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NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/3/2012 10:46 AM (GMT -6)   
Hello  all, I am back a little at a time anyway.  A warning for anyone asked to have a myelogram which is what I asked to do .  I made the appt. I was taken back to a surgery room, an  IV was put in my hand.  In the surgery room, I was asked to roll onto my stomach, at this time I figured they would give me something to relax me with, otherwise why the IV, was I ever wrong, they rubbed alcohol on my back told me to be not told me not to move, they then shot a 12 inch needle in my back until they found the bad nerve, then shot dye into my back took pictures for contrast and it was over.  I asked the doc, why give me an IV if they werent going to use it to help with the pain, to which he answered, since I hadnt yelled out or moved he quessed I was ok. nono I was not, never again, I will  research everything anyone does to me from now on.
 
But I made it, I have the cd and I go back on the 18th and find out whats going on,  and get it fixed.
 
So thanks one and all for hanging in there with me.
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/3/2012 11:41 AM (GMT -6)   
Hey NiNi,
My Mom had alot of back problems back in the 80's and I remember all the pain she endured from myelogram tests! In 1997 I  had to have back sugery (3 herniated discs nice genes huh? lol)
My Dad who worked at a pharmacutical and was pretty up on his tests because of my Mom having 3 back surgery's (then finally a fusion) told me never get a myelogram tests. He said there really isn't any reason ...an MRI can tell everything if it's read correctly. People go to school years to learn how to read them too.  He also said some older Dr.'s like to use myelogram tests and hospital's like to get paid for old machines sitting around...
Both my parents have passed away now.  But, I think if that tests is ever required of me...I refuse... Or...put me out!
Hang in there!

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 7/3/2012 12:02 PM (GMT -6)   
OMG, I have endured a lot of tests but that sounds like cruel punishment. Thank you for sharing.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/3/2012 12:21 PM (GMT -6)   
Hi Kathy....

I've thought about you several times and wondered how you were doing.... it's good to hear from you... but I'm sorry for what you had to endure w/ the tests - that sounds awful!

Things here are about the same... Good days, not so good days. I just try to live in the moment and do the best I can.

Hope to see you posting more when you feel like it, Kathy...

Hugs to you... --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/3/2012 12:44 PM (GMT -6)   
Thanks all for caring and all your good thoughts.  When I read up on mylegrams, it nothing more than a spinal tap.  I dont understand, why would i need a spinal tap?
 
Well guess I will find out on the 18th.
 
Thanks again to all,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 7/3/2012 12:54 PM (GMT -6)   
Aw Kathy, I cannot believe the idiot did not give you light sedation. Just so you know, the test was not for nothing, it shows everything with the nerves in your spine, the dye shows how the nerve root sleeves fill and lots of other important info relating to the nerves. I know someone above said the MRI shows the same but that is not true. The MRI does not show everything with the nerves at all. It is an old test that is still done for this reason.

The good news is you have it out of the way an now the dr can see what is going on with you. Take care & keep us posted....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 7/3/2012 4:03 PM (GMT -6)   
I have been posting all afternoon, but wanted to get here, and welcome you back Kathy! yeah

Sorry to hear of the procedure trouble, and it irks me that they would do that! It's uncalled for completely!…and I sympathize with you. That is one reason I absolutely make sure we have that down in writing and a verbal assurance from the Tech that is doing the injection. I flat out won't do one without sedation. Period!

Hope you can visit us more, as you have been more than missed here you know! wink ...I have had many a member ask about you too!…so thanks for the update, and get to feeling better please!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"If you trust Google more than your doctor then maybe it's time to switch doctors"

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 7/3/2012 5:13 PM (GMT -6)   
I'm so sorry they didn't properly treat you with sedation.....

But as Stray mentioned...hopefully it will provide you with some more detailed answers and better treatment in the long run for your pain...

Rest up!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 7/3/2012 6:33 PM (GMT -6)   
Hi Kathy It's good to see your post again. You have been missed.

I'm sorry that the idiot technician didn't give you sedation, but at least it's over now. Please keep us updated on what you find out, ok? Take care.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/3/2012 9:48 PM (GMT -6)   
Kathy,

Just reading your needle in the back story made me cringe all over. Why would the dr. think you were ok, lol. Let's stick a needle up his back. I had a spinal done once, and once only, and would never consent to one again for any reason. Good luck to you.

David in SC
Age: 59, 56 dx, PSA: 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/10 .04, 8/10 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0, 4/12 37.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities

Kaely
Veteran Member


Date Joined May 2012
Total Posts : 619
   Posted 7/3/2012 9:53 PM (GMT -6)   
Thank you Kathy.

*adds myelogram to the list of things to NEVER do*
Chronic pain, Depression, Fibromyalgia, Tennis Elbow (both arms), Arthritis (knees and fingers), Diabetes. Ruptured disk L-4, Severe degenerative damage L5-S1, ACDF C5-C6

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 7/4/2012 4:40 PM (GMT -6)   
Thank you everyone for the support and sympathy.  Now enough whining its over and done.  Straydog, the next time I am advised to have a procedure, I comingo to you 1st.  The shame is that you gave me more information on what was going on than my dr, the tech, etc.  So thank you now I know what they are looking for and it makes sense now.  It still hurt, whoa, I said I would not whine again., so thanks.
 
And thanks to everybody, soon I will be buying my own laptop and wont have the problems I have  now.
 
I will let everyone know after the 18th what is going on, be back for real soon.
 
Kathy

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 7/4/2012 11:05 PM (GMT -6)   
Hi Kathy I have had two myelograms, the first one I had I was in the military in Anchorage Alaska, that was in 1985 they did not sedate me or give me anything for pain and they had to stick me three time before they could get the needle in and they put it in my lower back I was strapped to the table and they rotated the table so I was litterally upside down so the dye could run down toward my head so they could get pictures of my cervical spine in my neck!I have never had anything so painful done to me in my life! The second one I had done was in 2000 and they sedated me and I don't remember anything except for after it was over with I had severe leg and hip pain, and the next day I had to go back to the hospital and they gave me a shot of Decadron, as they said the pain was caused from swelling from the needle hitting the nerve, and that can happen when a patient is sedated when having this procedure done. So to me, I don't ever want to have another one whether sedated or not sedated. I can really empathize with you! It is not a fun test to have!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 7/8/2012 11:51 AM (GMT -6)   
Nice to see you post Kathy. Sorry to hear how they went at doing this test for you. How awful and certainly it should never have happened like that. Hope you get the answers you are looking for. Let us know what the results are.

Suzane
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