Feeling frustrated.

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millymilan
Regular Member


Date Joined Jun 2012
Total Posts : 104
   Posted 6/24/2012 4:07 PM (GMT -6)   

I am feeling frustrated and in a lot of pain today. I have 3 conditions that are causing me pain. I had a visit with the pain clinic nurse practitioner and it did not go well. She was not very good. I am a nurse and I had concerns about my visit. I chose not to go to her again. I chose to go to a PA that I had seen before. I am scheduled to go back to the pain clinic in two months. The nurse that was helping the nurse practitioner gave me my instructions before I left. One of them was that my pain medications are for break thru pain and I am allowed 4 a day. This is what I was doing. They actually account the medications to be sure.   But she gave me the impression I am taking too much of the medication. I am in a lot of pain. I tried to express this to the nurse practitioner during the visit but her main concern was my depression I was having. I told her I already see someone for this sort of thing due to the fact I have Bipolar II, Anxiety and PTSD.  My pain conditions are degenerative disc disease of lumbar spine with MRI findings of bulging discs of lumbar spine except L5-S1 where I have a very large herniated disc with a displaced nerve root. I also have fibromyalgia and osteoarthritis in several locations in my body.  I take oxycontin 10 mg twice a day. I use to take 20 mg but the pain clinic decreased that dose to 10 mg. So I think with those diagnoses I am going to have some break thru pain often.  I also had some other treatments at the pain clinic and thought it worked well.  I am awaiting insurance approval for Radiofrequency Neuro Ablation to be done. I had the test procedures done and had high scores on them.  I also have a lumbar back brace on order and am expecting it to come in any day now.  So I am doing as they instruct me to do. I just can’t get past what this nurse practitioner said or inferred as far as the pain meds go. I even use a TEN unit when the pain gets bad.   Otherwise I am trying to take life day by day.


cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 6/24/2012 5:05 PM (GMT -6)   
Hi millymilan,

I'm sorry to hear that you're having a bad day -- and that your pain clinic is not adequately responsive to your needs.

Do you know why they decreased your oxycontin?

I don't know if this well help, but I use ice fairly often and find that it more so than heat, TENS or even my BT meds helps with the pain. Of course, it isn't viable to use ice all the time, and only helps in one locale, but if I'm going to be lying down anyhow, I'll often bring an ice pack to bed.

I'm glad to read that you're a candidate for RF ablation. Hopefully that will end up making a difference.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds:20mg Oxycontin daily, Oxycodone 5-10mg for BT. .25-.5mg xanax as needed for sleep, Verapamil 240mg SR (for tachycardia).

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 6/24/2012 5:20 PM (GMT -6)   
millymilan…after reading your post here….it seems obvious to me that you need to start planning a move to another PM clinic. But before you do, you need to have a good chat with the PM, and see if your care can be expedited in a positive direction. I don't know why they reduced the Oxycontin by half, and the lowest dose at that!….but your BT med's could be possibly greater than your baseline med…(Oxycontin) What is your dosage of the BT med?

I hope things work out for you soon….Take care!

SEwink
Moderator Chronic Pain Forum

Weekly Quote!

"If you trust Google more than your doctor then maybe it's time to switch doctors"

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 6/24/2012 6:16 PM (GMT -6)   
Sorry to hear you are not getting the proper med dosing that you need.
I would agree with Michael and try switching PM.
Is there any chance they would change you meds? why did they decrease your dose?

Keep posting and let us know how you are doing.

