Welcome to the forums 59, WOW you have certaiinly been through it. I can only imagine the frustration along with the pain. No answers are scary at best.
I can tell you that it certainly is suggestive of some kind of nerve condition but they seem to be looking. When you first started describing your symptoms I would have bet shingles even if you didnt mention a rash of any kind and I have seen one other person that was DX with it and never developed any kind of rash.
I had similar kinds of pain when I had encephalitis due to the inflammation of the nerves at the base of the brain. I have seen some of your symptoms in some of the mosqiuto born diseases as well. But and I hate the word, yours seem to be all over the board.
I can say that with over a 100,000 or so members here someone has to see this and recognize your symptoms and have something maybe to go on or try at least.
Im wishing you luck and sending you hugs too! Sheesh thats alot on your plate with no relief.