Weird symptoms? I'm worried it's something chronic or deadly

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New Member

Date Joined Jul 2012
Total Posts : 7
   Posted 7/1/2012 6:59 AM (GMT -6)   
I'm a 20 year old male, and I've been having worsening symptoms over the last year. It started out a year ago with a tingling/numbness in one area on my back near my shoulder blade. This came and went and I figured it was just a pinched nerve. After a month or two it went away, and I haven't had tingling there since.

However, in January I started having weird symptoms. I'll describe the progression below:

January - March: Limbs would go numb occasionally when sitting indian style or leaning on my arm, etc for any period of time.
May - now:

-Cold water sensation down my legs when walking (worsens when walking in the heat)
-Rain drops sensations all over body
-Numbness and tingling in lower abdomen.
-Stomach pains, pain in lower left abdomen.
-Stools have many white/tan spots. Recently stools have been dark/blackish. They always look soft and are filled with the tiny whiteish globules.
-Pinky and ring fingers on both hands go numb and seem stiff when moved. Also pinky and ring toes on both feet feel weird and not quite there as well. Feels like my hands and feet are losing coordination. I can still move them but it just feels uncomfortable.
-Sharp pains that seem to shoot down my stomach all the way to my sphincter? Hard to describe but they're weird and hurt and feel like they travel from my stomach all the way to my lower intestine or something.
-Dry mouth, dry irritated eyes.
-Little mucus (for my whole life I've had to blow my nose every morning, I guess from allergies or from my family's cats. For some reason ever since all these symptoms started, I've been clearer than ever and have little to no mucus.)
-Little black floaters across my eyes frequently.
-Ringing in ears occasionally, also random ear popping and ear pressure.
-Acid reflux and heart burn.
-Weakness and aches all over, especially in limbs.
-Burning sensations in my heels occasionally.
-Occasional itching in random spots.
-I feel as if I have lost muscle mass, but I could be imagining that maybe. Either way I think I look skinnier than before and have less muscle tone, although I weigh the same (154 pounds).

^^^ most of these symptoms worsen at night, also. the two hours before I sleep and the 2 hours after I wake up are when I feel the weirdest.

I'm probably forgetting something but that's the jist of it. It feels awkward typing and playing guitar now, and semi difficult walking up stairs. I am very worried I will lose my ability to play music : ( playing guitar and piano feels awkward to my hands now.

Brain MRI came back normal. I then went to a neurologist, she ordered a Cervical and Thoracic spine MRI. Those were normal. She then ordered a bunch of blood tests that checked for Sjograns, sedimentation rate, HIV/AIDS, Hepatitis C, and a couple other things I don't remember, but all came back clear. CBC was good, B12 good, no anemia. Now my neurologist is saying Lyme disease test is the next step, although I don't have a rash and can't recall a tick bite anywhere.

Does anyone have any idea what this is? Could it be MS that didn't show up on the MRI's? : ( I'm so scared and feel like my body is falling apart. I don't want to lose my ability to play music and I just want some answers/help.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 7/1/2012 4:32 PM (GMT -6)   
Maybe get checked by a rheumatologists. And maybe go to a gastrointestional doc as its a good guess you could've gotten an ulcer with all the worrying. Also maybe ask your neuro for emg testing. Others will come by with better advise, please be a little patient as it is a Sunday. Many well wishes and keep us posted as we do care.
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 7/1/2012 4:41 PM (GMT -6)   
On the positive side, the docs have ruled out many things.

On the flip side - you still don't have a diagnosis - which I know can be really frustrating. It took me several years to get diagnosed w/ my health issues.

I would second going to see a rheumatologist.

I would also recommend posting on the MS board here and seeing if they have anything to add.

Maybe others will have more to add.... Good luck to you... I hope you figure out what's going on.

Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Veteran Member

Date Joined May 2012
Total Posts : 619
   Posted 7/1/2012 8:49 PM (GMT -6)   
It does sound like Lyme disease and possibly an ulcer. I am no doctor though. Hope you find your answers soon.
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C5-C6

Regular Member

Date Joined Jun 2012
Total Posts : 60
   Posted 7/5/2012 10:55 PM (GMT -6)   
What I can't get past is the color of ur stool. Pale colors or black coffe like is really bad symptoms. I have researched this before and it's never good. I would see a good stomach dr if I were u!! It also kinda sounds like u might have fibromyalgia considering ur pain. It sounds like a lot of nerve pain. I have some of ur symptoms and I have fibromyalgia, one emg I had showed something wrong with my sciatic nerve but the neurologist just dismissed it!! Anyway what I'm saying is u will come across Dr's who act like ur crazy or ur just trying to get pain meds, but don't give up keep looking until u find the right one!! I pray u get relieve soon! Keep us posted!!

Regular Member

Date Joined Nov 2011
Total Posts : 212
   Posted 7/7/2012 12:30 AM (GMT -6)   
You definitey have alot of symptoms! My "GUESS" is that it's always possible that the Neuro could have missed something.I'm actually going back Tues. to have some tests performed and had abnormal results in the past. I agree with Enajones that it may have some Fibro symptoms and suggest you post this on H.E. Fibro threads. The stool I suggest getting an appointment with a Gastrointerologis. Also sounds like an Immunologist could help.possibly be allergic to something and not know it. Are you currently taking medications, drinking or drugs now or in the past? I hope you get your health straitened out. Good luck!!!
Alone we can do so little, together we can do so much!
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