So sorry to read of your situation, especially at your young age. This is a good place to come to, to unload, as you did, and to even rant and vent. The folks here, myself, included, can handle it and understand your pain and frustrations.
To help understand your story, if you are only 24, why are you on Medicaid? Definitely sounds like you need to be referred to a specialist, to come to terms with whatever is physically wrong with you. Are you saying the doctor's wont refer you, or is it just a question of finance at this point.
Have you tried to find a pain specialist to help you deal in a more serious way with the pain part of your ailments?
You will learn real fast, and I think you already have, that very people ever truly understand what a person with CP really goes through, and how hard and miserable life can be with uncontrolled pain. Most people that feel pain, perhaps few pain for a few minutes, a few hours, perhaps a day or two, and can't comprehend what it feels like to hurt 24/7 with no relief.
Despite how you feel right now, my best advice, is to never, ever, give up hope. There may be solutions right around the corner for you that you can't see or believe in right now, but they are out there. You, have to be your own "Patient Advocate". You have to stick up for your health first, and that responsibility is squrely on your shoulders.
When you are not so emotionally or physically upset as you obvious and understandbly right now, you need to logically sit down and come up with a game plan. Make a list of potential doctors you could see. Study other options on the net, to see if you can get a sense of direction. See if the original doctor(s) will make a referal to a specialist for you, etc. You need to be in control of this situation, and not fall into the trap of self-pity (not saying that you are, mind you).
Sure others here will chime in and give you some better advice and suggestions. But feel free to vent away, get that frustration out of you so you can think clearly about what to do next.
I wish you the best, and as a fellow CP sufferer, I understand your pain, and respect what you are going through.
David in S.C.
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities