Welcome here, I must say, your story is a hard one to read. I can feel the intensity of your pain and suffering through your very words. I am so sorry you have had to endure all that you have. I understand how you feel about losing the doctor that you have had a good long relationship. I feel the same way about my current medical team. I have had the same GP for nearly 17 years, he really knows how I tick. I have had the same surgeon do the last 8 surgeries on me, he is also my urologist of some 5 years, again, he knows me inside and out. And I have a great oncologist who is also my pain manager, and he is very sympathetic to someone like me suffering from chronic cancer pain. I am dealing with advanced prostate cancer that can't be stopped, and was left disabled due to faulty radiation treatments 2 1/2 years agon.
You need to find a new, and hopefully equally good doctor as soon as possible. With your extensive medical history, you should have good records to transfer.
I wish you the best, and as I tell myself, and all others (especially the other men in the Prostate Cancer community), is to never, ever give up hope.
It rains on the just and the unjust, never feel picked on or persecuted for what you are living with. All things are for a purpose, even when we don't see the reasons or answers in this world. Stay in touch, HW is a great place for support, for advice, to vent, whatever you need.
David in S.C.
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities