New here suffering with severe neck pain.

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godsmack
New Member


Date Joined Jun 2012
Total Posts : 1
   Posted 6/30/2012 10:35 AM (GMT -6)   
I'm new to this site-actually I've never really expressed what I'm feeling on a site or to anybody really. I've had severe neck pain for several years, but recently it has become quite debilitating. I recently had an MRI which revealed that I have 3 discs in my neck that are quite damaged, severely limiting my activity. This is extremely disturbing to me, because my ENTIRE life and being revolves around being active. I'm an avid bodybuilder, personal trainer, mountain-biker - you name it I do it. I'm currently in the regimen of steroidal, non steroidal and opiate based pain relievers. This routine has been going on for awhile and now I'm at the point where I'm going to try steroid injections in my neck. I'm absolutely ready to try anything to get out of this miserable goddarn chronic pain. Here's a new wrinkle in my life though. While I'm sitting here drafting this letter, I've got tears rolling down my face and an incredible sense of doom and depression welling over me. I've felt this coming on for awhile and I'm really discouraged by it. I used to think I understood the dynamics and effects of chronic pain, but I'm getting a first hand baptism into this stuff. This is not me! I'm a strong man and I've been through alot in my life, but this is really kicking my butt. I just wanted to see if anyone else out there has some advice/experience etc....

Hello, I added a heading to your post and edited out a word. Please note this forum has rules and we have to keep things clean here, as we do not know the ages of everyone reading the posts. Thanks, Susie

Post Edited By Moderator (straydog) : 7/1/2012 3:48:06 AM (GMT-6)


cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 926
   Posted 6/30/2012 1:22 PM (GMT -6)   
Hi godsmack,

I am well familiar with the sense of doom you're experiencing as I feel on the brink of no loner being able to do my job: stuck between either too much pain or too many meds clouding my head.

Bear in mind that there are numerous options out there -- some may help more than others. It takes time to figure out what will work for you and if you keep at it, you might find some that really help.

Injections are hit or miss. I've had many and a few helped a lot, most didn't. But I'm very glad I went through the many that I did for the couple that did make a difference.

You might also be a candidate for various surgical options that, however, unpleasant, make help. If I recall, the cervical fusions are a fair bit more effective than lumbar fusions. So, do some research and keep it in mind.

As for opioid meds, it is hard to find the right ones -- so that you get relief without too many side effects, but there are many out there and it is important to find a suitable doctor who is willing to figure out your individual needs.

Sorry about what you're going through & welcome.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds:20mg Oxycontin daily, Oxycodone 5-10mg for BT. .25-.5mg xanax as needed for sleep, Verapamil 240mg SR (for tachycardia).

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3694
   Posted 6/30/2012 10:18 PM (GMT -6)   
Hi Godsmack and welcome to Healing Well Chronic Pain forum. As I read your post, honestly it brought back memories, not necessarily good ones either, but of a time in my life, where all there seemed to be was pain, and I coulld not work and in the end my life changed and I had to go on disability! I think I can definitely relate to what you are feeling, because besides having the thoracic back pain that ended my working career, I have also had three fusions in my cervical spine in my neck. I do know about the pain your feeling there! Has anyone mentioned surgery to you, surgery on the cervical spine is allot easier than just about any other place in your spine, and the results are usually very good! I was in the military when I had my first cervical disk fusion and I was able to complete my career after having the surgery. It really made a difference, it just took along time for them military to diagnose it and get the surgery done to fix it. I would strongly advise you to check into that and see if that is a viable alternative for you!

Chronic pain can wear a person down and allot of people that suffer chronic pain also suffer from depression, they actually go hand in hand! So your feelings are understandable, just know that your not alone in this, you have friends here on this forum that will listen and empathize with you and give you support! We are all here for each other, and now your here your part of our family on this forum.

Again I welcome you to our forum

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/1/2012 7:37 AM (GMT -6)   
Good morning godsmack!

I understand completely on how you feel! I too was a very active athlete back in the day, and a hard physical worker, full of competitive strength, and well known for it. I came here back in 2009, in much that same shape you are in now, and had never heard of the term Chronic Pain. This forum was a real lifesaver for me!

