Hi, my name is Ashley. I'm 23, and I started experiencing regular headaches in early May of 2006 when I was 16. At the end of the month, a headache came and never left or relented. May 29th will be mark my 7th year. A few years ago, I started feeling pain in the upper left side of my back. It feels like a burn, almost like a cutting type of pain. I thought that maybe I had fibromyalgia, but I saw a rheumatologist and he didn't seem to think I had it. I asked him for Lyrica, but he told me to see my regular M.D. My regular doctor gave me Lyrica to treat that back pain. It seemed to help, but I forgot to take my Lyrica for 4-5 days and I've been back on it for awhile now but it seems like the upper back pain seems more apparent than it has been since starting Lyrica.
I have had the following tests done:
Bloodwork: Nothing related to headaches. However, I have celiac disease and hypothyroidism. Both diagnoses confirmed by blood tests. Besides headaches/upper back pain, I have: tachycardia (rapid heart beat, I have had this since I was little), mitral valve prolapse.
MRI's: I have had several in the past nearly 7 years, probably 3 or so. 2 pinched nerves in neck, degenerative disc disease/arthritis in cervical spine.
EMG: Confirmed 2 pinched nerves.
EEG's: I have had a few, results always came back fine.
Heart Echo w/ Saline Bubble: A lady my mom knows had regular headaches but then she got a heart echo w/ a saline bubble injection and it revealed that she had a hole in her heart causing the headaches. She had surgery, and her headaches went away. My heart echo w/ saline bubble results came back fine.
I have seen neurologists, but none of them have ever been able to help me. One of them even told me: "Maybe you're just a headache-y kind of person." (What?!)
I completed 3 stints of physical therapy at separate times, no relief.
I went to see an orthopedic surgeon to see if he could help me, but he said that spinal fusion would require a lot of surgical upkeep and that by the time I reached a certain age, my range of motion would be very limited in my cervical spine.
I have tried many medications to no avail. I currently take Norco for my head pain and Lyrica for my upper back pain.
I feel like my life is over, I feel like I will never have a chance to do everything I hoped I would be able to do in my life. I had a full grant to college, and couldn't even use it. A lot of my friends are graduating college this year, and I haven't even been able to start. It's hard to focus and think clearly sometimes when I hurt the way I do. I have seen many specialists/doctors and nobody can figure out what is wrong with me or help me. Sometimes I feel like it would be easier if I just didn't wake up one day - but my mom and my sister need me, we're all each other has so I can't leave them. I don't really want to die; I don't, I'm just so desperate to feel okay again. I feel like a zombie sometimes because my pain medications make me drowsy/nauseous.
I have felt so alone in all of this the entire time. Nobody seems to quite understand what I'm going through. I have become a much angrier person. I can't work (I tried) or go to school, I never feel well enough to socialize. I haven't seen any of my friends in 7 months. I just don't know what to do anymore. I felt like I had it together for the first few years of this, but it's all been wearing me down more and more each day. I don't even feel like a real person anymore, I feel like I'm half dead already.
I appreciate any help or advice you can give me. Thank you, in advance.
Post Edited (ashley8119) : 2/28/2013 5:50:40 PM (GMT-7)