24 year old female suffering from Chronic Pain- undiagnosed for 3 years now

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MetterlingsLaundry
New Member


Date Joined Jun 2012
Total Posts : 1
   Posted 6/24/2012 10:09 PM (GMT -6)   
I don't know if this will accomplish anything, but I just need someone (anyone) to listen to me. I've seen doctors, but they always brush me off it seems...

For the last three years I have been in pain daily. It started in the spring of 2009, when I began having severe pain located in my right wrist. I went to my GP and he diagnosed me with tendonitis, saying it would resolve itself soon enough. It did not. Throughout the next few months the pain began spreading to my other wrist, my knees, hips, pelvis, shoulders and ankles. In addition to the daily pain I started having pretty intense fatigue as well. The kind of fatigue that keeps me in bed for days sometimes. My muscles tighten randomly to the point of tremors, spasms, and occasionally seizures. I have what I can best describe as Restless Legs, which makes virtually any position I relax in ultimately very uncomfortable.

I have Medicaid, but I have to pay 191 dollars in order to use it for anything. There has not been one single month that I've had a spare 191 dollars on my fixed income. My GP has run many blood tests, ordered x-rays and other testing (which has all come back "normal") but without access to specialists I'm afraid I will never get an anwser.

I am scared. I feel like pain has robbed me of a normal life. I feel helpless and hopeless, and no doctor seems to care that I have a shell of an existence. The best they can do for me is constantly switch between different anti-inflammatory medications that do very little to ease the pain. I've been told more than once that my symptoms must be pyschosomatic because they can't find any other explaination. I just want to be respected as a human being, and believed when I'm experiencing a pain scale of 6-7 daily.

I'm so angry at the world. I hate other twentysomethings who can wear high heels and have fun with their lives while I'm wrapping ace bandages and applying Icy Hot. I'm crying as I write this because the world has become such a lonely place for me.

I'm sorry for the saga... I just needed to tell someone. Rant a little, if only for my own sanity.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 6/24/2012 10:47 PM (GMT -6)   
So sorry to read of your situation, especially at your young age. This is a good place to come to, to unload, as you did, and to even rant and vent. The folks here, myself, included, can handle it and understand your pain and frustrations.

To help understand your story, if you are only 24, why are you on Medicaid? Definitely sounds like you need to be referred to a specialist, to come to terms with whatever is physically wrong with you. Are you saying the doctor's wont refer you, or is it just a question of finance at this point.

Have you tried to find a pain specialist to help you deal in a more serious way with the pain part of your ailments?

You will learn real fast, and I think you already have, that very people ever truly understand what a person with CP really goes through, and how hard and miserable life can be with uncontrolled pain. Most people that feel pain, perhaps few pain for a few minutes, a few hours, perhaps a day or two, and can't comprehend what it feels like to hurt 24/7 with no relief.

Despite how you feel right now, my best advice, is to never, ever, give up hope. There may be solutions right around the corner for you that you can't see or believe in right now, but they are out there. You, have to be your own "Patient Advocate". You have to stick up for your health first, and that responsibility is squrely on your shoulders.

When you are not so emotionally or physically upset as you obvious and understandbly right now, you need to logically sit down and come up with a game plan. Make a list of potential doctors you could see. Study other options on the net, to see if you can get a sense of direction. See if the original doctor(s) will make a referal to a specialist for you, etc. You need to be in control of this situation, and not fall into the trap of self-pity (not saying that you are, mind you).

Sure others here will chime in and give you some better advice and suggestions. But feel free to vent away, get that frustration out of you so you can think clearly about what to do next.

I wish you the best, and as a fellow CP sufferer, I understand your pain, and respect what you are going through.

Good luck,

David in S.C.
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 6/25/2012 9:23 AM (GMT -6)   
Steven....I just commented on your other thread that you started....

As I wrote before...being a part of this community is not about trying to get others to go offline to a site that you are promoting...

The quote you give about Doctors and their first year of medical school is absolutely not true.

There is a difference between stress exacerbating anyone's symptoms or illness. But there isn't a Dr. out there that believes 80-90% of illness are pscyhosomatic.

I've asked numerous times now....You quote yourself as being a "clinical therapist".....What training do you have? And are you speaking of being an EFT therapist? You seem to not want to answer this.....

This site is about people sharing their chronic pain journey.....Not trying to give false hope that there is some magic cure to everyone's pain issues if they just "think" hard enough....
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 6/25/2012 8:21 PM (GMT -6)   
Hi Metterling and welcome to the forum.

I'm sorry to hear that you are having such a hard time. I get muscle spasms a lot so I can understand how horrible it is for you I also have RLS so I feel your pain there. There is NO way to get comfortable with restless legs. I always had to just get up and walk around before it drove me mad.

Don't apologize for venting here, that's why the forum is here. For information and to know you are not alone. You might also want to check the Fibro 101 post in the Fibromyalgia section of the forum. There is a lot of information there. There are many really nice people on here who are happy to listen and to help with coping mechanisms. Keep coming back :)
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C5-C6
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