Suzane

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/24/2012 6:43 PM (GMT -6)   
sorry too that you are still suffering. and its annoying to read about people such as you, that aren't getting the proper meds in the proper doses to allievate your pain level. i am fortunate to have a great oncologist who is also a great pain specialist, and he makes it his prime mission with me, to keep me as pain free as possible. i hope things improve for you in the future

david in sc
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities

millymilan
Regular Member


Date Joined Jun 2012
Total Posts : 104
   Posted 6/25/2012 7:08 AM (GMT -6)   
Thank your for your responses and support. You all really gave me something to think about in this situation. The reason they gave me to decrease my oxycontin was to get my off the narcotics. This was the doctor's idea. But then the PA who I saw next vist prescribed percocet as a break thru pain medication. I did not understand this either but went with the flow. I have not seen the doctor except for procedures. I then saw the nurse practitioner in place of the PA becase she came to the clinic they have that is close to my home. What a mistake that was. I will not take convience in account again. The PA did an assessment on my and was very hand on and actually talked to me about my pain. I did not get this from the nurse practitioner at all. I am going to call the office today and see if I can get an appointment earlier than two months. I just feel I need some relief on this pain issue before 2 months.

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 6/26/2012 1:52 AM (GMT -6)   
Millymilan,

I think that you have a good idea, to make sure you see the practioner you want to see. It also couldn't hurt to get a second opinion, as long as you are able to make it to the doctor's office if you choose to change doctors.

It confuses me when offices have conflicting ideas. One says no narcotics, the other says yes, less breakthrough, more breakthrough and PT. It can become nauseating just thinking about the confusion. I know my first pain management doctor made me feel like I should not take any medications at all and simply lay down all day to keep my pain in a better place. WHat kind of life is that?

I hope that you find the pain control that you need, and get to see the practioner that you want to see sooner than 2 months. Please keep us posted. Praying for you.

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, endometriosis, history of adenomyosis with hysterectomy, ovarian remnant syndrome, IBS, SI dysfunction, arthritis, fibromyalgia, kidney stones, depression, and anxiety with panic attacks.

millymilan
Regular Member


Date Joined Jun 2012
Total Posts : 104
   Posted 6/29/2012 7:45 PM (GMT -6)   
I saw the PA and she was terrific. She gave me a cream that is used for arthritic pain. I am hoping this works. I was better seeing her and she explained things to me and the only bad news that she delivered to me was that I may have arthritis of my hips. LAst night I wok up in such horrible pain in the hip region and my back. She thinks the back is part of the problem but I may have arthritis in my hips. She was very caring and actually spent time with me to help me understand things.

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 6/30/2012 9:26 AM (GMT -6)   
millyann I am so glad you saw someone else it's called pain management clinic not pain clinic. My family dr was talking about changing my bt as well but it was because he felt I needed a little stronger la. He mentioned this to me months ago. I am sorry you are having such pain.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 7/1/2012 12:04 AM (GMT -6)   
Hi millymilan I am really sorry about the pain you are having, I don't quite understand why they lowered your oxycontin dosage from 20 to 10 bid, when you were still in pain? Was the 20 mg twice a day controlling your pain adequately? You don't get the opportunity to see your pain doctor every time you go for a refill? Maybe I am the exception but every month when I go in for my refill, I have to give a urine sample and then get taken back to an exam room, and the Doctor comes in and asks me if there is anything new going on, any new pain and is my pain being adequately controlled. After that if I do have something for him, we will go over it, and then he will order appropriate test, MRI, maybe epidural injections, x-rays, blood work or a referral to another doctor or surgeon, what ever he feels is necessary. Before he leaves the room he dictates his notes in front of me and then ask me if it is all correct! I go out and pick up my scripts, and if test or referrals are ordered, I have to wait and see the, clerk that does that,. When I leave I have my scripts and any appointments in hand. I go to this spinal pain clinic monthly. The only time I have seen a PA or nurse practicioner was for a follow up after an epidural injection or a test. Heck my spinal pain doctor even gave me a referral to a counselor when I was having marital difficulties and going through the divorce.

From what you have written, it just sounds to me like you are not getting adequate pain management treatment. Has your pain doctor ordered any test or anything? maybe referred you to a surgeon? It just comes off to me from what you have written that you should be getting better care???????? May like SE suggest, it might be time to be looking for a different pain management doctor!

I sure do wish you well and hope that things get better for you!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!
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