Hi B38 - I didn't realise that you were another of us with CRPS/RSD. I'm sorry you're a member of that particular club. I've had it 13 years.
On SCS - we have got one member, Kristi, (her username is Rhaevin) had the SCS implanted for upper body CRPS. I know that she has had a lot of problems with shaking and difficulty walking when she has hers turned on.
I have full body CRPS, but only my legs covered by the stim. I do have problems with that disconnected sensation, and my legs will twitch or buckle - but I find this is only when I have the unit turned on. If it's off I don't have those issues. I know it sounds like a really stupid question, but do you improve with your stim turned off?
Hope your appointment yields some answers.
Moderator - Chronic Pain Forum
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.
Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump