to have suffer more when having a procedure/test or even surgery! The Hospitals, Doctors, and Nursing staff, have the ability and resourses to prevent this from happening! But they just won't use them!
 
I can definitely empathize with you, and share in your anger, and frustration! Reading about your experience, brought back so many memories, and I was fuming just reading about your treatment! Uncalled for to say the least!
 
I do hope you let the hospital know about your displeasure on Monday!
 
White Beard

Snowbunny21
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   Posted 6/23/2012 8:00 AM (GMT -6)   
Jim...I am so sorry to hear about how things went...

I can empathize as well after my last surgery...even though I have the most fantastic Neurosurgeon....his orders were not followed properly the first 24 hours and I was in so much agony it is seared into my brain...

Thankfully I have a wonderful PM who works in the same practice now who will coordinate everything....

So, the only thing I can suggest is when you find another Dr. to do any more of these tests or procedures....Is to have your actual PM DR....(or whoever is handling your pain management)....call directly to the Dr. who is performing the procedure so that they can have a heart to heart on what medicines you are on now....And what it will take to manage your pain during something like this.

This way...it's not you trying to explain this to the DRs. and nurses...but Dr. to Dr...

Anyway...I know it doesn't change anything that has happened:(

I hope your pain can calm down this weekend and that you can rest...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Kaely
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   Posted 6/23/2012 9:03 AM (GMT -6)   
I really think most doctors and nurses do not even begin to understand CP. I also have lumbar damage and there is NO WAY I could lay on my back for any length of time, let alone for hours. That is just torture. I can imagine the pain you must have felt and you definitely have my sympathy.

I hope you follow through on going to the administration. They should know how horrible your experience was and hopefully do something about CP patients in the future.

I hope you can get your pain levels down soon and never have to go through that again.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C5-C6

Screaming Eagle
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Date Joined Sep 2009
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   Posted 6/23/2012 9:07 AM (GMT -6)   
 
        Morning Jim!
 
    Sounds like you had a rough time of it there! Sorry...I know it wasn't fun for you at all. I had the same problem after my last surgery as well...and boy howdy...that makes the day rough!
 
   Hope you get to feeling better soon, and I bet Karen will be glad to see you back as well.
 
    SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

momtofourangels
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Date Joined Apr 2010
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   Posted 6/23/2012 3:36 PM (GMT -6)   
Hi Jim I'm so sorry that you had to go through that torture. That's just uncalled for. If I were you, I would definitely be talking to the administration of the hospital. I really don't understand why us CP patient s have to go through such. I hope your pain is under control now, and that you're resting comfortably. Take care.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Jim1969
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Date Joined Jul 2009
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   Posted 6/23/2012 8:04 PM (GMT -6)   
It was totally uncalled for and considering the hospital I was at is a level 1 trauma center there is even less of an excuse for it. If the doctor who did my procedure was either uncomfortable or was not knowledgeable about prescribing pain medications there were plenty of other doctors he could have called from ER physicians to trauma surgeons to seek advice from.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 6/24/2012 7:43 AM (GMT -6)   
 
         I agree Jim!...and am worried about your pain level on a daily basis. Sounds like you need an adjustment? I have never met a bedside nurse that thought I derserved pain med's above what they thought was enough for me,...especially if they know that your a CP patient and take them on a regular basis. Once they realize this, it seems they switch mental gears.
 
    Take care,
 
   SE
Moderator Chronic Pain Forum

Weekly Quote!

"If you trust Google more than your doctor then maybe it's time to switch doctors"

Post Edited (Screaming Eagle) : 6/24/2012 8:34:14 AM (GMT-6)


Jim1969
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Date Joined Jul 2009
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   Posted 6/24/2012 11:28 AM (GMT -6)   
My day to day meds do fine for me on a day to day basis as I am not forced to remain in any single position.

After the cath though I had to lay on my back for 5 hours and that is where the problem came into play at. It is like having an ingrown toenail that is somewhat painful. You take a couple of Tylenol and it gets rid of most of the pain and you go on with your day. Park a semi truck on that same foot/toe and the pain increases 100 fold and that Tylenol isn't going to do much good.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

Blessedx8
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Date Joined Aug 2008
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   Posted 6/24/2012 1:58 PM (GMT -6)   
That's a good analogy, Jim - and VERY true!

I was thinking of your situation... and it's something I have to remember for the future too... you can always when you are at a hospital demand to speak to the charge nurse.... and, given your situation, you had EVERY right to do so.... lying there in that amount of pain w/out proper meds is uncalled for -- especially when you stated your needs/worries beforehand. (I know hindsight is 20/20... I'm just saying for future stuff).