The sad thing is…that I'm afraid if you continue some of your activities, you may make things much worse. I know it's not an easy pull to swallow, but it is a very likely possibility. The injections may help, and again maybe not. It might be, that you may need some sort corrective surgery in the future as well, but in the meantime, again,... you may have to back off of these activities.

Take care,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"If you trust Google more than your doctor then maybe it's time to switch doctors"

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 7/2/2012 9:07 PM (GMT -6)   
Hi Godsmack, First off, Welcome to the CP Forum. Were glad you came here and hope we can give you the support you need when dealing with CP Issues.
Coming to terms with Chronic Pain can be extremely stressful and depressive. I know first hand how it is to find you are no longer able to do some things you used to do because of the pain and have that gloom and doom feeling. You will find it very common that people who have chronic pain are also on medications to help them deal with anxiety and depression. I had to take an early retirement because of low back problems when I found I could no longer work and it took its toll mentally on me.
I am on meds for anxiety and depression myself and have been for a while. I consider myself a strong man also, but having these feelings is not a sign of weakness. Like yourself at times I will still find myself with tears streaming down my face for no apparent reason at all. I occasionally have bad days but I am glad that I chose to seek counsel. It has helped a lot when dealing with all the emotions. My family Doctor started my treatment for anxiety and depression but later referred me over to a Counseling group to help me get on the meds that would benefit me the most and to monitor how I am doing. I was really reserved about going but since coming here and finding so many people who are going thru the same as me I realized I am not alone and it isn't uncommon at all.

Please seek assistance for the emotional side of things you are going through. And definitely be careful that you don't hurt yourself more doing your physical activities.

Stick around and you will find some great people here with a wealth of knowledge and can answer many questions you have.
Good luck.
You don't stop laughing when you grow old
You grow old when you stop laughing !!!

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 7/3/2012 6:38 PM (GMT -6)   
Hello Godsmack,

Welcome,

I am exactly like you.. my life revolved around fitness.... I am an avid tennis player that played competitively 3-4 times a week...
I've also done the entire 90 days of P90X and Chalean Extreme.... as well as other fitness DVD's I'm a fitness junkie... I had my number to do my first triathlon... but just about 14 months ago underwent my first cervical spine surgery....

I'm the lucky group of the 5% of patient who require another cervical spine surgery and am 9 weeks post op

I know exactly how you feel and wanted to let you know.....

I'm not sure where I will go from here.... I went back to the tennis 5 months after my first surgery, which was brutal...

My entire neck is damaged, my Neurosurgeon said because of all the extra bone growth I had... the injury must have happened when I was 3-4 years old and I have been suffering my whole life...

You need to first determine what is causing you pain... nerves, bone spurs, bones, muscles, ligaments or tendons

Unfortunately I would suggest to try everything before surgery... because you will never be the same after

I took just about 3 years truing EVERYTHING....

I am not sure what my future holds but if I refuse to not be active... I am still really, really struggling with it all....
Posterior cervicothoracic decompression and instrumented fusion (three levels) for spondylosis and stenosis with severe radiculopathy.. surgery performed 3/31/11

Post Edited (Draka) : 7/3/2012 6:41:00 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/3/2012 8:41 PM (GMT -6)   
Sorry you needed to be here, but glad you found us. Any type of chronic pain is hard to deal with. Hope you see some improvement over time, so you can get back to those active things you love.

david in sc
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities

mattolsen
Regular Member


Date Joined Jan 2012
Total Posts : 24
   Posted 7/5/2012 11:34 AM (GMT -6)   
I totally understand..... I'm 31 and was/sorta am a very active person. Before all of this fibro stuff I played soccer, ran, hiked, and did anything else that got me moving. I was struggling with pain to the point where if I did something physical I'd have to expect to be worthless for the next 2-4 days. I've tried the injections and they seem to help for a little bit but mine are trigger point injections. I've also read about some other facet joint injections for my severe neck pain. I'll say that the meds aren't the answer but they definitely help, you just need to find the right dosage/medications that help you live the life you want to within reason. There's changes you may have to make in your lifestyle but don't turn away from help because of stigma/fear/etc. of pain killers and what not. I'd spent way too much time worrying about all of that stuff and thinking I could just tough it out. Everyone reacts differently to different meds and procedures but unfortunately if it's not something some advil and a heat pad can't take care of you should explore your options. Good luck
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