I'm pretty much at the end of my rope w/ my pain management journey. It's too long of a saga to get into all the details - but, the bottomline is this - I've been on just about every oral med there is, at varying doses. I've had a successful intrathecal pain pump trial - yet got meningitis from the trial. I use many other modalities for my pain - trigger point injections; nerve blocks; muscle relaxers; nerve medications; etc.
What happened though is that - by MY choice - I chose to go on a "drug holiday" of sorts towards the end of last year. I was building increasing tolerance to many of my oral meds - and I wanted to see if I could "reset" my pain receptors. Again, 150% my idea.
Well, wouldn't you know that..... one month after this "great" plan of mine - my PM doc (who I had a nearly perfect relationship with) - left the practice... and I got placed w/ one of his partners. Since then, it's literally been a nightmare. I've shared bits and pieces here and there.... but at the last appointment, she told me she is much more "conservative" and if I'll work w/ her on a "compromise". The "compromise" has been me continuing to be WAY undermedicated.
I'm so upset w/ myself.... because I was trying to do the "right" thing back in December/January. At the time I was on high doses of morphine, 8mg Dilaudid for BT and Fentanyl suckers for migraines. Nobody said I needed to change anything. I just chose to give my system a break. And, now, I'm having to jump through hoops to get one extra BT med or whatever.
So - these are my specific questions:
A) Has any here used Opana? Is it just a glorified version of a morphine/oxycontin mixture (I've been on both of those meds - although separately). Is it worth trying this?
B) If I go in there next week and see this is just not going anywhere..... what should I say? I have a great relationship w/ the entire clinic (front desk staff, medical assistants, etc). But how do I say "hey this relationship between us isn't gelling - I want to see your partner".... but I could tell she knew I felt this way last time.... I was just being nice by giving it another month.
C) Re: the pain pump - I completley know that's within my future - but I'm 39... and I want to push as long as possible because my CP issues don't seem to be going anywhere... and I want that to truly be the last resort.
Anyway, I'm just blurting things out here.... hopefully some of it will make sense. I'm really trying to figure out what to do if I go in there.... and she doesn't hear my message of "I'm undermedicated"......."This is severely impacting my life"..........and "I've got to give some other things a try".......... If she can't hear all of that, I can't stay w/ her as a patient.
If you have any thoughts, opinions, advice - whatever - it would surely be appreciated :)
Moderator - Chronic Pain Forum
My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.
Health/Pain Issues - too many to list; feel free to ask