Just out of curiosity - when you told the doctor about what happened... not doing another procedure w/ him... not being properly medicated... what was his reaction? Apologetic or didn't really care?
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Chartreux
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Date Joined Aug 2006
Total Posts : 9664
   Posted 6/24/2012 9:50 PM (GMT -6)   
Jim, So very sorry this happened to you and we were thinking of you.
Many Prayers and well wishes and keep us posted on what the outcome
Of this is, do make sure to keep documents on what happened as you need
to keep a paper trail. I hope nothing like this ever happens again to you or anyone.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Jim1969
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Date Joined Jul 2009
Total Posts : 2042
   Posted 6/25/2012 4:15 AM (GMT -6)   
Pretty much my exact words to him were:

"I can't go through this again if my pain is not able to be controlled any better than it has been."

His response:
"Well that is your choice." He then proceeded to tell me that I needed to be walking for 1 1/2 hours a day in two 45 minute segments if not the entire time in one shot. He was told a few times how my screwed up back and the severe diabetic neuropathy prevented me from doing that before the blockages became known and a problem.

So what does that tell you about his level of caring and understanding my friend?

I know I need to have the blockages in both legs fixed but right now I am so "gun shy" it is going to be quite a while before I can even start to think about trying again. I already know that it will not be with doctor and I seriously doubt if it will be at this hospital either. The only good news is that I do have other options. At least 2 other hospitals within the same distance do this kind of work.

BTW: Here it is Monday morning, the procedure was this past Friday, and my back pain is still greatly increased from "normal".
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

Monty's Mom
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Date Joined Aug 2010
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   Posted 6/26/2012 12:57 AM (GMT -6)   
Jim,
 
I am sorry I missed this earlier, and I am disgusted by what happened to you! I know that doesn't make it better, but still.
 
Document everything. Also, call the hospital or facility where it was done and talk to the patient advocate or the patient satisfaction department. Someone at the facility needs to be told the lack of respect and pain control you went through, so that it can be dealt with.
 
I pray that you find the doctor and facility that will best provide the treatment for the blockages. I agree that doctor did not know a thing about your or respect your needs as a patient and human being.
 
Just a thought, have you ever tried a pedaler? Its like bike pedals that can be used on the floor or bed for legs, and on a table for arms? My grandfather used one when he had DVTs and blockages in his legs also. It helped him greatly, and he was able to break the exercise down into manageable times for him.
 
Praying for you Jim,
Mindy

Jim1969
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Date Joined Jul 2009
Total Posts : 2042
   Posted 6/26/2012 7:22 AM (GMT -6)   
Mindy, never thought about one of those "pedaler" machines. That is something to think about and that might help. I see them quite often at rummage sales around here for only a few dollars.

Thanks for the suggestion.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

Boxerlover
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Date Joined Dec 2006
Total Posts : 275
   Posted 6/30/2012 3:47 PM (GMT -6)   
That is awful they did that to you! I'm glad you stood up for yourself. I had a similar experience when I was in the hospital with 14 kidney stones. I had had lithotripsy on one big one and then had a stint put in that was unsuccessful. So they decided to take the stint out and I awoke in recovery writhing in excruciating pain. Well the first thing the nurse says to me is you poor thing you had your kidney removed!! I totally freaked out but could tell I didn't have a surgical wound with stitches.

So they gave me small doses of pain meds and it was doing nothing and when I asked for more they said I had to wait until till I got to my room. Well once in my room, they said I had just been given some in recovery and I needed to wait. I was getting major tude from the nurse but I was like look something is wrong. I heard her sigh and tell the nurses aid to take my vitals which were off the charts so they finally called pain management and got me on a pump. What was going on was when they'removed the stint, a bunch of kidney stones began to pass. Even though they ordered the pump, by the time they got it up from pharmacy got it in and I pushed the button about 100 times, it took over 6 hours for my pain to go from a 10 to a 6,7. Never again!!

grandmaroses
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Date Joined Jan 2011
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   Posted 7/1/2012 8:46 PM (GMT -6)   
Jim I feel terrible for the treatment you received. I certainly hope you talked to someone that matters. I am thinking our care is so uncaring we should bring someone with us that cares and will stand up for us.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Chartreux
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Date Joined Aug 2006
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   Posted 7/3/2012 8:24 AM (GMT -6)   
Jim, thinking of you and hope you've been doing good.
Many prayers and well wishes to you.

getting by
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Date Joined Sep 2007
Total Posts : 42434
   Posted 7/5/2012 5:36 PM (GMT -6)   
Hi Jim,

I don't come to this forum much so this is the first I have seen of your post. I am very sorry for what has happened to you. I hope you are getting your pain levels under control now. Do keep everybody posted so that they know what is going on with you.

We miss you over in depression, but I know you aren't feeling well. Take care my friend. I am thinking of you.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Post Edited (getting by) : 7/6/2012 1:34:39 PM (GMT-6)


Blessedx8
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Date Joined Aug 2008
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   Posted 7/5/2012 8:07 PM (GMT -6)   
Jim,
 
I've been wondering how you are feeling.... post when you are up to it and give us an update.
 
--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask
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