I'm moving this thread over to start your own... that way, people can welcome you and share their insights. Thanks.
I am new to this site but came across the forum while in search of some answers.
I am 25 years old and the mother to Mason and Gracelynn, my beautiful 1 year old twins. I am so lucky and incredibly blessed to have my children. They are my life and my world; however since getting pregnant and having them my life has been turned upside down.
I has started on Lupron injections as part of a fertility treatment. I was unable to conceive on my own due to stage 4 endometriosis. So anywho, I underwent the injections for several months and lucky got pregnant thru IVF.
I had a very difficult pregnancy and was put on bedrest from 10weeks till 34 weeks when I delivered. Since having the babies I was having severe joint/bone pain. Everything in my body hurt, knees, feet, shoulders, back, ect....memory problems, extreme fatigue, weight loss, unexplained bruising, depression ect.
For the first few months I attributed all this to being a new mom to twins and being out of shape due to bedrest. But when they were 3 months old I sought help because I knew in my heart that something was wrong. I was very healthy up until I got pregnant.
I started going to a rheumatologist and was given the diagnosis of Fibro. I wasnt taking that because like I said I know my body and I knew there was more to it. So testing was done and come to find out I have Lupus and RA now. No family history of this at all.
Since then I have been on two meds to control the lupus and pain meds for the joint/bone pain - to no avail. I am constantly in pain and no matter the amount of sleep I get I am always exhausted. The memory issues are so frustrating!!
An OB/GYN I know, knew of the problems I was having and told me I may want to research the horrible effects ppl are having that seem to be related to the Lupron. Well I did and I was somewhat relieved to know that there were many more ppl that were going thru this nightmare with me. I have been to my Orthopedic, OB/GYN, and Rheumatogist since finding this and researching it for several months. They all say that same thing......which is "its possible." I am desperate to find out how to treat the symptoms and control the pain.
Also I am having a hysterectomy next week because I just found out I have cervical cancerous cells. My body has fallen apart and I truly feel that its the Lupron to blame.
The depression/anger/crying are so difficult to deal with. I question myself constantly as a mother and wife..because I cannot do all the things that a 25 year old mother should be able to do.
Anyone else have any similar experiences or insight?