Thanks all of you :)
Jane - I am very sensitive to ketamine, and can only tolerate about 1/2 the dose my doctor uses for most of his patients. I also have anxiety issues around strangers that are enormously amplified in situations where I'm not quite in control - if I'm sedated, having an anaesthetic...and the worst of the bunch is ketamine. It's worse again in busy places, where there is lots of light and noise and so on. I'd requested a private room for that very reason... and my dr likes to have a private room for each of his patients anyway because excessive light/sound/activity can be disturbing for a normal patient on ket. So naturally they put me in a four-bed room. A couple of days in, the other beds were taken and each person had a couple of visitors. Between patients, visitors, nurses, there were about a dozen people in the room, it was extremely noisy - and I went into a full blown panic attack. The nurses ignored me - basically they'd decided I was having a temper tantrum because they weren't finding me a room on my own. I asked if I could at least SIT somewhere quiet... and one of dragged me out on my crutches to the patient lounge, turned off the lights and left me there for three hours. She came in to change the med bag, give me my oral meds - but didn't speak to me, didn't check if I was okay... and nobody came back to fetch me. I tried to find my way back to my room, got lost... I use a w/chair because of my dystonia, and my 'comfortable' walking distance is maybe 10m on a good day. I probably walked 20 times that before I got back (with an IV pole too, mind you). When I got back I was almost passing out with pain - and my nurse just looked at me and said "Oh, you're back... feel better now do you?"...like I was a toddler having a tantrum. When I requested my charted BT meds they refused to give them to me.
Next day when all the activity in the room stirred up again, I could feel myself going the same way. Decided I was sick of it, asked them to call my PM and tell him I wanted to stop the infusion and go home. They wouldn't call him, wouldn't stop or slow the infusion rate. I stopped it myself, they restarted it. They refused to do anything at all until a friend of mine came to visit me and found me hiding under blankets- in tears, in total panic, and completely lost about where I was, who I was. She put her foot down and made them phone him - but even then they didn't tell him there was a problem, just that I wanted to go home. When they replied to my formal complaint, they claimed that they'd tried to contact my doctor several times through the afternoon - but he says it's rubbish :(
It frightens me... and I really hope these nurses have left :(
Moderator - Chronic Pain Forum
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.
Oxycodone ER/IR, Topamax, Mobic, Somac, Cymbalta, Lorazepam, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump